So I just finished getting caught up with all the new postings. It's been a while since I have been to this website.
Just wanted to post an update for those new people out there. My husband who was diagnosed back in October 2009 is doing very well all things considered. He started Nexavar in January but went off after two weeks so that he could have his first of two TACE procedures (Transarterial Chemoembolization). He went back on and then off again in March for his second TACE. Since then he has been on 3 pills a day and tolerating them fairly well. He is tired at times but it seems that when he just sits around the house and does nothing that's worse. If he stays busy or goes out then he's much better. He can not tolerate dairy (i.e. milk, cheese, sour cream) or buttery, greasy, oily things. Imodioum works if he takes it. He did have issues with his feet while he was still working but since he stopped they are much better. Not even an issue anymore.
His labs are very good. His AFP was 5.0 which is below the norm. His ALT and AST #'s have fluxuated back and forth but are ok. He will have his next CT scan this Tuesday and then see the Dr. later that afternoon for results. We are staying very positive and hoping that they are good results. I will post again on this same page after Tuesday.
Anyone wanting more info on Nexavar, TACE or HCC feel free to post here or email direct firstname.lastname@example.org with any of these in the subject line.