Jul 20, 2010 - 11:28 am
Hi, I can't seem to find anyone living with a nephrostomy tube. I have questions about this. I have been getting it changed every 3 months but now they allow me every 4 month changes. Each time I get it changed I would end up in the hospital very sick. Last time they did IV antibiotics before and the day after and that worked, however I actidently pulled on the tube and ended up on 3 antibiotics again at present. They could not get a stent in, tried about 3 times. No one answers when I ask if anyone has lived with this for years. It has almost been a year for me now. I have leiomyosarcoma, now in surgical remission. Becky in Michigan.