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Words of encouragement

melbas's picture
melbas
Posts: 43
Joined: Jul 2010

I thank all of y'all for your input.I get the chemo back off tomorrow for a few weeks, now the mouth sores are setting in. I feel like I'm swallowing glass. I know you all say it gets easier...I'm heading into week 2 of treatment...so that is my point of focus. My prayers are with each of you in this journey we are all embarked on. Melodie

lizdeli's picture
lizdeli
Posts: 522
Joined: Jul 2009

Melodie
I'm so sorry you are beginning to experience the mouth sores. Try rinsing with warm water and baking soda 4 times a day. Also, there is a mouthwash I've read that others have used, "switzel" or something like that. I'm sure someone will chime in with the right spelling. It is supposed to help with the sores.

You're already heading into week 2 which is great, but I know it's very hard.

God bless you and keep you strong.
Liz

pjjenkins's picture
pjjenkins
Posts: 173
Joined: Mar 2009

Our cancer center uses a blend of ingredients called "miracle mouthwash" which my insurance wouldn't cover so I asked for the list - quite lengthy - so decided to pay for the concoction myself. My recollection at this point is fuzzy (was 2 1/2 years ago now) but I think it worked rather well in helping me get sustenance down and alleviating the problem in a couple of days. I liked its effect enough to pay for a second bottle - most of which I still have! Wish I could pass it on to you!

There has been mention of a number of "remedies" in these posts and you will have other suggestions but this is for sure: this does pass and rather quickly in retrospect - Hang in - the chemo is an important part of the cure! Glad you will have the dang infusion done with tomorrow!

Priscilla

duckyann
Posts: 162
Joined: Jun 2009

Hi Melodie,

The mouthwash Liz is referring to is called "Magic Swizzle". I used this and it does help. My doctor also prescribed something else that actually healed the mouth sores but I can not remember the name of it. It starts with an "N" and it was yellow syrupy kind of stuff that I had to swish with too. If I can remember the name of it I will post back with it.

Hang in there!

Nancy

Chris3
Posts: 53
Joined: Mar 2010

The good news, at least in my case, was that the mouthsores seemed to go away rather quickly. They seemed to appear the week following my chemo weeks. i.e. Chemo during Week 1, mouth sores developed in Week 2, but disappeared by the weekend. Then after the Week 5 Chemo, the sores returned in Week 6. I used Biotine Toothpaste and Mouthwash. I also got an Rx for the Magic Mouthwash which is typically Viscous Lidocaine (numbing), Liquid Benadryl, and Maalox or Mylanta. You can also just use straight Maalox or Mylanta which will change the Ph balance of your mouth from acid to alkaline. Gargling with salt water can help also.

SueRelays
Posts: 489
Joined: Dec 2009

Hi.....there is also one that you can buy I think where the mouthwashes are....but can't remember the name of it, but it says it's for sores caused by chemo......I have it somewhere!!!! :(.....a girl in radiation gave it to me...thought it was interesting that my onc didn't suggest it!!!!

mp327's picture
mp327
Posts: 3116
Joined: Jan 2010

Sue, I bought a mouthwash and toothpaste called Biotine, which was recommended to me by my chemo nurse. Perhaps this is the same stuff you are referring to.

SueRelays
Posts: 489
Joined: Dec 2009

Doesn't sound familiar. Had my relay meeting last night or I would have checked. Try to remember tonight! HATE those mouth sores!!!

sissy310
Posts: 300
Joined: May 2010

This is what I am using now. Both the toothpaste and mouthwash as well as a very soft toothbrush. I was told by someone on this or the other forum that it is less painful than regular toothpaste and mouthwash and I got it for my 'crisis kit' just in case I needed it...started using it before chemo/rad even began just to get used to it.

mp327's picture
mp327
Posts: 3116
Joined: Jan 2010

The Biotine products do not contain alcohol, which would be way too harsh for your sensitive mouth right now, so these things will be much better for you to use. I wasn't sure when my treatment ended how long before I could start using regular toothpaste and mouthwash, so I just tried it one day. Yikes! Burn, burn, burn! I had to keep using the Biotine for quite some time before my mouth healed up enough.

sissy310
Posts: 300
Joined: May 2010

I remember once using Biotene because I had some dry mouth issues with meds I was taking awhile ago but someone on this forum or another one mentioned it so I bought it early and put it in my 'cancer bag of tricks' -- did not realize that it does not contain alcohol which makes sense that it is so mild to use ... started using it before I had chemo and radiation just to get used to the blander taste and such. I will have to remember not to be so quick to switch back to what I usually use (sensodine) until I'm sure it will work. Trial and error with everything with this huh? But we persevere. And push forward and help one another and I thank God we are all here for each other but not for the reason we have to be here.

Melodie - how are you doing? You are only a week behind me in treatment...I'll have to help pull you along on some days and if you don't mind, kick me in the butt forward on other days...hope you are feeling better.

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