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1st Usable Erection without ED Drugs at day 163 Post surgery

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

I sure did not think it would come back this fast...was prepared for much longer...I will still probably use the Generic Viagra at times because I like how it works and it's cheap. It sure is good to be back this quickly....I will thank my surgeon each and every time I see him - he's the rock star I thought he was! Now I just have to wait 9 1/2 years more to determine if I should deem him the greatest surgeon in the western hemisphere! Hope this gives hope to some out there in same situation! My updated path:

52 years old
PSA 9/09 7.25
PSA 10/09 6.125
Diagnosis confirmed Oct 27, 2009
8 Needle Biopsy = 5 clear , 3 postive
<20%, 10%, 10%
Gleason Score (3+3) 6 in all positive cores

11/09 Second Opinion on Biopsy slides from Dr. Koch
(4+3) = 7 5%
(3+4) = 7 10%
(3+4) = 7 10%

Endorectol MRI with Coil - Indicated the Palpal tumor was Organ confined

Da Vinci performed 12/29/09 - Dr. Hollensbee & Scott
Sling installed at time of Da Vinci – not sure what name of it is but not the 800 that is causing all the problems. Attached to Coopers Ligament.

Post Surgery Pathology:
Prostate size 5 x 4 x 3.5 cm Weight: 27 g
Gleason: Changed to (3+4) = 7
Primary Pattern 3, 80%
Secondary Pattern 4, 18%
Tertiary Pattern 5, 2%
Tumor Quantitation:
Greatest Dimension, Largest tumor focus: 19 mm
Additional Dimension 18 x 15 mm
Location, largest tumor focus: Right posterior quadrant
Multifocality: Yes
Greatest dimension second largest focus 10 mm
Location: second largest focus: Left Posterior quadrant
Extraprostatic extension: Yes
If yes, focal or non-focal: Nonfocal
If yes: location(s) right and left antero-lateral
Seminal vesicle invasion: No
Cancer at surgical margin: No
If no, closest distance with location: less than 1 mm, right posterior quadrant
Apex involvement: No
Bladder involvement: NO
Lymph-vascular invasion: No
Perineural invasion: Yes
Lymph nodes: 9 from right pelvic 0/9 positive
Stage: pT3a, pNo, pMX
All nerves sparred - found two additional pudendal arteries

FIRST PSA TEST 2-11-10 <0.1 NON-DETECTABLE

Virtually Pad free 2-20-10

SECOND PSA TEST 5-26-10 <0.1 NON-DETECTABLE

Notes on Recovery: Was at my desk working (from home office – sales) 6 days following my surgery. No pain to speak of (very lucky as many have some pain) I think because I took the Tramadol they gave religiously and found it to be the best drug in the world. BM’s where the trickiest part and most uncomfortable in the early stages but improved with time – follow the diet they give you!...I strayed off and the next BM helped to get me back on track – I like food very hot and spicy - don’t recommend that for at least a month following surgery. Cream soups, mushroom, celery, and chicken worked great the first week following surgery. Mashed Potatoes…Ah the first time following surgery it was heaven!...the first really solid food I ate…..you will learn to appreciate food all over again as you add back your favorites following surgery when the time is right. Take all the help from everyone around you…it might be a while you get that opportunity again to be waited on hand and foot. Liquids are a concern but some affect people differently it seems reading through the discussion board…I found anything carbonated would cause much leaking…alcohol was not good either…but I justified doing it thinking It’s my training method to work on my bladder control!...lol I love homebrewed beers too much! And am an admitted hop head.

ED path:
Early on started on Viagra 100mg pills cut into 4ths so 25mg per day dose then a full 100mg on every 7th day.
Also bought pump and used sporadically to get blood flow to member. Within about three weeks or 5 weeks from surgery (cannot remember but probably posted on CSN somewhere) had usable erections.

Currently only need ¼ pill to get usable . Day 150 am starting to get semi hard without any drug.

