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Sleep erection

gkoper's picture
gkoper
Posts: 174
Joined: Apr 2009

13 month post surgery & 6 months post radiation I had my 1st sleep erection (woke me up) that is a normal part of the male biology. It is encouragement that the nerves are waking up. Atrophy has reduced the size as the pump was seldom used & pills gave undesirable side effects, but I now have hope for better things. So remember guys, it can take up to 2 years for the nerves to wake-up......but do the rehab if you can, to keep shrinkage to a minimum.
George

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

Thats great. There is always hope in every situation. More good things are sure to happen with your good attitude.

Ed

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

Still have not had one wake me up yet! You go George!

lion1
Posts: 239
Joined: May 2007

These are the Long Hard nights we all need-----it really is encouraging.

Lion1

mikey51
Posts: 17
Joined: Apr 2010

12 weeks in, I have joined the zero (PSA) club, and have regained 96% of my continence. I hope I am not being too greedy when I ask God to help me with the 3rd head of the radical prostatectomy beast. I am so happy for you and thank you for reminding us behind you in the progress that we still have hopes for that to come back as well.

Congrats! I lift a cold one to your success!

Mikey

mrshisname's picture
mrshisname
Posts: 186
Joined: Feb 2010

Mikey, my hubby is 9 weeks post DaVinci and is almost fully continent, but not much going on in the woody department. We know it will take time but he is frustrated. The ED drugs don't seem to do much. Guess we will continue the rehab and keep hangin in there! (no pun intended)

chitown
Posts: 90
Joined: Mar 2010

Yup..12-18 months is I believe for the nerves to fully wake up.
I understand from my surgeon the use of pump after 6 weeks, however disliked, is key to recovery. I am 2 week post surgery and plan to use it without complaining. I woke up on the 10 night after surgery with a painfully erect penis that subsided quickly. I have had couple of similar experience after that so am hoping this to go weel.

Good luck with the recovery

marteau
Posts: 27
Joined: Feb 2009

anything besides the pump? how often did you (do you) use the pump?

thanks

YerBlues
Posts: 5
Joined: Apr 2010

I got a pump about 2 months ago, 7 month post DaVinc. Urologist also prescribed levitra (straight after surgery) which gave me migraine for the first time in my life so it was stopped after about 2 months. Recently given a 4 dose trial of viagra, no migraine but no action either!

I try to use the pump 2 - 3 times a week at least.
So far not a peep from the woodsman, but we live in hope.

I'd like to hear others experiences with the pump and whatever else.

All the best.
YB

griff 1
Posts: 114
Joined: Jun 2010

does anybody know if your insurance will pay for the pump or is it up to us? cialis for me and nothing although its been only a month and 5 days since my surgery. thanks and goodluck griff

142
Posts: 169
Joined: Dec 2009

I have a claim in now - it is not as easy as one might hope.
Got the Rx and an explanation letter from the doc explaining that it was not recreational.
Found the product information.
Tried to find an in-network supplier, but could not, so they wanted to cover it as out of network (i.e. yet another big deductible). Got an appeal on that through, since the local in-network "medical appliance" folks should have carried it under the insurance company policies.
Still waiting on a final resolution (i.e have not seen the check yet, but there is still hope).
It has been a three month process.

Just get the right code numbers - the insurance had a list that are covered, but the numbers were not equivalent to what was in the various manufacturer publicity, so had to make a lot of calls.

On the other hand, they only pay for 8 cialis tabs a month, regardless of strength, so I have to get the 20mg and cut them up. Tried appealing that, but failed miserably.

142
Posts: 169
Joined: Dec 2009

Just a follow-up.
Today they posted that my claim was out-of-network, so hits the huge deductible I did not meet - have been good about staying in-network for everything.

Got on the phone with them, with the exception letter in hand. It took about a half hour, but with all the proper paperwork in hand, and a couple of transfers to supervisors, they re-evaluated it, and changed it to in-network (i.e. they paid all but the shipping, since the in-network deductible was met early in the year).

The lesson is - keep copies of everything, with dates and times and names of people you talked to, and have them at hand when you call in.

Come to think of it, that is the standard advice for anything insurance-related.

Today, I win. Tomorrow, well, I guess we'll see tomorrow.

