treatment or emotional stress?

aysemari
aysemari Member Posts: 1,596 Member
edited March 2014 in Breast Cancer #1
Hi,

I have to honestly say that the emotional distress is harder for me than the
treatment itself.

I find myself questioning where I am at in life so far. And it really distresses me
that this may be it. I KNOW I shouldn't think that way but it creeps up.

I feel pressured that I need to make a change. And everyone around me seems
to expect that I will miraculously figure out what life is all about now and I
DON'T know what to do differently. I keep thinking about it since I am not yet
where I wanted to be in my life.

Everyone always gives me the " Be strong" speech", and I know they mean well.
But what ended up happening is that I now sport a fake smile and am hesitant
to open up and talk about my feeling because I feel like I am letting them down.

What was harder for you, treatment or emotional stress?

Any suggestions to cope with this are welcome.

Ayse
«1

Comments

  • Sally5
    Sally5 Member Posts: 87
    Wow. I know exactly how you
    Wow. I know exactly how you feel. Before surgery, I let the stress get to me. I wanted to get my ducks in a row. At home and at work before surgery. It was like my world turned upside down.

    I was just diagnosed end of March and had surgery in May. (At 7 weeks today) Two days after I was diagnosed it was such a beautiful sunny day. I realized we let the stress of every day get in the way of seeing the good.

    So..... breathe. Stop and listen to the birds chirp. It sounds silly, but stress.. isn't going to help; no matter what the issue is.

    I am giving (and taking) this advice. I am not sure I have all the answers, but I can listen.
    I have great family and friends but most can NOT relate. You are not alone. We can relate.

    Take care
  • chenheart
    chenheart Member Posts: 5,159
    The phyical was hard enough,
    The phyical was hard enough, but for me, the emotional was worse. Sometimes, I don't know who I am trying to concince that "everything's gonna be ok"...myself of those who I am putting on the brave face for. Maybe both, for different reasons. And as women, we tend to nurture and soothe and pretend for the sake of those around us. It isn't always to our benefit.

    I posted about the Emotional Rollercoaster we find ourselves on; if I may say so, I feel its a pretty apt description ( along with the Welcome To Hogwarts post) about just how we feel finding oursleves here of all places. If you do BC search for Emotional Rollercoaster, it should pop up for you.

    You are in good company here, as you already know! Physical and emotional trainwrecks half of the time, but good company nonetheless! LOL

    Hugs,
    Chen♥
  • Miss Murphy
    Miss Murphy Member Posts: 302
    chenheart said:

    The phyical was hard enough,
    The phyical was hard enough, but for me, the emotional was worse. Sometimes, I don't know who I am trying to concince that "everything's gonna be ok"...myself of those who I am putting on the brave face for. Maybe both, for different reasons. And as women, we tend to nurture and soothe and pretend for the sake of those around us. It isn't always to our benefit.

    I posted about the Emotional Rollercoaster we find ourselves on; if I may say so, I feel its a pretty apt description ( along with the Welcome To Hogwarts post) about just how we feel finding oursleves here of all places. If you do BC search for Emotional Rollercoaster, it should pop up for you.

    You are in good company here, as you already know! Physical and emotional trainwrecks half of the time, but good company nonetheless! LOL

    Hugs,
    Chen♥

    Amen!
    Chen, you hit the nail right on the head! I too feel the emotional part of being dx with bc is far worse than the treatment. Of course I didn't go the chemo route but I did do the masectomy and have had problems with the various AI drugs and now the Tamoxifen (I'm two years out from my dx). But as tough as that has been, it's just the daily grind of trying to be positive for me mostly as I have been so positive for my family that they think everything is over and done with and all is well. I think we all try and not worry that the cancer will come back but it's always there in the back of our minds and every little random ache and pain sets us wondering. I would think that at times half of us on this board are physical trainwrecks due to treatment issues and half are emotional wrecks due to the what ifs. It's a great comfort to know that we can share our feelings and find others who understand.

    Hugs, Sally
  • aysemari
    aysemari Member Posts: 1,596 Member
    Sally5 said:

    Wow. I know exactly how you
    Wow. I know exactly how you feel. Before surgery, I let the stress get to me. I wanted to get my ducks in a row. At home and at work before surgery. It was like my world turned upside down.

    I was just diagnosed end of March and had surgery in May. (At 7 weeks today) Two days after I was diagnosed it was such a beautiful sunny day. I realized we let the stress of every day get in the way of seeing the good.

    So..... breathe. Stop and listen to the birds chirp. It sounds silly, but stress.. isn't going to help; no matter what the issue is.

