CSN Login
Members Online: 14

A Good News post

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

Latest CA125 now down to 15 from high of 658 in April! Doxil may have sent previous 250-ish number up, but this number is downright normal :-)

CT scans show only thing of note that the para-aortic and aortocaval lymph nodes that were 2.6 cm and 2.0 cm respectively are now just 0.8 cm!

See gyn-onc next week to see about break from chemo. Liver enzymes were going up and down with Gemzar but ultrasound and CT were completely normal. Wheww! I've done 2 cycles of Doxil and 4 cycles of Gemzar this year and I'd like to give the body a break.
--Annie

Cecile Louise's picture
Cecile Louise
Posts: 135
Joined: Dec 2009

That is such good news, Annie! Your CA125 down to 15 from 658?!?! Woohoo! It's wonderful that your treatment is going so swimmingly - thanks for sharing the good news!

Love,
Cecile

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

You go girl....this is great news!!! I know you're ready to get off the roller coaster with chemo and sounds like it could happen. That's a fast downhill slide with the CA125....can't say mine went down that fast. Started 450 and ended with 4 and staying in that range...yippe!!

Enjoy singing the happy dance~
Jan

Ro10's picture
Ro10
Posts: 1406
Joined: Jan 2009

Glad your CA 125 has dropped so much. Hope you can get that break from chemo for a while.
Great news on you CAT scan too. Celebrate. In peace and caring.

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

Super news!!!

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

great news, great ca 125 trending down. were your para aortic and aortocaval lymph nodes considered enlarged? they sound pretty small to me to start out with, but then really got tiny, which has to be good. would be so great to have a break from chemo, am sending you all my hopes that that will happen.

sisterhood,
maggie

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

My gyne-onc is a BIG believer in taking a break from chemo whenever you safely can. He says, in the long haul, giving your bone marrow a chance to recover with a chemo break allows you to return to the battle stronger if the cancer recurs again. You don't want to be FORCED to take a break from chemo when your cancer is active and growing just because your blood counts can't pass muster. A chemo break when your CA125 is low and tumors driven back just makes sense. Plus it gives you your LIFE back for a little while and THAT is worth soooo much! What a fabulous CA-125! Mine has never gotten that low. I'm hoping for a break from chemo after the summer, but my CA125 is still at 72, a long way from 'safe'.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Maggie....LOVE you new pic! You are very clever to get the pic posted along with cards! How FUN!

Love your attitude.....and I am confident you will hit the Jackpot!!

Karen

Cecile Louise's picture
Cecile Louise
Posts: 135
Joined: Dec 2009

I love that picture, too! You look amazing and strong! I don't think I'd want to be betting against you at the poker table, though...you've got "winner" written all over your face!

Love,
Cecile

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

thank you so much for your sweet comments re: my photo. afraid i can't take credit for any of it. a photographer came around during play and took everyone's photo, and the cards came with it. i'm a little embarrassed to say i also ordered some coffee mugs with my mug on them as well. it was a once-in-a-lifetime event.......

may all of us here hit the jackpot!!!

hugs and sisterhood,
maggie

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

Maggie, The nodes were considered enlarged and one biopsied positive for same type of cancer cells (UPSC). Curious myself, best info I could glean is average lymph node is 1 cm, with a range of 6 mm to 20 mm (.6 cm to 2 cm) considered normal range. Mine were 2.3 and 2.6 cm so were noted as enlarged, and now at .8cm sure seems normal to me ;-). I'll finally see gyn-onc later this week. --Annie

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

thanx for the info re: enlarged nodes; that was very helpful. hope all goes well at the gyn-onc's, let us know. while i'm away, i'll try to find an internet cafe to check in with everyone.

again, thank you, annie, for doing the research.

sisterhood,
maggie

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Annie, that drop in your CA 125 is TERRIFIC....and the CT scan results are superb!! Am hoping you are having a HUGE celebration!! Let us know what your gyn/onc has to say next week.

We are all saying....HURRAH!!

Hugs, Karen

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

What wonderful news!!!

MIND, BODY AND SOUL!

Hugs,
Marge

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

you are responding well to treatment!!! Enjoy. Mary Ann

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

good News Maggie! I think you need a break and a wonderful vacation. It looks like you found the drug that works for you.

Love ya,
Diane

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

i think you may have mixed up annie and me, since i haven't been in treatment since last november. i am going on vacation, however,
and diane, if you were referring to the drug that works for me (poker), you're right, but i don't think that's what you meant. or is it? in any case, i'll be off line from about the 7th august through 17th, but will try to find an internet cafe to touch base. can't be away from this site too long......

sisterhood,
maggie

Ro10's picture
Ro10
Posts: 1406
Joined: Jan 2009

Going to Alaska should be terrific. Have you set up your shore excursions yet. Hope you have a fabulous time, and are lucky in poker. In peace and caring.

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

thanx for your wishes re: my alaska trip; should be great. poker people say my partner and i are not worth our weight in salt if we don't win enough at poker to pay for our cruise!!!! i don't think so...still, i appreciate you wishing me luck. no, haven't made any shore excursion reservations yet; i hear it's better to see what's offered at the time--more choices and better prices, so we'll wait til we get to each port. getting close to time to leave; always so much to do to get out of dodge....hope you're doing well.
sisterhood,
maggie

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network