Hoosierdaddy's picture
Hoosierdaddy
Posts: 16
Joined: Mar 2010

Finally had an orgasm from sexual intercourse last night, with Viagra, exactly 7 months post-Davinci. (I am 55 and fully sexual pre-surgery) My surgeon was one of those "don't push it--will happen when it happpens;" and bottom-line he was right. The erection was not rock-hard, but enough to get it done. No erections without viagra, but for the past 5 months masturbation got me thick enough to have a good orgasm; enough to keep my hope up for an eventual full sexual recovery. No vacuum pump; my Dr. said get one if you like but he thinks they're worthless, and I followed his advice. BTW sex felt really good but not quite "the same" as before--the pre-surgery orgasmic squirt felt good and is now missing. Also spontaneity is a thing of the past. I miss simple everyday things like morning erections and rolling the wife on a Sunday morning, or an erection when I watch her prancing around in her panties before bedtime--nothing usable without Viagra. But with gradual positive progression, there is hope.

lion1
Posts: 239
Joined: May 2007

Congrats on your progress!

That is a true blue assessment of what many of us have gone through or are going through. I think you captured it in a nutshell--no pun intended. I miss those morning erections even after 4 years, I miss that spontaniety most! For me Cialis has helped and yes through a lot of thought and focus I get a good erection with or without Cialis. But, nothing is normal as before my LRP in 2006. I do believe that my incontinence is a major interference in my Erections. Seems like it maybe better to standup during sex---sometimes on my back is better. I am thankful for the erections and continue to fight the challenges.

Lion1

shane59's picture
shane59
Posts: 86
Joined: Jan 2010

almost 8 months post surgery tried many tablets calais seemed the best for me still some side effects. But has helped the erectile function even 2 days later still getting good erections with help from my good wife its getting mentally excited as well it all helps good luck guys I didn,t think life could be so good again thanks Shane59

JR1949
Posts: 230
Joined: Jun 2009

Wish I could say the same. I am almost 17 months past radical prostatectomy. My uro doesn't believe in therapy. I have been taking Cialis three weeks now and still no woody, just slightly larger and slightly firm. Thank goodness my wife is understanding. As she said, we have been married 36 years and had a good sex life 35 of those years so it won't bother her if we never have sexual relations again. As she said at least I am still alive. I do count my blessings that she is my wife and life companion! :-)

I see from some of the postings on this network that there may still be hope in the next year or two.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

JR, I am gobsmacked by your urologist who doesn't beleive in therapy. He's supposed to treat the whole patient, not just the disease. I know doctors are a personal choice and you must be happy with him for other attributes but there are plenty of urologists out there who are gifted at treating the disease AND the side effects of their handiwork. No therapy? Get someone who can help you. Your wife will appreciate it too. Life is too short not to not look forward to plenty of intimacy going forward. Why give up on that now?

JR1949
Posts: 230
Joined: Jun 2009

Good advice, thank you. I had considered seeking another opinion regarding the incontinence but that problem is getting better now. I was trying the Cialis to see if it would help knowing that I have to wait until incontinence is cured. Not good when you dribble on the bed trying to be intimate...just ruins the mood.

This PC monster has really caused some life altering changes as my uro said it would.
Once I get rid of the incontinence I think I shall seek a second opinion with another uro.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Great plan, JR. We're way, way too young to give up on all the good stuff in life now. Hope the incontinence continues to improve. I can only imagine (from reading Trew's hotflash Pad Diaries) what a major quality of life issue that is for so many of us fighting PCa.

Best to you.

shane59's picture
shane59
Posts: 86
Joined: Jan 2010

If the dribbles are all that upsets the mood try the shower its not to bad and could inspire the mood ,anyway think possitive your also going to save on water ,best of luck we should just be gratefull we are doing as well as we are . take care Shane

Trew
Posts: 891
Joined: Jan 2010

I'm on my 2nd uro. Both hold different opinions about ED and its treatment, as far as I can tell, though I never saw the 1st uro again after surgery. My 2nd uro discussed some of the options used out there and why or why not he liked them or used them. So expect differring opinions out there on the treatment of ED.

GatorDad's picture
GatorDad
Posts: 6
Joined: Aug 2010

JR,

Get a new Uro. There are some real quacks out there, and it sounds like you got one... Therapy is a *must*.

cheers & beers,
Chris

JR1949
Posts: 230
Joined: Jun 2009

Thanks everybody for your advice. I intend to check out another Uro for second opinion. I gladly can report that incontinence is improving some over the last 2-3 weeks. I'm just thankful that I am able to wear my Hanes briefs with pads now and not the Depends diapers with pads. Those paper diapers really make you sweat down there.

Remember, Wag More, Bark Less

JR

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