    I am giving (and taking) this advice. I am not sure I have all the answers, but I can listen.
    I have great family and friends but most can NOT relate. You are not alone. We can relate.

    Take care

    Thanks Sally5
    for relating. I sometimes feel overwhelmed and it is nice to know
    that I am not the only one. And who else to better understand me
    than you?

    I remember the day I got diagnosed was a nice day too and I was
    in awe that it continued to be a nice day without me... now THAT'S silly.

    Ayse
  • aysemari
    aysemari Member Posts: 1,596 Member
    chenheart said:

    The phyical was hard enough,
    The phyical was hard enough, but for me, the emotional was worse. Sometimes, I don't know who I am trying to concince that "everything's gonna be ok"...myself of those who I am putting on the brave face for. Maybe both, for different reasons. And as women, we tend to nurture and soothe and pretend for the sake of those around us. It isn't always to our benefit.

    I posted about the Emotional Rollercoaster we find ourselves on; if I may say so, I feel its a pretty apt description ( along with the Welcome To Hogwarts post) about just how we feel finding oursleves here of all places. If you do BC search for Emotional Rollercoaster, it should pop up for you.

    You are in good company here, as you already know! Physical and emotional trainwrecks half of the time, but good company nonetheless! LOL

    Hugs,
    Chen♥

    So that make us
    cancerous emo's. I read and loved and related reaaally well to welcome to Hogwarts!
    I will now go search for the roller coaster.

    You are right it is as you said, insisting that everything is going to be allright can be
    exhausting. It is a double edged sword in that smile and you and others around you will
    feel better, but inside... inside things are bubbling.

    What I really miss is the simplicity of my previous life, it was busy and crazy but I felt
    free. Now it's this surgery and that appointment. And my relations have gotten more
    complicated too. Sometimes I wish I would have never told anyone....

    I CAN'T wait till this is over.

    I hope your married life is treating you well Chen!

    Ayse
  • waffle8
    waffle8 Member Posts: 234
    aysemari said:

    So that make us
    cancerous emo's. I read and loved and related reaaally well to welcome to Hogwarts!
    I will now go search for the roller coaster.

    You are right it is as you said, insisting that everything is going to be allright can be
    exhausting. It is a double edged sword in that smile and you and others around you will
    feel better, but inside... inside things are bubbling.

    What I really miss is the simplicity of my previous life, it was busy and crazy but I felt
    free. Now it's this surgery and that appointment. And my relations have gotten more
    complicated too. Sometimes I wish I would have never told anyone....

    I CAN'T wait till this is over.

    I hope your married life is treating you well Chen!

    Ayse

    When people ask me how I am
    When people ask me how I am I say do you want my standard answer "fine" or do you want to know the truth.....This bc is life changing as you know.....Wishing you all the best...
    Blessing!!!
  • Chickadee1955
    Chickadee1955 Member Posts: 355 Member
    waffle8 said:

    When people ask me how I am
    When people ask me how I am I say do you want my standard answer "fine" or do you want to know the truth.....This bc is life changing as you know.....Wishing you all the best...
    Blessing!!!

    My younger daughter lives in
    My younger daughter lives in a different state. She is struggling with the fact that she is not here with me to help. She is a very emotional person and very attached to her Mom. I told her that at this time I needed to be totally selfish, so the best help would be to stay where she is so that I don't need to expend my energy in 'protecting her'. She can come visit me, but doesn't need to be here all the time. Over the phone it is easier to stay upbeat and to reassure that everything is okay. She totally understood, thank goodness, but all that to say Yes! its an emotional rollercoaster and we wives/moms have a really hard time letting our pain/needs surface in view of our loved ones.

    Fortunately I have a great husband to whom I can reveal myself. Early on I told him that as I was undergoing a BLM I would find it very disturbing if I saw him ogling other women. Not that he had a habit of doing so, but I wanted him to know how sensitive I anticipated being about the subject and expected him to be cognizant of that. He actually appreciated the fact I told him I would be hurt and angry if I felt I was being compared. He's the one I can always respond truthfully too when he asked how I am doing.
  • aysemari
    aysemari Member Posts: 1,596 Member

    My younger daughter lives in
    My younger daughter lives in a different state. She is struggling with the fact that she is not here with me to help. She is a very emotional person and very attached to her Mom. I told her that at this time I needed to be totally selfish, so the best help would be to stay where she is so that I don't need to expend my energy in 'protecting her'. She can come visit me, but doesn't need to be here all the time. Over the phone it is easier to stay upbeat and to reassure that everything is okay. She totally understood, thank goodness, but all that to say Yes! its an emotional rollercoaster and we wives/moms have a really hard time letting our pain/needs surface in view of our loved ones.

