Robert's finally got home but with complications

Anj_and_Rob
Anj_and_Rob Member Posts: 29
edited March 2014 in Esophageal Cancer #1
Well after 10 days in the hospital, Robert finally got to come home on July 9. He developed jaundice and they are still keeping an eye on his liver. But the day he was discharged we noticed draining from his abdominal incision. The PA looked at it and right away knew she had to open up the incision due to the severe drainage. He had necrosis. They opened up half of his 8 inch long incision and packed it. I've had to pack it twice daily to let it heal from the inside out. We do have a RN coming out 3 times weekly to check to wound and track progress. Well a couple of days ago I noticed increased drainage and just wasn't looking right...the RN agreed and contacted the doctors so we had to go back to UofM today for them to check it out. Turns out another pocket of fluid had accumulated under the part of the incision that was still sutured. So guess what? They had to open the incision completely. It was a very painful process for Robert with 2 PA's and the physician having their hands in there, poking q-tips in there, and sticking him with the needle several times trying to numb the area. I was hard to watch :( They were concerned that the facia was not intact and making sure no drainage was coming from that area. Thank goodness that was still intact but looking in the incision I can see the sutures that are holding it together. So i'm still going to be packing his incision now 3 times per day, it's very frustrating for him because I know he just wants to heal and he refuses to look down at his abdomen. I'm just trying to remind him to take it one day at a time but he's getting really impatient.

As for good news! The pathology report came back clean, there are no signs of cancer, the tumer shrank to nothing and of the 15 lymphnodes removed 4 had some scarring but no had any cancer. The surgeon seems very optimistic on his prognosis. So for that we feel very greatful.

Anjanette & Robert

Comments

  • nancyann3
    nancyann3 Member Posts: 173 Member
    Great news for you guys!
    Nice to hear the great news. Hope healing comes quickly for him!

    Nancy
  • Donna70
    Donna70 Member Posts: 852 Member
    good news
    Hi,
    Sorry to hear about the incision problem and all the drainage. It is hard to go thru so much and then turn around and have such a problem but so glad to hear no cancer in the nodes!! and the tumor destroyed!!! Tell him it gets better, be patient and prayers will keep on coming!!
    Donna70
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    Hi Anj and Rob
    So happy to

    Hi Anj and Rob
    So happy to read your update. Sounds like a real rough patch in your road lately, but you got through it! Congrats on the latest scan. Great to hear that Rob is now NED!! I am sure his incision will heal slowly, but surely, and with a great wife, nurse, caregiver on his team, he is sure to win! God bless and keep in touch.
    Tina
  • unclaw2002
    unclaw2002 Member Posts: 599
    Anj,
    Glad that you are home.

    Anj,

    Glad that you are home. Sounds like wonderful news from the scans. I know if is so difficult but each day Rob will get a little stronger and you will get a nursing degree in exchange. I admire you very much and don't be afraid to ask for whatever home health care assistance you need. The open wound is a serious thing and does require constant monitoring.

    You and Rob will be in my prayers and thoughts,

    Cindy
  • paul61
    paul61 Member Posts: 1,391 Member
    I would check into a "Wound Vac"
    Anjanette,

    Great to hear Robert is home and recovering!!

    Like Robert I also returned home with an open incision that needed to heal from the inside out because of an in hospital infection.

    The home care nurse suggested a device called a “Wound Vac”. It is a device that has a dressing that includes a sponge insert and vacuum device that draws the wound together and removes any drainage. It speeded the healing of my wound considerably.

    The only downside was that I had to carry around a device about the size of a fanny pack that contained the vacuum device and reservoir for the drainage. But the nurse said that without the device my wound would have taken twice as long to heal. Once the doctor wrote the order my insurance paid for the rental of the device under ‘Durable Medical equipment”

    We will be praying for a rapid recovery for Robert.

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0
    12/03/2010 Ivor Lewis
    2/8 – 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    6/21/2010 CT Scan NED
  • Anj_and_Rob
    Anj_and_Rob Member Posts: 29
    paul61 said:

    I would check into a "Wound Vac"
    Anjanette,

    Great to hear Robert is home and recovering!!

    Like Robert I also returned home with an open incision that needed to heal from the inside out because of an in hospital infection.

    The home care nurse suggested a device called a “Wound Vac”. It is a device that has a dressing that includes a sponge insert and vacuum device that draws the wound together and removes any drainage. It speeded the healing of my wound considerably.

    The only downside was that I had to carry around a device about the size of a fanny pack that contained the vacuum device and reservoir for the drainage. But the nurse said that without the device my wound would have taken twice as long to heal. Once the doctor wrote the order my insurance paid for the rental of the device under ‘Durable Medical equipment”

    We will be praying for a rapid recovery for Robert.

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0
    12/03/2010 Ivor Lewis
    2/8 – 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    6/21/2010 CT Scan NED

    Wound Vac
    Paul if you don't mind me asking, how long did it take for you incision to completely heal? Robert had to have the other half of his incision opened because of drainage, and the doctor wants to send him to a wound clinic and thinks the wound vac would be the best option for him.

    Thanks
    Anjanette & Robert
  • paul61
    paul61 Member Posts: 1,391 Member

    Wound Vac
    Paul if you don't mind me asking, how long did it take for you incision to completely heal? Robert had to have the other half of his incision opened because of drainage, and the doctor wants to send him to a wound clinic and thinks the wound vac would be the best option for him.

    Thanks
    Anjanette & Robert

    It healed very quickly
    Anjanette,

    I had an incision on my back that was approximately 7 inches long and ½ an inch wide when I came home from the hospital. It was infected in the hospital and they had to reopen it so I basically lost all the healing I had done while in the hospital.

    Once the Wound Vac was applied the wound healed to about 95% complete in about six weeks. I then started Chemotherapy and the healing of the incision slowed down substantially. But I believe if I had not started chemotherapy it would have been completely healed in about eight weeks.

    You will be amazed at how fast Robert will heal with this device. I have to admit carrying it around and having the dressing changed was not my favorite thing but the accelerated healing was worth it.

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0
    12/03/2010 Ivor Lewis
    2/8 – 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    6/21/2010 CT Scan NED