Well, I have been very busy as all of you would expect. Not only with all the Dr.s visits hospitals and comparisons. I read almost daily posts that I find here. There is so much info and heartfelt kindness and emotion. I read with great curiosity, fear, concern and tears.
I'm a 48 yo grown man and I feel like such a child. May I vent?..We have the "James cancer research center" here in Columbus ohio. been there. they wanted me in a clinical trial. for Erbitux. really made me feel like an experiment instead of a person. Been to the Zangmeister center for cancer treatment. another high dollar facility. Good place they say. more proponents of uncertainty. At least medically speaking. I have settled with my wife that I will go to Drs West hospital and use their team. not very good @ diagnosis or the many abbreviations that go with all of this but here is mine. squamous cell tonsil left primary T1-2.
Tonsillectomy. Radical neck dissection left. T1N2BMo/4A. Waiting on hpv results. Port in yesterday. Peg next week.
my chosen team is now saying that I am in shape enough to handle an aggressive treatment to consist of 7 wks. of cesplatin and Taxol combined with rad. dispensed from an "IMRT". the nodes removed were low in my neck so I guess the voice may leave for a while too.
So many of you have done these things already and make them sound like a no brainer. I don't mind telling you I am afraid of what the future holds. I suppose it's a lot better than the alternative! Thanks for helping me exhale!