CSN Login
Members Online: 11

Supplies?

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

I am 6 weeks until Davinci and I would like to get a start on stocking up on the supplies I will need during recovery. I am the kind who likes everything taken care of ahead of time. Can anyone please give me some suggestions of what I should get and best places (meaning cheapest)to buy them. Any help would be greatly appreciated. I need to get shopping to kill some time waiting for the surgery. The wait is kill'in me.

Thanks, Ed

steckley
Posts: 100
Joined: Aug 2009

Ed,

The healingwell site has a pretty good run down on what you might want to consider and why:

http://www.healingwell.com/community/default.aspx?f=35&m=1717641

lshick's picture
lshick
Posts: 63
Joined: Apr 2009

Steckley's post, and the healingwell list, are right on. In terms of laying in supplies, I would emphasize just a few points:

You will be on a "clear" diet for several days. Jello, bananas, consomme, cup 'a noodles, stuff like that. Buy lots. Comfort food.

Get some loose, baggy jogging pants or similar. When you're out walking (you should do a LOT of walking) they'll hide the leg bag of your catheter. In my case, I ran the hose of the catheter down the leg of the pants, out the cuff, and up into a shopping bag to the collection bag. Relatively discreet.

When you're not walking (did I say to do LOTs of walking?) you won't feel like much physical activity. Get books, magazines, whatever you do for sedentary enjoyment.

My catheter was secured to my thigh by a butterfly bandage specifically designed to hold a catheter tube. Find out what they'll use. My nurse said that the one bandage would do until the catheter was removed. Not true. Get 3 or 4. You may need to find a medical supply house--they're specialty items.

Buy an bag of Depends, or similar. I was fortunate that I never needed them, but better to have and not need, than vice versa.

Good luck.

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

thanks for the link. Yes, the website is very useful. There is so much flying around in my head I think I need to start a journal and take notes. I am typically a list maker anyhow.

BRONX52
Posts: 156
Joined: Apr 2010

WHILE I WAS IN PHYSICAL THERAPY PRIOR TO SURGERY THE THERAPIST GAVE ME A FEW POINTERS. SHE TOLD ME THAT WALMART HAD A WIDE SELECTION OF MENS PADS AND BRIEFS BUT DON'T GO OUT AND BUY IT BY THE CASE. SHE ADVISED BUYING JUST ONE PACKAGE BECAUSE ITS 50/50 IF YOU'LL NEED THEM ALL. SOME GUYS ARE CONTINENT WHEN THE CATH COMES OUT AND OTHERS ARE INCONTINENT FOR QUITE SOME TIME AFTERWARDS. AND A WHOLE BUNCH OF GUYS FALL SOMEWHERE IN BETWEEN. ALSO, AS SOME HAVE MENTIONED, LOOSE GYM SHORTS MAKE IT A LOT EASIER TO MOVE AROUND WITH A CATHETER IN PLACE.BABY WIPES COME IN HANDY TO KEEP THE CATHETER TUBING BY THE PENIS CLEAN AND MOIST. YOU'LL NEED SOME SORT OF LUBRICANT TO PREVENT THE TUBING FROM CAUSING CHAFING AND IRRITATION. STOOL SOFTENER WILL HELP WITH YOUR BOWEL MOVEMENTS AND IS REALLY HELPFUL THE FIRST WEEK AFTER SURGERY. IF I THINK OF ANY OTHER THINGS I'LL LET YOU KNOW---DAN

lewvino's picture
lewvino
Posts: 1004
Joined: May 2009

Bronx makes a good point. I bought two boxes of pads. Out of that over the past 10 months I used 1 pad!

The lube is critical to have in my opinion...USE IT LIBERALY.

Larry

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

Thanks to all for the info. I just dont want everything to get out of control and worry about the little things after surgery. I need to concentrate on recovery so the more prepared the better. Usually time goes by very quickly but this wait is dragging by very slowly. I am doing my best to keep myself occupied.

Ed

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Ed, just saw this abstract posted on urotoday.com about the importance of physical activity and conditioning before surgery and thought of your ongoing checklist for things to do as you prepare for surgery. Since you have some weeks before your procedure, you may wish to up your workout regimen before going to the hospital. Best of luck with your surgery.

Wednesday, 23 June 2010
Department of Surgical Oncology, Princess Margaret Hospital, Toronto, ON.