    Fortunately I have a great husband to whom I can reveal myself. Early on I told him that as I was undergoing a BLM I would find it very disturbing if I saw him ogling other women. Not that he had a habit of doing so, but I wanted him to know how sensitive I anticipated being about the subject and expected him to be cognizant of that. He actually appreciated the fact I told him I would be hurt and angry if I felt I was being compared. He's the one I can always respond truthfully too when he asked how I am doing.

    FINE
    Fine is unfortunately what most people want to hear I found.
    The rest makes them and therefore me uncomfortable.

    Chickadee, I did the same thing with my sister. She wanted to come out
    for my mastectomy but I cried and pleaded for days, for her not to.

    At times I find it easier, to face everything alone. Their comments and
    reactions bring one thing to my mind " have them eat cake"

    But you ladies know and understand and are my best resource
    and support.


    Ayse
  • Flakey_Flake
    Flakey_Flake Member Posts: 130
    Think of Yourself First
    Hello aysemari,

    I understand what you mean by being pressured that you need to make a change. It isn't uncommon for our loving friends to have expectations of us. But if you are going to make a change to your view of life, it should be because your view has actually changed - not because you are feeling pressured to do so.

    I think all of us have learned how to give the "fake smile" to someone because they are broaching a topic we don't want to deal with at the moment, and the "fake smile" will make them feel alright, and the confrontation is over. I think that is okay to do. The people you are "fake-smiling" to may be genuinely concerned, but some things are none of their business. You life-views are your business, and your business only. If you are comfortable opening up and confiding in the person, by all means - it would be great. But you have to think of yourself first to battle the beast. You will have others you can count on (particularily on this board) that will meet your feelings with understanding and compassion. We are not martyrs, we are mortals with a huge life-altering experience to deal with.

    I shouldn't be preaching. I do the same thing, more often than not. I don't make like I have the big answer to everything, but will often "make happy" when I may feel down. With me the funny part is that when I "make happy" I usually start to feel happy.

    I guess my bottom line is not to worry about what others are thinking - just worry about yourself and getting through this. It is very emotional, and we all need to express our emotions some way, some how. But it should always be a comfortable experience.

    Hope to read more posts from you. You must be extremely empathetic and compassionate. My prayers are with you. The greatest strength and advice I've found are a gift of God, through my Lord Jesus. I've explored alot of different things in my life, but there is nothing like faith in God.

    Sharon
  • chenheart
    chenheart Member Posts: 5,159
    aysemari said:

    FINE
    Fine is unfortunately what most people want to hear I found.
    The rest makes them and therefore me uncomfortable.

    Chickadee, I did the same thing with my sister. She wanted to come out
    for my mastectomy but I cried and pleaded for days, for her not to.

    At times I find it easier, to face everything alone. Their comments and
    reactions bring one thing to my mind " have them eat cake"

    But you ladies know and understand and are my best resource
    and support.


    Ayse

    My sister, who lives about
    My sister, who lives about 400 miles from me, wanted to know if I wanted her to drive down to go to my oncologist appointment tomorrow when I get the results of my PET scan and The Treatment Plan. I thanked her and also said no, that aside from Reggie ( who was with me the first time 7 years ago) I really feel more comfortable doing this alone.

    I am not sure if she understands this at all~ and I wonder if she had been available for my original diagnosis ( she wasn't) if I would have said yes. Something in me says I probably would have. This time, it isn't so much that I am stronger ~OMG I am NOT! I think it is just that it isn't quite the unknown anymore. If that makes any sense at all.

    Again, I am so glad we have one another! Thank you all for all that you do, and especially who you are. I am honored to know you...

    Hugs,
    Chen♥
  • lynn1950
    lynn1950 Member Posts: 2,570
    Hi Ayse - Which was harder?
    Hi Ayse - Which was harder? emotional distress: treatment....for me, emotional distress beat out treatment 10:1 . I know what you mean about the expectations of others, too. It's a bit of a trap, isn't it?

    Ah...coping - Try to take each day as it comes and remember to breath. That may sound funny, but a good breath can really help reduce one's stress level. I also use some meditation tapes that help take me to a better place when I am really upset. I began seeing a therapist at the end of treatment and also began taking antidepressants. Your cancer center may have a social worker/therapist who you can talk with about different strategies for coping.

