My mother was diagnosed in 2005 with GIST cancer. Surgery was performed right away and most of the tumors were removed. It was all over her abdomen, small intestine, liver and other areas. She was given 400mg of Gleevec to help stop the growth of the other tumors that were unable to be removed. The tumor remained the same for alomst 5 years. My mother became ill in the summer of 2009 with an upset stomach and a bad case a constipation. After a routine CT scan in Oct 2009 it showed that there was more growth. The tumor had returned in her abdomen and was greater than 10cm. She was taken off of Gleevec and put on
Sutent for 3 months. She handled the Sutent ok beside the hand foot syndrome. After another scan it had shown growth in her tumors so she was qualified to get Nexavar. She has been on Nexavar for 2 months and the side effects have been terrible! She has no energy, or appetite. She drinks a half glass of water and feels full. She has also lost a lot of weight, even though she didn't have much to lose. She looks prenant from the size of the tumors. She goes today for the results from her most recent scan. I am trying to stay positive but from the growth of her stomach and the way she has been feeling I don't think we are going to get good news. I will post later with her results. Please pray for my mother. I would love to talk to anyone that has been through GIST cancer.