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mestatisied basal cell carcinoma to lungs has anyone each had this

cool49
Posts: 27
Joined: Feb 2010

iam 5/8 wt 279 blonda hair healt they found out i had nodula in my ribs and both lungs.had 4 tumors.ranger from small to abot 3cm by 1cm i havd a tumor that is about 6 cm by 2.i have two blood clots.theres know cure for mine .i hope some one has this same condition it started frommy right leg had basal cell cut off 18 years ago .please they has got to be someone else that has this dieases.thanks cool49

liveagain
Posts: 15
Joined: Jun 2010

Cool49 I am really sorry to hear what you are going through.
Have you gone for any second opinions? I was told that I was too far along when I was looking to have my tumor
(7 cm) removed so I got three more opinions mostly by faxing my records. The fourth place I contacted offered to treat my metastatic basal cell cancer very aggressively with surgery, chemo, and radiation.
Prayers heading your way.
Liveagain

cool49
Posts: 27
Joined: Feb 2010

mine went to my lungs i had a basal cell cut off three time with in 18 years the last doctor that removed it sent it to pathlogist.so 2009 9 11 09 they found it was in my lungs i have four tumores their is know cure for it .they are waiTING for the hedge hog inhibtor to come out GDC 0449.I HAVE BEEN LOOKING ALL OVER FOR A CLINIC TRAILS .GENTEC MIKE gray he has been trying to help me he said they are going to do a study on advanced basal cell carcinoma on lungs bones i belevie.very soon i will be going under clinic trails. two opiononits very rare u know that 0.1 % have it 300 hundered case in the world cause know doctors didnt think the should track what we had on are skin i should docoment every one that goes to a derlogist on basalcell carcinoma melenom and others that the cut of youre skin 300 casesince 1895.it dont make me mad but .my doctor said he thought mine i melomia atfrist until patholist send it to him.we had a plane for melomae but when it came back it was from the skin he was in skock and so was i.he said in his thrity four years he has never every had a case and hes college hadnt either in chaple hill , and the rest of his colleages aroung the world he said i would have a year and a hafe two iam ready to go to heaven i dont hurt but i cough all the time.thanks live again.tell they cannt do radtion chemo are any think is it all over my lungs.but just keep saying the prays god has always pretected me.ok i will send prays to u let me know a little bit mor about youre where they found it liva

liveagain
Posts: 15
Joined: Jun 2010

Cool49 I will be praying that you can get on GDC0449 quickly. I agree it probably offers some possible help for you. My original basal was on my back 12 years ago. In December 08 a mri for shoulder pain identified a mass in my shoulder. By April 09 cancer had spread through my lymph system up to my chest and neck. The race was on to stop it before it reaches my lungs so they treated it agressively. My next mri and chest ct will be in September. I really wish they could have found your cancer before it reached your lungs.
Liveagain.

cool49
Posts: 27
Joined: Feb 2010

it was on the back of my right leg.each time they got the margin then it keep coming back until i went to dr.lock in shalotte nc.they he cut it twice and send to ppathologist and they said they got it all 18 years ago
they said skin cancer hardly ervey mestastaised to the lungs are any where .do u know orther people that whati dont have know pain in my lungs are any where gods been good to me.i think him every day what type did youres come back as and treatment did u havere to take.what did they give u to cure youres . its ashame that the dont hasve been standards then what they go.what treatment did they use for youres and who doid u go to.cool49

liveagain
Posts: 15
Joined: Jun 2010

I do not know of anyone else being treated with basal cell mets to the lungs however it sounds like there are some in the gdc0449 trials. My pathology came back as poorly differentiated basal cell carcinoma. University of Michigan was the only place (of those I checked) that offered to treat aggressively but mine had not reached the lungs. Hope you find a treatment that helps you soon.

cool49
Posts: 27
Joined: Feb 2010

i hope u had a graet day today i did u know there has to be othjers out there like us ares is rare.will hope to here from u againg so have u been marred do u have grand kids husdand i have a son 35 and a grad son 11 i wonder where we can get more informatiom on are rare basal cell carcinoma keep looking and i will to i will send a pray up to u for god.cool49

cool49
Posts: 27
Joined: Feb 2010

hi are u today what did u do all day its bee so hot here like 104 in day time so what are they givive u fore youre should.they are given u treatmeat right.why do they have to weight for it gets to the lungs by then we could all be died lol.will i hope u have a great weekend.its rained here al dayand tommorrower ok live hope u reply tommorroww.cool49

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