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This is creepy!!

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I just need to ask if anyone has had weird stuff go on with their toenails during and after treatment? I noticed my nails looking odd before I was done with treatment and they just kept getting uglier. Well now they are falling off one by one. I only have 3 left and they look like they could go at any time. It's not painful and there's another nail underneath but how creepy is that? It's not a big deal as I am not a foot model or anything but it's definitely been a no sandal or flip flop summer for me. I was just curious and figured everyone could use a laugh. Mary

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mary, never had anything like that happen yet. I learned a long time ago that nails are actually hair follicles stuck together with a glue produced by the body. I don't know if it has anything to do with it or not,but I guess it is something to think about.

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Well in researching it I found out that chemo will affect both fingernails and toenails because they are growing and it attacks everything that is growing. It said most people don't lose their fingernails but many do lose their toenails because of the pooling effect of medication in the lower extremities. My fingernails are fine now but toward the end of treatment I remember the nail beds turned really dark red or purple but that is gone now. Guess I never knew this. Oh well I didn't like my toenails that much anyway and now I have new ones. have a good day everyone and I apologize if I have anyone examining their hands and feet...Mary

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

Dam Mary, that is wierd!!!! did you ask the Onc, never heard of that one!!!!!

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

LOL I know right? I plan on mentioning it to him when I go back in August just for fun. It's a wonder it hasn't caused some psychological damage or something. I think it may have for my daughters who are both horrified by the whole thing, especially if I make them look at the fallen off nail!!

yesyes2
Posts: 461
Joined: Jul 2009

Hey Mary, I have the same problem. I started losing my toenails right around the time I finished chemo. Actually got an infection under a few because they were loose. Pretty scary at the time because here I had an active infection while still getting chemo. But my Onc wasn't worried and I was fine after the ped. doc removed them. But really ugly and creepy. I had a few nails that turned blood red, the entire nail not just the bed. Currently I'm having problems with my finger nails, very dry, soft and shattering......... odd as I always had great finger nails.

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I can imagine that was scary cuz they warn you so much about watching for infection. Glad it all turned out OK. My fingernails are the same as yours, very soft and peeling. Wish they would warn us about that. I thought I was falling apart feet first. Mary

britta
Posts: 107
Joined: Apr 2010

My fingernails have been breaking too for some months. I would have been horrified if that had happed to my toes. You take everything so well and with such humor, you must be fun to live with. Me, I'm a basketcase most of the time. Just sent you a note.

winthefight's picture
winthefight
Posts: 162
Joined: Dec 2007

Hi Merry,

I think this is something you should discuss with your Oncologist or Oncology team. I don't think this sis something you want to sit back on. I have learned within my 18 months of treatment and 3 yrs as a survivor: if you question it, you should bring it to your Oncology team's attention right away.

I speak with lots of other nhl survivors. I have never heard of anyone experiencing his/her nail failing off.

Please let us know the status.

Take care.

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Good to hear from you. Hope all is well. I will definitely let the MD's know about it. There is a new nail underneath each one and no signs of infection and no pain. Thanks for the post and you take care too.

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

My list of reminders of what to look out for just keeps growing and growing! I just added this one to it...ha! Thanks Mary!
P.S....(nothin creeps me out)...the more info the better!
Sue

TheMWord's picture
TheMWord
Posts: 23
Joined: Jun 2010

My nails got really discolored during treatment, and getting manicures totally didn't help. The stuff would chip off in a matter of days. It's part of the treatment, and should clear up when you finish.

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Thanks. I am finished now and I think they are healed and the old nails just started falling off. Oh the fun of treatment. But thank God for it!

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Oh no I didn't want to add anymore to the list. But in my own warped defense I did research it online and it is well documented and also depends on the type of treatment you had. One of the important things is to report any signs of infection and to let the nails fall off naturally and not pull them off!!!!! As if. Mary

yesyes2
Posts: 461
Joined: Jul 2009

I had spoken with both my oncologist and my pediatrist, my onc really could have cared less as long as the infection was under contol and my counts were good. My foot doc thought the Vincristeen and neuropothy may also have played a role. I had problems with my fingernails 18 yrs ago when treated for my breast cancer. but this is much worse. Oh well, the chemo worked and it's just nails. And they will eventually grow out/back, LOL.
Good reason to not have to do dishes.
Leslie

yesyes2
Posts: 461
Joined: Jul 2009

Hi Win, Good to see you. Have missed your imput. Is everything going well?
Blessings to you,
Leslie

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

OMG!!!!! its starting, I noticed my thumbs are looking odd, starting to discolor, that's it I'm going to reside in the basement with a hooded shroud over my head till this is all over!!!! LOL got to laugh!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Oh Vinny............I'm sorry you're having nail phobia but my goodness I got such a laugh from this post!

Hang in there buddy..........you're half done!

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I laughed so hard my family thinks I am nuts sitting at the kitchen table laughing by myself. You are too funny!!!! Is that weird or what? That's where I first noticed that something was amiss, my thumb nails discolored. I didn't lose any fingernails though just the toenails and since there are always socks and shoes you may come up from the basement. Still laughing. Mary

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

It's sure is good to laugh!!!!!!!!!!!!!!!

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