Jun 25, 2010 - 6:14 pm
I'm new here and just wanted to introduce myself to the board.
I was diagnosed with Stage II renal cell carcinoma in June of 2000 at the age of 37, had a right radical nephrectomy (kidney, adrenal gland, lymph nodes) and so far everything seems to be 'okay' except that now I've got a few cysts on my left kidney and a new growth on my left adrenal gland that is scaring the crap out of me. My doctor assures me that benign adenomas of the adrenal gland are quite common but the fact that it continues to grow does not help much to allay my fears. It's still under 3.0 cm though.
At any rate, I will be going for my annual cancer checkup next month and will see if these new growths have gotten any larger. My current protocol is: an annual chest x-ray, complete kidney and liver panel, and an abdominal mri. In the past we were doing ct-scans until my doctor and I tallied them all up and realized that I have probably had way too many ct-scans for my own good (over a dozen so far) and we switched to mri's after that.
I have never seen an oncologist. My nephrologist has always handled my care and said that an oncology consult is unnecessary with regard to kidney cancer. Is this pretty common?
Also, what protocol do you all use for follow-up testing after radical nephrectomy? I'd be interested in hearing what kind of annual testing everyone else here is getting.
Thanks so much for reading this long post and for providing any information.