Aug 03, 2010 - 4:54 pm
- Age of diagnosis or time since diagnosis
- Specific type of cancer (squamous cell, salivary gland, thyroid, others)
- Treatments: surgery, chemotherapy (if possible with names), radiation, etc.
- Please state your question clearly.
So far I have responded greatly to treatment. My oncologist cannot see nor feel my tumor anymore, thank god. It was quite large and could be seen by looking down my throat without special instruments, it was classified as stage 4.
Has anyone been through this? If so what was your experience with side effects of both radiation and chemotherapy? What side effects did you have?
I can tolerate the treatment, its not as bad as it was when I was going through radiation. I was very vigilant about drinking to maintain proper swallowing motor skills. I guess my biggest gripe right now are my side effects of the treatment and wanted to hear from someone who has had the same experience and did they ever subside?
My current side effects:
- Ringing in my ears. It drives me up the wall, I never have peace and quiet, its always a tone in my ears. I read this can go away, but after how long? When did your ringing go away if you had it?
- To much spit. I took a drug during treatment to prevent dry mouth called Ethyol. One of my worst side effects is that I secrete so much mucus in my throat I have to constantly spit it out. It effects my speech and my breathing, its like the consistency of egg, not very pleasant. Again if you had this how long did this last? I'm told it goes away but WHEN? My throat is chapped from the constant hacking.
- Eating. I just begun eating very soft food again, its been about two months since I actually could swallow anything. Liquids are fine I can drink perfectly ok. My jaw is super tight and I have to stretch it all of the time. What sort of foods should I be eating? Soup doesn't have enough calories. When should I force my self to eat solid food? I had some of my molars pulled before treatment so eating normally at this point is out of the question. I can push more calories through my g-tube than my mouth, which I need to change. I need to sever my dependency of the g-tube. I have lost 67 pounds so far, I'm at 210 at 6ft tall.
I guess I really just want to hear back from someone who has gone through this. I'm tired of listening to doctors tell me it will get better over time, while I am living this nightmare.
Thank you for reading and I hope to hear from someone.