There are significant post-surgical reductions in health-related quality of life (HRQOL) in prostate cancer (PCa) patients undergoing radical prostatectomy (RP). Physical activity (PA) interventions have improved treatment outcomes for PCa patients undergoing radiation and hormone therapy, but PA effects have not previously been examined in the RP setting. This study examined the relationship between preoperative PA levels and postoperative HRQOL outcomes in PCa patients treated with RP.

Sixty patients were interviewed regarding lifetime PA and completed preoperative (2 weeks prior to surgery) and postoperative (4 weeks after surgery) HRQOL questionnaires. Aerobic fitness testing was conducted on a subsample of 22 patients.

Higher levels of total past-year PA and occupational PA significantly correlated with lesser HRQOL declines from presurgery to 4 weeks post-surgery (Beta = -0.364, p = 0.037 and Beta = -0.243, p = 0.089, respectively) in models adjusted for age, postoperative questionnaire completion date, Gleason score and education. Past-year occupational PA was highly positively correlated with past-year total PA (r = 0.785, p < 0.001). Lifetime total PA was correlated with estimated VO(2) max (r = 0.486, p = 0.026) in the 22 patients who were aerobically tested. Lifetime and past-year PA volumes were not correlated with waist circumference or body mass index.

Declines in HRQOL after RP may be reduced in patients with higher preoperative levels of self-reported PA. These findings require further study with larger samples to confirm results. If confirmed, findings suggest exercise preoperatively may improve HRQOL outcomes after RP.

Written by:
Mina DS, Matthew AG, Trachtenberg J, Tomlinson G, Guglietti CL, Alibhai SM, Ritvo P. Are you the author?

Reference: Can Urol Assoc J. 2010 Jun;4(3):180-6.

142
Posts: 169
Joined: Dec 2009

I've gone through literally dozens of mega-packs of pants & pads, so don't use me for a recovery model!

Go online to depends.com and Tena.com. Both of them will send some variety of sample pack, and will let you print a coupon for store use. Also, cheap is not where you want to go. Walgreens' Male guards are the best for absorbency, and often on sale. Good buy. I do not like their house brand pant - Depends is much better, at least for me.

muttsrule
Posts: 52
Joined: Sep 2009

Hi. I second (or third) lewvino and Bronx: Hope for the best and shop small to begin with. I ran through about a dozen pads and never opened the bulky bag of diapers that now clutters the closet. As for finding floppy pants, don't forget Value Village or whatever mega-thrift shop is your local equivalent. Goodwill is everywhere, of course. I got four handy and still useful pants at VV for a total of about $10. They look like they're made from 45rpm records, but they were comfortable, easy to deal with, and remain just the thing for slobbing around the house. (I don't know whether VV is a nationwide thing, or just a Seattle thing.) Persevere! John in Seattle

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

John, I hear you on the pants. Baggy sleep pants is my atire of choice around the house as soon as I get home from work everyday so I have plenty in stock. I am also originally from Washington but have been living in Illinois that past 5 years. I miss my Washington weather. It is HOT here.

Thanks,
Ed

ezra99
Posts: 18
Joined: May 2010

Ed,

I got a pair of breakaway basketball pants and it was really handy while I had the cath in as you can run the tube out and snap up the sides. I usually used the big bag and only used the leg bag about twice that week and the third time to go to get cath out. Some guys apparently don't have a problem with changing from the leg bag to the big bag but I thought it was kind of a pain. I used a cloth shopping bag to slip the cath bag into when I was outside so my neighbors didn't have to look at my bag.

Also, I got 3 five gallon buckets from lumber yard. One by the bed, one by my recliner and one by my desk chair. Made it handy place to hang the bag. Easier then moving one bucket around.

That first week is kind of a pain but seems to go by fast. I wasn't very "peppy" for the first 4 or 5 days so would be up and around for 2-3 hours and then nap for an hour or so. Walking seemed to help with pain management. Once the cath is out I felt "free". Lots of guys say they were dry almost immediately. It took me a lot longer but when I was wetting myself I reminded myself it was still better then having the cath.

Trew
Posts: 891
Joined: Jan 2010

:) Its like getting ready for a baby.