    Of course, coming here to CSN is a great coping tool. It's definitely helped save my sanity! : )

    xoxoxox Lynn
  • aysemari
    aysemari Member Posts: 1,596 Member
    lynn1950 said:

    Hi Ayse - Which was harder?
    Hi Ayse - Which was harder? emotional distress: treatment....for me, emotional distress beat out treatment 10:1 . I know what you mean about the expectations of others, too. It's a bit of a trap, isn't it?

    Ah...coping - Try to take each day as it comes and remember to breath. That may sound funny, but a good breath can really help reduce one's stress level. I also use some meditation tapes that help take me to a better place when I am really upset. I began seeing a therapist at the end of treatment and also began taking antidepressants. Your cancer center may have a social worker/therapist who you can talk with about different strategies for coping.

    Of course, coming here to CSN is a great coping tool. It's definitely helped save my sanity! : )

    xoxoxox Lynn

    Lynn
    When I got diagnosed I was really focused on the treatment
    and got ready planning everything and gathering documents.

    The whole deal with people really took me by surprise. I was
    very open about my situation and expected the same. But
    instead calls turned to text messages and visits turned into
    emails and so on.

    I had not prepared myself for the people factor in other words!

    Ayse
  • mariam_11_09
    mariam_11_09 Member Posts: 691
    I hear you about about the

    I hear you about about the 'Be Strong' speech. I usually tell people that I want to be real, real about how I feel, real about the fears, the joys, the feeling of being lost, unsure, uncertain and that the so called 'positive' thinking attitude can undermine what is really here.

    I like to take one day at a time, today I have diarrhea, I feel a little anxious, my nose bleeds and am wondering how I am going to get everything done. If I let go of the wondering how to get everything done and live in this moment of typeing this message the anxiety dissapates. The diarrhea is still there as are the nose bleeds but that is alright.


    I have also been questioning where I am in life and how I have compromised my own needs for the sake of my daughter or the person I have been in a relationship with other the years. How I don't even know what I really want or where I want to be. And that all this alright. We don't have to have the answers or figure anything out, things will evolve in their own time and the best we can do for ourselves right now, is be right here for whatever we feel emotionally and physically.

    I have found Ekhart Tolle - The Power of Now to be a useful book to read. It challenges our way of thinking and being in the world and opens us up to something new to reflect upon.

    much love to you.
  • aysemari
    aysemari Member Posts: 1,596 Member

    I hear you about about the

    I hear you about about the 'Be Strong' speech. I usually tell people that I want to be real, real about how I feel, real about the fears, the joys, the feeling of being lost, unsure, uncertain and that the so called 'positive' thinking attitude can undermine what is really here.

    I like to take one day at a time, today I have diarrhea, I feel a little anxious, my nose bleeds and am wondering how I am going to get everything done. If I let go of the wondering how to get everything done and live in this moment of typeing this message the anxiety dissapates. The diarrhea is still there as are the nose bleeds but that is alright.


    I have also been questioning where I am in life and how I have compromised my own needs for the sake of my daughter or the person I have been in a relationship with other the years. How I don't even know what I really want or where I want to be. And that all this alright. We don't have to have the answers or figure anything out, things will evolve in their own time and the best we can do for ourselves right now, is be right here for whatever we feel emotionally and physically.

    I have found Ekhart Tolle - The Power of Now to be a useful book to read. It challenges our way of thinking and being in the world and opens us up to something new to reflect upon.

    much love to you.

    You took the words
    right out of mouths. That's what I always say I want to keep it real!

    In a way I feel like I have checked out from my previous life and am
    starting anew. Because the rules I once knew no longer apply.

    Ayse
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    aysemari said:

    Lynn
    When I got diagnosed I was really focused on the treatment
    and got ready planning everything and gathering documents.

    The whole deal with people really took me by surprise. I was
    very open about my situation and expected the same. But
    instead calls turned to text messages and visits turned into
    emails and so on.

    I had not prepared myself for the people factor in other words!

    Ayse

    So true
    I was so busy in treatment, like you getting documents together and keeping a calender of appointments that it was actually easier emotionally at that time.
    We had blinders on to fight the fight and kill this deadly beast! I found out very quickly that AFTER I was done with chemo, rads and operations that I was very sad and couldn't understand why.
    My Rad Dr. did warn me that this would happen, but at the time you don't believe it, I thought No way! As soon as I'm done I am going to celebrate!
    Wrong. The emotional roller coaster as so many of you have coined it, is soooo true.
    Thanks for a great post.
    Best of Luck,
    Wanda
  • aysemari
    aysemari Member Posts: 1,596 Member

    Think of Yourself First
    Hello aysemari,

    I understand what you mean by being pressured that you need to make a change. It isn't uncommon for our loving friends to have expectations of us. But if you are going to make a change to your view of life, it should be because your view has actually changed - not because you are feeling pressured to do so.

