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Is anyone else who's lost hair having problems with

kayebadoe's picture
kayebadoe
Posts: 81
Joined: May 2010

hitting your head???? Is hair like cat whiskers, if we don't have it we can't gauge how close are heads are to pointy or hard objects????? I'm not kidding I hit my head 2 or 3 times a day at least.

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Well I think you have topped the list of interesting possible side effects from treatments. I haven't heard this one before but it makes some degree of sense I guess but there are no sensors at the end of hair - hair is dead tissue - if you feel anything when you touch your hair it's because of the pressure you are putting on the place where the follicle is growing in your skin which is alive, and into the underlying tissues - that's what would cause the sensation - not from the hair end itself. With cat whiskers there are sensors that tell the cat what it can and can't get through (space I mean) or if an object is in the way but with that I'm not sure if it's sensors in the whisker or again the sensation at the base. I would guess cat's whiskers are far more sensitive though since they are vital for gauging wind currents - even small ones so the cat knows if there is a solid object ahead or not, not only to feel it's way past or through things. I doubt human hair is that sensitive.

Interesting posting though.

Take care. Bluerose

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hi Y'All,
I have just joined this group today, newly diagnosed diffuse, large B-cell; but am going this week for the results of initial testing at M.D. Anderson.
HOWEVER, I went bald when I was 22 years old (now near 60) and I can absolutely affirm that hair DOES play a protective role. Since I lost my hair in a period of 6 months, the change was dramatic. There is no doubt that one, very useful, function of head hair is to warn the wearer of imminent collision. All non-bald people would be very surprised to note how many times they actually avoid hitting their heads because, in the last split-second, they feel the move of their hair. This I know to be true, from someone who has had many years of bald experience.

God Bless,
tcvine

Life is short, drink the good wine first.

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Like Blue Rose I have not heard of this before but poses an interesting question. Maybe you are one who is prone to head bumps and just notice it more now without the cushion of hair. I refer to this as the ingrown toenail theory....no one seems to step on my toe ever unless I have an ingrown toenail that is really sore, then everyone steps on it or I stub it etc....Just a thought and heads up! Mary

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I think it's a balance issue, the weight you are used to carrying around shifted LOL.
Sorry, but I don't remember hitting my head, but I DID trip over a lot when the neuropathy started in my feet.

Take care, and hope the treatment is going well for you!

Beth

Try padded hats!

Tracie1981's picture
Tracie1981
Posts: 125
Joined: Mar 2010

ALL THE TIME! My sister told me that I needed my hair to act as whiskers lol. Without them my head has no sense of direction :)

kayebadoe's picture
kayebadoe
Posts: 81
Joined: May 2010

Thank heavens I thought I was the only one.

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

I had NHL 22 years ago and alot of treatment - bone marrow transplant and total body radiation and I have had trouble at times with depth perception. Now I don't know if it's an issue with eyesight issues from treatments or some cognitive issue, haven't really had it enough to cause me real problems yet but thought I would mention it to you.

Maybe have a word with your doctor and see if he/she can refer you to an optometrist for depth perception and maybe to another specialist who can assess possible cognitive impairment or neurology issues, also due to treatments.

Hope this doesn't become a major issue for you. Take care, Bluerose

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

You look beautiful w/o hair. God bless you. When my hair grew back I decided to keep it real short. You might also.

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

LMAO! Yes!!!! So glad I'm not alone on this one either!

Suisyo's picture
Suisyo
Posts: 1
Joined: Jul 2010

I mean I am a clutz in general but I never seemed to hit my head as much as when I first shaved my head. Thankfully now I think I've gotten used to it and haven't done it in awhile, but man I was knocking my head getting in and out of cars, leaning over, even getting into bed haha. I wish you luck with it and hopefully it will diminish over time. ^-^

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

I was wondering - since I am newly diagnosed and have not begun treatment - how much body hair do you actually lose? I know the head hair goes, but what about the eyebrows, beard, arms? What about arm pit and leg hair, and anywhere in between? Do you lose ALL body hair, or just certain areas?

I guess I'll find out, but I am just curious.

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Head, nose, armpit, legs, arms, eyelashes, and everywhere else too. The nose hair was the worst of all........my nose ran constantly for 5 months! Makes doing everything hard.

As a woman, I loved not having to shave my legs but once every 7-8 weeks....it was wonderful!

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I heard sometimes it grows back different too. How long does it take before it actually starts to grow back after treatment stops? I know it grows back at some point in time, but just wondering how long it takes. I assume it starts out as baby type hair, but do not really know. I am sure somebody knows.

yesyes2
Posts: 461
Joined: Jul 2009

Actually I loved not having any hair. And yes, not having to shave my legs was wonderful, I really miss that. Didn't need to shave for over 4 months at least. Also agree that the nose hair is the worst, be forwarned to buy stock in kleenex, I think I went through a box a day. I never noticed body hair falling out it just pretty much stopped growing and than one day it was all gone. But I was totally aware of eyebrows and eyelashes going as they kept falling in to my eyes. Actually, I think I hate hair and was so much more comfortable with out it.......yes I know I'm weird but I look so much better with out hair that I'm keeping my hair super super short. Like 1/2 to 1 inch. Hubby is ok with that, think he likes it as I'm not complaining about the color or cut, LOL.

yesyes2
Posts: 461
Joined: Jul 2009

John, Yes my hair has always come in baby soft. Feels wonderful, people pet my head, LOL.
Everyone is different, I take a longer time to grow hair, but it starts within a few weeks of chemo. And itches as it grows in the beginning. Most common regrooth color is grey, and curly. If you keep it super short, and I do mean really short, you don't have to deal with the curls.
Good luck, Leslie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Now I keep seeing myself with a gray afro. hahaha

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Never know John, it could come back dark brown my friend! It commonly comes in different colors.

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I did pet my own head too LOL. It's such a different sensation that I'd sit and watch tv and rub my head without realizing it, and yes it was SUPER SOFT peach fuzz for a little while.

My aunt would come by to get me to take me to chemo and walk in rubbing my head! I even did it to a friend of mine who went through it too............I couldn't help myself! LOL

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I agree, some of the body hair just got very thin and then realized it's ALL tender. I too loved being bald and I also won't let my hair get more than an inch long at any time. I like it best about 1/2 or 3/4" inch long. I never thought I could do very short hair, but now won't do anything else LOL.

And I loved not shaving, although the one little pesky hair on my chin??????? Stayed the whole friggin time.

Mine started growing back right away actually, at least within a month and I actually shaved it again before letting it come back....kinda freaked me out for a bit that my grays were coming in stronger and coarser and curly and the rest was much darker. For a while I did have different textures on each side of my head for a short time. It came back in MUCH darker than what I had.

Hair is soooo highly overrated and I am very grateful for the lesson. I think my hairdresser told me hair grows about 1/4" a month, but it's been so long since I was bald I can't remember if 1/4" or 1/8".

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I never had any gray hair even though I am 61 years old. When I first found I had lymphoma I did not know anything about it and it scared the heck out of me,not that I am super comfortable with it now. Anyway, it worried me so much my sideburns turned really gray in about a month. I have heard that it is an old wives tales that stress will turn your hair gray. It is not a wives tales and I know.I have noticed they are getting thin as well as the rest of my hair on the top in the last month. Eyebrows and lashes are still holding up.

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