Jun 30, 2010 - 8:40 pm
and it wasn't bad at all. Here's the rundown. Little communication issue, got there two hours too early because they had scheduled labs prior to infusion. I had lab last Wednesday after the Med/Onc appointment so that I did not have to come early today. Apparently the right hand didn't tell the left hand so...two hours to waste. My friend Carol had picked me up and taken me to treatment so we went downstairs to the hair salon and I tried on wigs for an hour or so and she bought a really cute black purse. I have to say it was entertaining and lightened my mood. To answer your question Sue, taxol absolutely causes total hair loss from what I have been told. We'll see. The infusion nurse said 2 weeks!!! EEEKKKK!!!! They paged us at 11:00 (1/2 hour early, that was good) and up to infusion we went. I was completely freaking about the IV since I chose to do this sans port. I have to say that my nurse Linda was an expert, absolutely painless. Didn't even use my lidocaine spray. Two Zofram pills for nausea and a bag of benedryl to counteract any allergic reaction. It kicked my behind (not sure if it was the combination OR the benedryl), but I was a mess!!! I was having a hard time concentrating, slurring my words, and could barely hold my eyes open. Then some steroids followed. About 12:00 we got started with the big medicine. Taxol first, slowly infused for the first 15 minutes to monitor for allergic reaction. Had none, kicked it up a notch! Took about 2 1/2 hours for it to finish. My husband got there about 1:30 to relieve Carol so she could go home and pack for the Daytona race this weekend. Next came the Carbo. About 1 1/2 hours for this and also no discomfort. They fed us a nice lunch, made sure we had all we wanted to drink. I did sleep off and on, this would have been easier if I had not had to go to the restroom about 8 times during the infusion. My bladder has never been the same since radiation, I think it must have shrank to the size of a walnut!!!. Got home about 4:30. Trying to drink, drink, drink to flush this stuff out. Had a nice dinner and all is good. Hoping that I don't hit a brick wall in the next couple of days. Have read that days 3 & 4 can be the worst. We'll see won't we? I go back on the 21st of July for the next infusion.
Thanks for all of your concerns and support. Love ya'll!!! Hope all of you are having wonderful days.
A special comment for Marilyne, stay strong :) Soon it will all be in the past!
Blessings to each of you today and everyday,