Day 163 had usable erection without any drug!!!

Reading Materials for Reference:
Recommend-Guide to Surviving Prostate Cancer-Second Edition
Dr Patrick Walsh
Prostate Cancer Survivors Speak Their Minds – Arthur L. Burnett II, M.D. – Director, Male Consultation Clinic, John Hopkins Medical Institutions & Norman S. Morris, Forward by Senator John Kerry
Recommend-The First Year Prostate Cancer-An Essential Guide for the Newly Diagnosed
Chris Lukas
Recommend-Saving Your Sex Life-A guide for Men with Prostate Cancer
Dr. John Mulhall
Prostate Cancer Meet The Proton Beam-Apatient's Experience
Fuller Jones
Recommend-You Can Beat Protate Cancer and you do nto need surgery to do it
Robert J. Marckini
Recommend-Surviving Protate Cancer without Surgery-The New Gold Standard that save your life and life style
Dr Michael J. Dattoli
Conquer Prostate Cancer
Rabbi Ed Weinsberg
Recommend-Eat to Beat Prostate Cancer Cookbook
Ricketts
Page with Free Guides to Prostate Cancer and Exercise and Nutrition
http://www.pcf.org/site/c.leJRIROrEpH/b.5814067/k.C966/Guides.htm

Comprehensive Book list on Prostate Cancer - http://www.wellnessbooks.com/bookstore/

Studies:

http://www.nytimes.com/2010/02/14/health/14robot.html

http://nyp.org/news/hospital/robotic-prostate-surgery-study.html

http://news.yahoo.com/s/nm/20100512/hl_nm/us_prostate_cancer

http://www.urmc.rochester.edu/news/story/index.cfm?id=2868

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Great news, Randy. Sure hope you put that usable erection to good use!

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

WILL GET USED!

lewvino's picture
lewvino
Posts: 1007
Joined: May 2009

Great News Randy!!! Tell the Doc if you could have kids now you would name them all after him!

Larry

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

I get my blood drawn on 9-1 then probably going diving to Cozumel then return on the 7th and see the doc on the 8th.

chitown
Posts: 90
Joined: Mar 2010

Enjoy Cozumel. Have dived there 3 times. Great sense of peace in diving

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

Thinking about getting my wreck diving certification in Panama City over the 4th of July provided there are not to many tar balls to dodge - I have a new Reg and BC I do not want to mess up with oil. There are some good places to eat in Cozumel also! Best of luck on the 15th!

Update - had to use Viagra today - not sure why maybe it's because of difference in time morning versus night??? Does anyone else find the time of day has anything to do with ED function?

NM
Posts: 214
Joined: Jul 2009

Usually better for me in the morning, why I have no clue and congradulations to you.

Nick (forgive my spelling LOL)

shane59's picture
shane59
Posts: 86
Joined: Jan 2010

dont ask me why about 4in the morning guess the brain gets everything excited just thinking about it ,I to have had some luck in between taking tablets some mornings he has a mind of his own just like the old days and as my old dad sais waste not want not and you have to agree with your elders . great news Randy keep it up so to speak
Shane59

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

"if you don't use it you will lose it, and become a memeber of the Limp D... Bench."

At the time, as a freshmen in College that was a very important statement and one to remember.

As Ken GRiffy Sr. stated in the book I'm reading that Maria gave me....The ultimate form of erectile dysfunction is death" The key message, as Ken emphasized, is that having one's life is most important, even if "manhood" is compromised. As Ken Griffey Sr. epitomizes, a proud man is one who values his life and chooses to be there for his family.

That is exactly what my goal was...get the cancer gone first, then worry about all the rest later, but that was me...no two people are the same.

For me anything beyond beating the beast is a bonus.

Randy in Indy

zakpaga
Posts: 66
Joined: Jan 2010

Randy,

Glad to read the good news and the details on your ED rehab. Keep it up!

Victor

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