Tingling Feet...need info please

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lady4darknight
lady4darknight Member Posts: 90 Member
edited March 2014 in Head and Neck Cancer #1
Hi everyone,
I think I have seen something about this but couldn't find it so I have to ask. I finished my rads June 24 and for about a week now my feet are tingling and feeling like they are asleep so bad I am going nuts. Is this something to be concerned about? I check back in next week to repeat my MRI and see the doc and wonder if this something to tell him. It seems like I am always stopping my feet to make it quit and don't know what to do. Am I alone on this? Thank you all so much for your support.

Debbie

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  • CajunEagle
    CajunEagle Member Posts: 408
    #2
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    Tingling Feet
    Dog Gonnit, Debbie, I'm sorry but you've got what I have.....Neuropathy of the feet (and I have it in my hands also). I bring it up to my Oncologist, and he says it's his fault and caused by Cisplatnin. I've had it for about a year and 3 months and I've never gotten used to it. Every day that I awaken, I check to see if it has gone. So far it hasn't, but hope is eternal. It is "suppose" to go away...eventually, but who knows ? If you find out how to get rid of it, let us all know. Hang in there, Babe. You're doing well.

    Larry
  • micktissue
    micktissue Member Posts: 430
    #3
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    Ditto Larry
    Yep, this is a common side effect to cisplatin and it might go away, is what I'm told.

    Best,

    Mick
  • Glenna M
    Glenna M Member Posts: 1,576
    #4
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    micktissue said:

    Ditto Larry
    Yep, this is a common side effect to cisplatin and it might go away, is what I'm told.

    Best,

    Mick

    Still tingling....
    Hi Debbie, I also have the tingling in my hands and feet 10 months post treatment. My oncologist asked me at every visit if I had this sensation as it is a common side effect of Cisplatin. He told me it wouldn't get worse but "might" get better with time.

    It's annoying but I can live with it, I'm just thankful to still be living ;-)

    Hope this annoying side effect lessens for you over time.

    Take care and stay strong,
    Glenna
  • friend of Bill
    friend of Bill Member Posts: 87
    #5
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    give it time
    for me the neuropathy improved some over time. I don't want this to be a downer, but at 22 months from last treatment I still have a good deal of it with hands and feet and have been told I probably have improved all I'm going to. I learning to accept this. A couple of things I have learned. Wear good supportive shoes, be really careful in shower, watch balance closely. I have it in my hands too and must be very carefull touching anything hot because I will burn without noticing. Do I mind it? Yes. Can I live with it? Happily (most of the time) considering the alternative! definitely talk to your doctor.

    Vince
  • davidgskinner
    davidgskinner Member Posts: 81
    #6
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    A sucky side effect
    When this came on for me about two months AFTER finishing treatment I was really mad as well as in pain. It just didn't seem fair. Anyway, I did have the neurologist check me out just to be sure it wasn't something new. I am taking neurontin right now and that seems to be helping take the edge off. I can walk and run and stand for much longer periods of time and there don't seem to be too many side effects for me. Good shoes make a big difference, too.
    I am told it *probably* will improve over time. So I am trying to ignore it, but it ain't easy. Sorry you got it too. It does really suck.
  • Pam M
    Pam M Member Posts: 2,196
    #7
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    Another Club We Didn't Want to Join
    Debbie,

    I've got neuropathy in my feet. My podiatrist has prescribed Metanx, a super B vitamin which is supposed to help restore nerve function. A lady in the chat room here (Cheryl) is using something that I think ends in "iica", and she says it works. Good Luck
  • denistd
    denistd Member Posts: 597
    #8
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    Pam M said:

    Another Club We Didn't Want to Join
    Debbie,

    I've got neuropathy in my feet. My podiatrist has prescribed Metanx, a super B vitamin which is supposed to help restore nerve function. A lady in the chat room here (Cheryl) is using something that I think ends in "iica", and she says it works. Good Luck

    neuropathy
    Hi Debbie, i had it in both feet and hands, I am now 13 months out of treatment. I noticed about 2 months ago that it was not bothering me so much, maybe, I thought, I am getting used to it, like the tinnitus, and don't notice it so much, but no, it was diminishing, now it's gone, no more tingling, I still have the tinnitus but don't notice it so much, maybe it too is going away or i am adapting to it. but the tingling, gone.
  • lady4darknight
    lady4darknight Member Posts: 90 Member
    #9
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    denistd said:

    neuropathy
    Hi Debbie, i had it in both feet and hands, I am now 13 months out of treatment. I noticed about 2 months ago that it was not bothering me so much, maybe, I thought, I am getting used to it, like the tinnitus, and don't notice it so much, but no, it was diminishing, now it's gone, no more tingling, I still have the tinnitus but don't notice it so much, maybe it too is going away or i am adapting to it. but the tingling, gone.

    Thank you
    Hi all and thank you all very much. I should have known it was just another crazy side effect. Well this too I shall endure as the rest of you. I think I had better get some good shoes though as I have taken to wearing flip flops and this probably isn't helping. I have noticed some tingling in my hands but I had thought it was just carpel tunnel maybe. I will speak to the doctor about it and see what he says. Again, thank you all for the help and advice.
    Debbie

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