I had forgotten a lotof this stuff, like the number of sweat pants Icould use in a day, especially after the cath came out. Nice to have a plastic pad to sit on around the house so leaking doens't ruin a favorite chair.

chitown
Posts: 90
Joined: Mar 2010

here is the list that i got

1. Secura cleaner - best thing i got for catheter care - spray it on wipe off with gauze
2. CVS Bactricin with 4% lidocaine
3. rubbing alchol wipes
Rest the docs list provides.
4. Hand batecterial wipe
5. Large size long cotton short from Old Navy and a large shirt - i am medium size so i bought one size up

As far as pads I am using my wife's pad one a day after the catheter came out 2 days ago

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

I appreciate the response, but my biggest problem right now since I am still 6 weeks until sugery is the anxiety of waaiting. I know the best thing is just live life as usual and take it as it comes but I am having a big problem with that right now. I am glad it is friday so I can get away from this computer...no offense but I cant get away from the forums. I do not look at computers during the weekend but I do have a desk job so I am pretty much consumed by it. Sorry to sound like I am whinning. I just need to get this journey started so the unknown becomes clearer to me. Thanks for listening.

Ed

JR1949
Posts: 230
Joined: Jun 2009

Ed,
One thing that helped me was Vaseline. You can get the store's generic, they are all petroleum jelly. The tip of my penis got so sore around the catheter and the petroleum jelly helped end the pain. I definitely recommemd the loose jocking/athletic pants one size larger and larger tee shirt. I use the Depends diapers and Poise pads.
A suggestion, keep the receipt on diaper and pads so you can return if you are fortunate enough to not need after cath removal.

Do what you said, take life as usual and take it as it comes. Good luck to you on your journey and feel free to visit these discussion boards. We'll all help if we can or if nothing else you can just "vent" your feelings here.

JR

NM
Posts: 214
Joined: Jul 2009

Hi my surgery was in sept. of 09. 1 thing i needed (30)mile ride was a pillow for the ride home. I also lifted weights religiously and walked before and especially after surgery.

I had pads and diapers which I luckily didnt need.
I also ate and drank whatever I wanted after going home/
My doc gave me surgical lube for the catheter and I didnt have many issues except discomfort.

Hope this helps and Good luck on your surgery and worrying wont help but we all do it.

Nick

shane59's picture
shane59
Posts: 86
Joined: Jan 2010

before your surgery you may have to take some bowel prep to clean you out before the surgery, makes more room in your bellie for the surgeon to do his magic. If you have to take bowel prep drink its normally about 2 litres and tastes fowl add some sort of diet sweatener lemon or such . as this goes through you quickly you would also be wise to use some vasoline on your bottom to alleviate any rash plus baby wipes as its like diahrea . yep the large shorts or track pants . and yes you will need a bunch of pads just in case . also I reckomend a protector sheet under your side of the bed at night just incase of leakage somtimes the catheter dribbles a bit at night.You can get blue pads also to sit on in the car or couch better safe then sorry. some people recomend you start doing the pelvic floor muscle excercises before the op they say this helps early recovery . well thats enough from me best wishes and good luck shane59

knotreel
Posts: 2
Joined: Jul 2010

OK, you are going home with a catheter, for that I sugest some boxer short style underware (or none) and at least one pair of "catheter pants", these would be some type of loosly fitting elastic waist strechy gym pants with zippers in the calf area. You will a catherter holder (an elastic velco band that fits around your thigh) the hospital may provide but get one to be sure. The hospital gave me a really cheezy leg bag that was connected directly to the cath. It rode in the bend of my knee, not good! So, get a good leg bag like a holister that uses the adjustable elastic straps and a latex extension tube you can wear the bag around your calf. I used neosporin to lube up the catheter right at the tip of the penis, don't worry you will know where you need to put it. I found it helpful to wash the catheter in the area where it exits the penis using some warm slightly soapy water then lube it with the neosporin. The washing was important for me because there was always a bit or crusty build up on the catheter tube that irritated the most sensitive part.
Next, after catheter removal, you should start off with some diapers like depends for men and some very absorbant pads, poise long maximum absorbency are good to start, I wore both at first. Get the biggest most absorbant you can find the start, hopefully these jumbos will not be needed long.
For catheter stuff (leg bag, straps, extension tubes, cath holder, I bought mine at Allegro Medical, an on line source for all sorts of stuff including a good assortment of urniary supplies. Good luck with your surgery and i hope you won't be needing the stuff that long.
We all know how you feel, the waiting, not too fun. so check out Allegro. I hope you will not need to become a regular customer of theirs.

griff 1
Posts: 114
Joined: Jun 2010

gatorade dude and of course family. ha ha griff

shubbysr's picture
shubbysr
Posts: 87
Joined: Jun 2009

I remember about 9 months ago, my brother was post Davinci and I called him. He was sitting on the dock with a 6 pack of beer and a 6 pack of pads. My first thought was why not use the lake?
Good luck!

shubbysr

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network