OncotypeDX results

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starseed
starseed Member Posts: 62
edited March 2014 in Breast Cancer #1
No--I don't have mine yet, but I have a question for those who have had this test and your
subsequent numbers. If I recall correctly the company geonome or whatever they are--their bogey I thought was 18 or 20,under that and you were good to go with NO CHEMO.When I was given an oncologist to go to by my original surgeon he told me the oncologist wants a number UNDER 11. I'm like--'scuse me??? Has anyone had a disparity in numbers like that? I
should have my results hopefully this week, but I'm curious.I see the oncologist on the 25th where we discuss my treatment.
Oh-Katz77--we are correct age has no bearing--or shouldn't. Perhaps the nurse mis-spoke,
I didn't ask for a clarification by the doc since he specifically emailed me that YES we are doing the test. Guess he didn't want me to launch that tactical nuke in his office!!
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Comments

  • mjjones453
    mjjones453 Member Posts: 155
    #2
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    oncotype test
    When I was diagnosed with BC, the Oncologist asked if I would partake of a study. I am stage 1 cancer grade 2, Er+. I had a lumpectomy with Radition. They would start with the Oncotype test. The study was to find out the odds of cancer reoccuring. He explained to me that if my score was high, I would definately have Chemo, If it came back low, then I would just do Tamoxifen. If it fell in the middle then I would be in the study. I guess that this is the area that the best Dr.s don't agree on the treatment. It is the Gray area. My score was 8. Which is low. Meaning my chance of cancer reoccuring was low. In the study, the computer would draw whether I had chemo, or not. I think that if I had fell in that middle part, I am not sure what I would have done. I would listen to your Dr. and do what makes you feel comfortable. You want to make sure you have little chance of your cancer reoccuring. Best wishes. Mary
  • padee6339
    padee6339 Member Posts: 763
    #3
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    mjjones453 said:

    oncotype test
    When I was diagnosed with BC, the Oncologist asked if I would partake of a study. I am stage 1 cancer grade 2, Er+. I had a lumpectomy with Radition. They would start with the Oncotype test. The study was to find out the odds of cancer reoccuring. He explained to me that if my score was high, I would definately have Chemo, If it came back low, then I would just do Tamoxifen. If it fell in the middle then I would be in the study. I guess that this is the area that the best Dr.s don't agree on the treatment. It is the Gray area. My score was 8. Which is low. Meaning my chance of cancer reoccuring was low. In the study, the computer would draw whether I had chemo, or not. I think that if I had fell in that middle part, I am not sure what I would have done. I would listen to your Dr. and do what makes you feel comfortable. You want to make sure you have little chance of your cancer reoccuring. Best wishes. Mary

    My Diagnosis
    I was diagnosed, Stage 1, Triple Negative and the Oncotype DX score was 34 which I thought was the recurrence rate. My PCP told me the 34 score meant over a 50% chance of recurrence which is why I was treated so aggressively.
    Pat
  • CarrWilson
    CarrWilson Member Posts: 111
    #4
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    OncotypeDX was a big dilemma
    In my head I wanted everything done unless I was less than 10. In the TailorRX study 11-20 is the gray area where they are not sure if chemo does any good. Anything over 20 they treat more aggressively.

    My score was right in the middle at 16, and I wanted to do everything possible to fight this, so I had 4 rounds of T/C. My Onc would not let me do the study because I said if I fall in the mid range I WILL have chemo. He gave me his recommendations before I had my score, and I went with his treatment plan.

    You made me laugh with "launching a tactical nuke in his office!" We should all be so involved in our health care decisions!

    Here's to low scores! Best of Luck - Carrie
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #5
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    CarrWilson said:

    OncotypeDX was a big dilemma
    In my head I wanted everything done unless I was less than 10. In the TailorRX study 11-20 is the gray area where they are not sure if chemo does any good. Anything over 20 they treat more aggressively.

    My score was right in the middle at 16, and I wanted to do everything possible to fight this, so I had 4 rounds of T/C. My Onc would not let me do the study because I said if I fall in the mid range I WILL have chemo. He gave me his recommendations before I had my score, and I went with his treatment plan.

    You made me laugh with "launching a tactical nuke in his office!" We should all be so involved in our health care decisions!

