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Chefdaddy, please post so we know you're ok, please

debbiejeanne's picture
debbiejeanne
Posts: 2384
Joined: Jan 2010

Mike, I know you are still very tired but we haven't heard anything on you in some time and we are extremely worried. If you are able, please just post "OK" so we know that you're still getting on and hopefully that you're doing ok.
God bless you friend!!
debbie

Fire34
Posts: 352
Joined: Feb 2010

Mike
Here goes another hope & prayer that you are ok. Always wondering how you are doing. Or at least let Hondo know so he can pass things along. Love & Prayers
Dave

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I will try and call or text him tomorrow. He was fine as of Monday.

debbiejeanne's picture
debbiejeanne
Posts: 2384
Joined: Jan 2010

thank you sweet!

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

where have you been Sweet?
has anyone heard from you?

K

debbiejeanne's picture
debbiejeanne
Posts: 2384
Joined: Jan 2010

Sweet, have you heard from Mike? This is really scary, it seems like it has been more than a month since we've heard from him. I would really appreciate hearing something on him. Thank you in advance.
God bless you, Sweet.
debbie

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

here you go Debbie, but Im still wondering about sweet....

This is Mikes post:

Hello everyone,

I haven't been able to be on here as I have been getting weaker and have dropped even more weight. To date I have lost over 90lbs. I cannot stand up without feeling faint. I think part of that is a low blood pressure.

I now realize how careless they were when they radiated my neck and in the process severely affected my heart rhythm, stopped the function of my stomach digestion and the nerve/muscle functions of my intestines.

I'm nauseated most of the time now and not tolerating the shake drinks that they supply me with. I have become more lactose intolerant since all this began which has thrown a bigger wrench into the mechanism. My PEG has me doubled over most of the time when I try to walk, it bleeds a lot now and It's been infected a few times now. I finally got an appointment to have it removed. I haven't used it in a couple weeks for food as there is something wrong with it. I think there is a break between my stomach and the chest wall.

I began creating my own protein weight gain shakes a few weeks ago, but now I'm having
difficulties in tolerating them as well. I'm not able to get in enough calories or proteins a day to gain or even maintain weight. It's not going to good right now.

The good news!
1. Today I was able to get three finely chopped up soft poached eggs down for the first
time!
2. After several hospital screw-ups I'm finally scheduled to get dentures which will
hopefully help me in getting some food in. The Oral surgeons decided to not do surgery
to remove the exposed jaw bones throughout my mouth as they are afraid I won't heal very
well with my current depleted immune condition. They told me that the denturist they
referred my to is very good and can accommodate all the exposed sharp bones while making
the dentures....I hope so!
3. The kids are doing great and we have all been called to testify before a Grand Jury
against the SOB that abused them both. I'm just worried about me getting them there in
my current condition as it is a couple hour drive away.
4. My sons liver is still holding it's own and he is still doing well since getting off the
chemo back in April. If he can just keep this up for another 1.5 years he will get the
liver transplant.
5. I don't remember if I informed everyone but after my ex moved next door to us defying a
no-contact court order and began stalking all of us, forcing us to move during all this
medical crap, the judge was very ticked and he denied her any future contact.
Child Protective Services made a special trip out to reassure my son that if anything
ever happened to me that they would step in and take custody of him and that he would
never have to worry about seeing her gain. My daughter turned 18 so she doesn't have to
worry about it. She doesn't want any contact with her.

I'm praying that I can get stronger very soon as the Make-A-Wish Foundation is planning to send my son (and us) to Disneyland in a few more months. He is very excited to go there for the first time, as well as my daughter. I don't want to disappoint them.

To all of you, my great supporters and my strength through your prayers on our behalf....thank you!

Your friend

Mike

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Double post

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hi all. I finally got a hold of Mike today. He said that he wiped out all his texts and did not have my number to get back to me. He sounded good and the kids sound good too. He basically updated me with what was said above. He has his peg out and should get his teeth soon.

I have been getting off my fentanyl patch and man that was some nasty withdrawal. I have been patch free for two weeks. I didn't realize how much pain that patch was masking in my neck from the dissection. I also lost weight and was down to ninety one pounds. Still have peg still have mouth pain. Still can't eat. Blah blah blah. I am sick of it. Which is why I don't post much. Nothing new to add and don't want to scare the newbies. Wondering if my tongue will ever feel like it's not scalded. Hope u guys are all doing well.

Sweet

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