i went on a very strict low iodine, low sodium diet for two weeks prior to iodine treatment . when i showed up the head of nuclear medicine decided not to give me the treatment. he said he wanted to see more records, slides, etc. also he felt the treatment would not help me that much. i have an inoperable poorly differiated thyroid cancer tumor and other illnesses. when he felt my tumor, he said it was the worst he had felt all year. so i did not feel encouraged. i felt sad.
my endincrinologist had been with another cancer hospital so he sent me to the head of nuclear medicine there and it seems they may attempt treatment to my relief as i was diagnosed in feb, surgery was attempted in april--but i have had no treatment. i take polymva-- a supplement.when i was getting clearance for thyroid surgery they found i had a heart problem and took me off synthroid. my heart rate was high. i had a goiter--nonmalignant--on the right side for years and was taking synthroid for it..
anyway, other than pain in my neck, head, shoulder, etc. i was not feeling that bad. but since that diet about a month ago i have felt sick--nausea, pain in my stomach, weak, loss of appetite abd pain in the neck and head.
finally, i may get treatment tho. the endincrin. emphasized i should stay on synthroid and not go on the low iodine diet until a week before the treatment. i crave salt. so i eat it until they tell me to start the diet. did this happen to anyone else.thanks and good luck to all.