    Here's to low scores! Best of Luck - Carrie

    I am waiting to get results
    I am waiting to get results to. I go on the 22nd. I had Stage 1, 1.4 cen grade 1, + 6 areas of DCIS,.no nodes. My surgeon told me if it where her she would have chemo. But I have no idea what the Onco test will show. I am comfortable with the number 10 as well. I really don't want to take any chances in some randem cell being left behind!The 22nd will be the first time I have seen an Oncologist
  • waffle8
    waffle8 Member Posts: 234
    #6
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    Onco #
    My score was a 20..So the doctor told me it was my choice to chemo or not.....I chose the Taylor X study and got randomized for chemo....Seems like every doc. is diff.Even In the practice I go to the docs..had very different opinions about my score.....
    Please choose what makes you feel the most comfortable for you in this fight.....
    Blessings to you in this bc journey.....
  • susie09
    susie09 Member Posts: 2,930
    #7
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    CarrWilson said:

    OncotypeDX was a big dilemma
    In my head I wanted everything done unless I was less than 10. In the TailorRX study 11-20 is the gray area where they are not sure if chemo does any good. Anything over 20 they treat more aggressively.

    My score was right in the middle at 16, and I wanted to do everything possible to fight this, so I had 4 rounds of T/C. My Onc would not let me do the study because I said if I fall in the mid range I WILL have chemo. He gave me his recommendations before I had my score, and I went with his treatment plan.

    You made me laugh with "launching a tactical nuke in his office!" We should all be so involved in our health care decisions!

    Here's to low scores! Best of Luck - Carrie

    Praying for a low score for
    Praying for a low score for you on the test. I think we have to do everything to fight cancer and never look back and go "what if". Sometimes chemo is left up to you to decide if that 2% or 4% or whatever percentage is worth it to stop a recurrence. Only you can decide that. Good luck!
  • Hubby
    Hubby Member Posts: 325
    #8
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    Link
    The web site has a sample report on it.

    http://www.oncotypedx.com/BREAST/HealthcareProfessional/ReadingReports.aspx

    My wife's score was a 47; so far, that is the highest one I've seen, and that translates into a 32% recurrence rate; so I think Pat's PCP may have been incorrect in stating her 34 meant a 50% recurrence rate.

    They break it down into less than 18; 18-30; and greater than or equal to 31 (I don't know why they don't just say greater than 30 to be consistant). They are very nice over the phone and will give you an estimated completion date if you call and ask. I needed them to fax the report to my wife's second opinion doctor, and they were very helpful.
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #9
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    Hubby said:

    Link
    The web site has a sample report on it.

    http://www.oncotypedx.com/BREAST/HealthcareProfessional/ReadingReports.aspx

    My wife's score was a 47; so far, that is the highest one I've seen, and that translates into a 32% recurrence rate; so I think Pat's PCP may have been incorrect in stating her 34 meant a 50% recurrence rate.

    They break it down into less than 18; 18-30; and greater than or equal to 31 (I don't know why they don't just say greater than 30 to be consistant). They are very nice over the phone and will give you an estimated completion date if you call and ask. I needed them to fax the report to my wife's second opinion doctor, and they were very helpful.

    They told me mine will be
    They told me mine will be ready on this Friday and will be faxed to my BS and then she will send it to the Oncologist for my appointment Tuesday. I am tempeted to call and ask the number! I am such an impatient person lol!
  • Katz77
    Katz77 Member Posts: 598
    #10
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    LOL!
  • Hubby
    Hubby Member Posts: 325
    #11
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    TulsaMomof3 said:

    They told me mine will be
    They told me mine will be ready on this Friday and will be faxed to my BS and then she will send it to the Oncologist for my appointment Tuesday. I am tempeted to call and ask the number! I am such an impatient person lol!

    Oncotype can't give you the results
    They told me that they were not able to give the patient the results, only the doctor. Some California law. They also do their own ER/PR;HER2 testing.
  • starseed
    starseed Member Posts: 62
    #12
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    CarrWilson said:

    OncotypeDX was a big dilemma
    In my head I wanted everything done unless I was less than 10. In the TailorRX study 11-20 is the gray area where they are not sure if chemo does any good. Anything over 20 they treat more aggressively.

    My score was right in the middle at 16, and I wanted to do everything possible to fight this, so I had 4 rounds of T/C. My Onc would not let me do the study because I said if I fall in the mid range I WILL have chemo. He gave me his recommendations before I had my score, and I went with his treatment plan.

    You made me laugh with "launching a tactical nuke in his office!" We should all be so involved in our health care decisions!

