Jun 15, 2010 - 4:17 pm
In November of 2008 my daughter presented with symptoms of insomnia, fatigue, swollen lymph nodes in her neck (front and back), low-grade fever, night sweats, and loss of 20 pounds. The doctor did 3 mono-spot tests which all came back negative. He sent her home with anitbiotics. All the symptoms except the swollen lymph nodes went away. Six months later she presented with the same symptoms, again, doctor prescribed antibiotics. Then again four months ago it happened again, and she continues to have all the same symptoms. The doctor was finally willing to check into things. An Epstein-Virus test was ordered along with a CBC, sediment rate, and thyroid. Positive EBV, slightly elevated sediment, slightly elevated lymphocytes, thyroid and other blood work ok. We were then sent to an ENT to dicuss the possiblity of a lymph node biopsy. ENT did not want to perform biopsy because the lymph node that was swollen (2.5 cm) was close to carotid artery. We are now scheduled for a CT scan. I am anxious, nervous, stressed, and even border on angry because it has taken a year and a half to get to this point. If anyone else has gone through similar experiences please let me. I need to feel like some one understands what we are going through. Please offer any information.