Eagle Project to help Head & Neck Cancer Patients Finished, Comfort Tips For Head & Neck Cancer Pat

survivor son
survivor son Member Posts: 4
edited March 2014 in Head and Neck Cancer #1
I am doing the final part of my Eagle Project. I habe finished the survey and created this list of foods and care items that other Head and Neck Cancer patients have found helpful in your treatment. I had promised to post the information collected, so here it is.

Comfort Tips For Head & Neck Cancer Patients
Food, Nutrition & General Health Suggestions
for Head and Neck Cancer patients, by Head and Neck Cancer patients

Who I am
My name is John P., I am an Eagle Scout Candidate with Troop 511 in
Northwest Austin, Texas. My mother has recently undergone treatment for Tonsillar cancer. I am creating this brochure as a part of my Eagle Project.

How I obtained this information
I collected this information by conducting a survey of former Head and Neck Cancer patients and asked what food and care items helped them to get through their treatment and recovery period. The results of the information gathered have been
compiled into this brochure.

List of food and care items

Foods
Water (Try warm and cold, responses said both felt good at different times-Tap or bottled)
Ensure®, Boost®, Carnation® Instant Breakfast or other nutritional supplements
Canned Carrots and Peaches
Puddings
Teabags for hot tea (decaf, throat comfort, no anti-oxidants)
Mashed Potatoes mix
Juices (Non-acidic: peach and berry)
Cans of beans (whole, refried and black)
Soups, Broths, Creams (No tomato or other acidic types)

Medications and ointments
Oral Use:
Biotene® mouthwash/gel/toothpaste/spray/gum
Salt & baking soda to make mouth rinse (1 Qt warm water, 1 tsp salt, 1/2 tsp baking soda, store in a jar at room temp, using as a rinse as needed)

Topical/Skin/Lip Care:
Vitamin E oil
Eucerin® Cream
Aquaphor® Ointment
Aloe Vera gel
Rādx™ Radiation Therapy (Lotion)
Rādx™ Moisture Therapy (Lotion)
Rādx™ Lip Ice
Jergens® pink all purpose face cream

Misc Items:
Grocery Store gift cards
Smoothie and milkshake store gift cards
Soft Baby Toothbrushes
Water Pick

Prescription items for Oral Care that were mentioned frequently are Magic Mouthwash, Costanzi's Solution, CML Suspension and MuGard. Ask your doctor about these items.

DISCLAIMER!
The information provided herein is intended as a
suggestion to make this time easier for the patient and should not be substituted for sound individual advice from your doctor or medical professional.

Hopefully this information will be helpful for you during your treatment and recovery.

John P.

Comments

  • Hal61
    Hal61 Member Posts: 655
    Thanks
    Hi John P,
    You've created a good start list here, thanks for your effort. We all wish your mom the best in her recovery. I'm sure she values your support and love.

    Hal
  • Pam M
    Pam M Member Posts: 2,196
    Thank You
    It's very kind of you to share the info you've gathered with us.
  • Pam M
    Pam M Member Posts: 2,196
    Thank You
    It's very kind of you to share the info you've gathered with us.
  • davidgskinner
    davidgskinner Member Posts: 81
    Great Job
    A great eagle project that will do real good.
  • lady4darknight
    lady4darknight Member Posts: 90 Member

    Great Job
    A great eagle project that will do real good.

    Excellent Work
    Your Mom must be really proud of you. This list is great and for someone like me who is just going thru the first round of treatment, the list will come in handy. Am going to copy it and carry it with me. Thank you so very much.
    Debbie
  • CTX
    CTX Member Posts: 4

    Excellent Work
    Your Mom must be really proud of you. This list is great and for someone like me who is just going thru the first round of treatment, the list will come in handy. Am going to copy it and carry it with me. Thank you so very much.
    Debbie

    Five years and still kicking !

    to everyone, especially those who answered the survey.  

    I'm his mom and yes I'm proud of him.   I have kept his brochure online at this address .  

    http://giggleboxstudios.net/johnpurdy/headAndNeckCancer.pdf

    I have been asked to provide it on numerous occasions over the last few years.  It continues to serve others!    One treatment center I've heard uses it and gives out sample bags to their head/neck patients    As a result of his Eagle project brochure he held a drive and we donated 75 overflowing bags to patients in 2010!  Your survey answers COUNTED! 

    My Good news news is that in December I am five years cancer free!  Tongue still hurts, saliva is mostly back, enjoy most foods but it us definitely a new normal.   Some tastes have never come back ! But I will take it, I am alive and well and here to complain about it!

     

     

  • Hondo
    Hondo Member Posts: 6,636 Member
    CTX said:

    Five years and still kicking !

    to everyone, especially those who answered the survey.  

    I'm his mom and yes I'm proud of him.   I have kept his brochure online at this address .  

    http://giggleboxstudios.net/johnpurdy/headAndNeckCancer.pdf

    I have been asked to provide it on numerous occasions over the last few years.  It continues to serve others!    One treatment center I've heard uses it and gives out sample bags to their head/neck patients    As a result of his Eagle project brochure he held a drive and we donated 75 overflowing bags to patients in 2010!  Your survey answers COUNTED! 

    My Good news news is that in December I am five years cancer free!  Tongue still hurts, saliva is mostly back, enjoy most foods but it us definitely a new normal.   Some tastes have never come back ! But I will take it, I am alive and well and here to complain about it!

     

     

    Hi CTX

    Glad to hear the good news and glad you are still NED.  There is nothing better than helping someone else in our condition to make their life a little easier along the way.   

    Tim Hondo

  • Kritter
    Kritter Member Posts: 147
    The list

    You were truly blessed to have such a loving and awesome son. I am just starting my cancer journey and this list will be printed and carried with me as I go down that twisting long road. I hope all of the ones going through this have such a caring person/persons to get them through this as well. I know I do. I also know it is just as hard on them as it is for us. As I have been a caregiver as well. 

    Prayers and hugs !

    Kritter 

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    CTX said:

    Five years and still kicking !

    to everyone, especially those who answered the survey.  

    I'm his mom and yes I'm proud of him.   I have kept his brochure online at this address .  

    http://giggleboxstudios.net/johnpurdy/headAndNeckCancer.pdf

    I have been asked to provide it on numerous occasions over the last few years.  It continues to serve others!    One treatment center I've heard uses it and gives out sample bags to their head/neck patients    As a result of his Eagle project brochure he held a drive and we donated 75 overflowing bags to patients in 2010!  Your survey answers COUNTED! 

    My Good news news is that in December I am five years cancer free!  Tongue still hurts, saliva is mostly back, enjoy most foods but it us definitely a new normal.   Some tastes have never come back ! But I will take it, I am alive and well and here to complain about it!

     

     

    wow, 5 years, you are at the

    wow, 5 years, you are at the "cured" anniversary!!  i'm definitely doing the happy dance, over and over again for you.  Glad to hear the survey has done so much good.  congrats to you and to your son.

    God bless you,

    dj