    I think all of us have learned how to give the "fake smile" to someone because they are broaching a topic we don't want to deal with at the moment, and the "fake smile" will make them feel alright, and the confrontation is over. I think that is okay to do. The people you are "fake-smiling" to may be genuinely concerned, but some things are none of their business. You life-views are your business, and your business only. If you are comfortable opening up and confiding in the person, by all means - it would be great. But you have to think of yourself first to battle the beast. You will have others you can count on (particularily on this board) that will meet your feelings with understanding and compassion. We are not martyrs, we are mortals with a huge life-altering experience to deal with.

    I shouldn't be preaching. I do the same thing, more often than not. I don't make like I have the big answer to everything, but will often "make happy" when I may feel down. With me the funny part is that when I "make happy" I usually start to feel happy.

    I guess my bottom line is not to worry about what others are thinking - just worry about yourself and getting through this. It is very emotional, and we all need to express our emotions some way, some how. But it should always be a comfortable experience.

    Hope to read more posts from you. You must be extremely empathetic and compassionate. My prayers are with you. The greatest strength and advice I've found are a gift of God, through my Lord Jesus. I've explored alot of different things in my life, but there is nothing like faith in God.

    Sharon

    Thanks Sharon
    I am - compassionate that is, almost to a fault.

    Ayse
  • aysemari
    aysemari Member Posts: 1,596 Member

    So true
    I was so busy in treatment, like you getting documents together and keeping a calender of appointments that it was actually easier emotionally at that time.
    We had blinders on to fight the fight and kill this deadly beast! I found out very quickly that AFTER I was done with chemo, rads and operations that I was very sad and couldn't understand why.
    My Rad Dr. did warn me that this would happen, but at the time you don't believe it, I thought No way! As soon as I'm done I am going to celebrate!
    Wrong. The emotional roller coaster as so many of you have coined it, is soooo true.
    Thanks for a great post.
    Best of Luck,
    Wanda

    SAD = DEPRESSION
    I don't think so! My previous onc office immediately suggested
    anti depressant but I refused. Because I think this is real and I
    have a valid reason to be upset and I will feel it out, live through
    it and move on. I don't want to suppress my emotions and
    explode at a later time. BANG!


    Ayse
  • Christine Louise
    Christine Louise Member Posts: 426 Member
    Acting too strong
    I made the "mistake" of acting so strong that now certain people expect too much of me, as if I'm back to the way I was before bc and none of my treatment was all that difficult. NOT! Hard to convince them that I'm not just being uncooperative when I have to say "no" to everything they want me to do.

    I've gotta say, I'm a believer in the usefulness of anti-depressants. I don't think they keep a person from seeing reality; they just change the intensity of the emotional reaction to reality. That can be really helpful.
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member

    Acting too strong
    I made the "mistake" of acting so strong that now certain people expect too much of me, as if I'm back to the way I was before bc and none of my treatment was all that difficult. NOT! Hard to convince them that I'm not just being uncooperative when I have to say "no" to everything they want me to do.

    I've gotta say, I'm a believer in the usefulness of anti-depressants. I don't think they keep a person from seeing reality; they just change the intensity of the emotional reaction to reality. That can be really helpful.

    This thread made me join
    I've been reading this forum as a non-member and have been learning a lot from it. Your comments on this thread really encouraged me to chime in and actually join. So many of them really hit home. I will post a separate topic and introduce myself. I'm so happy I've found this group.
  • aysemari
    aysemari Member Posts: 1,596 Member

    Acting too strong
    I made the "mistake" of acting so strong that now certain people expect too much of me, as if I'm back to the way I was before bc and none of my treatment was all that difficult. NOT! Hard to convince them that I'm not just being uncooperative when I have to say "no" to everything they want me to do.

    I've gotta say, I'm a believer in the usefulness of anti-depressants. I don't think they keep a person from seeing reality; they just change the intensity of the emotional reaction to reality. That can be really helpful.

    WOW
    You know, I never thought about it that way.

    But you are right, I think I too am guilty of acting
    too strong.

    I made cancer look like a big bad joke... and everyone
    laughed, including me... till I could no more. Hahaa

    But only for while, I am laughing again as I am writing this.


    Ayse