    Here's to low scores! Best of Luck - Carrie

    Taylor-RX
    In this study/trial--from what I've read is it me or does it seem to be redundant with the
    oncotypeDX which is supposed to help you decide if chemo is good for you(well--not "good" but part of the path).With the Taylor plan aren't you taking chemo along with the antiestrogen meds? I was told I'd have to be on anti estrogen meds for 5-10 years--which to me is a rather large spread of time.Other thing I noticed was it mentioned "pre"menopausal women, but not too many post menopausals...unless I just missed it.
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #13
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    Hubby said:

    Oncotype can't give you the results
    They told me that they were not able to give the patient the results, only the doctor. Some California law. They also do their own ER/PR;HER2 testing.

    That makes sense. I think I
    That makes sense. I think I saw a lady post somewhere that her ER/PR Her2 status came back different from them that it did on her origional pathology report. Should be interesting to see what they say! I wonder if they also give a grade of the Tumor?
  • Christine Louise
    Christine Louise Member Posts: 426 Member
    #14
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    TulsaMomof3 said:

    That makes sense. I think I
    That makes sense. I think I saw a lady post somewhere that her ER/PR Her2 status came back different from them that it did on her origional pathology report. Should be interesting to see what they say! I wonder if they also give a grade of the Tumor?

    My Oncotype results didn't include grade
    TulsaMom, for me, the grade was included in the surgical pathology report on the tissue removed during my mastectomies.

    Kinda goofy Oncogype result: The score for one breast was 23 (equals 15% recurrance rate). Other breast had a 13 score (9% recurrance rate). I was told this represented an intermediate risk, and I chose to do chemo.
  • TulsaMomof3
    TulsaMomof3 Member Posts: 105
    #15
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    Christine Louise said:

    My Oncotype results didn't include grade
    TulsaMom, for me, the grade was included in the surgical pathology report on the tissue removed during my mastectomies.

    Kinda goofy Oncogype result: The score for one breast was 23 (equals 15% recurrance rate). Other breast had a 13 score (9% recurrance rate). I was told this represented an intermediate risk, and I chose to do chemo.

    Chrstine
    What was your tumor size and grade?
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #16
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    waffle8 said:

    Onco #
    My score was a 20..So the doctor told me it was my choice to chemo or not.....I chose the Taylor X study and got randomized for chemo....Seems like every doc. is diff.Even In the practice I go to the docs..had very different opinions about my score.....
    Please choose what makes you feel the most comfortable for you in this fight.....
    Blessings to you in this bc journey.....

    I hope your score is low
    I hope your score is low starseed, so, there is no need for chemo.

    Good luck!
  • Hubby
    Hubby Member Posts: 325
    #17
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    TulsaMomof3 said:

    That makes sense. I think I
    That makes sense. I think I saw a lady post somewhere that her ER/PR Her2 status came back different from them that it did on her origional pathology report. Should be interesting to see what they say! I wonder if they also give a grade of the Tumor?

    If you are also on
    If you are also on breastcancer.org, that was probably my wife.
  • Christine Louise
    Christine Louise Member Posts: 426 Member
    #18
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    TulsaMomof3 said:

    Chrstine
    What was your tumor size and grade?

    TulsaMom
    Both tumors were grade 2 Invasive Lobular. (Also had DCIS and LCIS). Tumors were small: 1 cm in left breast and 3 mm in right (part of it might have been removed in the biopsy, they thought).

    The supposedly healthy left breast was removed prophylactically but turned out to have "worse" cancer than the right. Lucky decision to have bi-lateral mast.!
  • ms.sunshine
    ms.sunshine Member Posts: 707 Member
    #19
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    Katz77 said:

    LOL!

    I don't know my score, and I
    I don't know my score, and I don't want to know. I don't want to know the % of recurrence. Won't do any good, but make me worry. I can't do anything more to fight bc whether it's a high or low score.
  • cindycflynn
    cindycflynn Member Posts: 1,132 Member
    #20
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    Mine was 20
    And I opted for the chemo.

    I was also offered the study, and my score would have put me in the randomized group, but I wanted to make my own decision and hit this with everything I have available.

    My cancer was IDC 1.3 cm, grade 1, clear nodes.

    I'm glad I had the Oncotype, it really helped me make that decision, as I was really leaning toward not doing chemo due to the possible long-term side effects.

    I'm adding my hopes and prayers for a low score for you!

    Cindy
  • debbie-Warrior
    debbie-Warrior Member Posts: 7
    #21
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    ms.sunshine said:

    I don't know my score, and I
    I don't know my score, and I don't want to know. I don't want to know the % of recurrence. Won't do any good, but make me worry. I can't do anything more to fight bc whether it's a high or low score.

    Yes i agree
    My scores came in and I did the same thing..I did not want to know..now two years latter I know because I needed to make life changes as far as exercise and diet..Made those changes,because my score was so high...49...livestrong.

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