Jun 02, 2010 - 12:09 pm
I am looking for like type of cancer and information. My background is a paramedic. I typically don't do long term disease processes, however, my teenager is being annoyed by ARMS cancer. I have probally spent more time learning about cancer cells, the limited research that is out there and the treatment selections. I don't mind sharing what I do know. I found that talking about it helps me. I understand clearly that the LORD has my daughter, and the doctors have her best interest, however, I do ask a lot of questions. Here is the case.
15 y/o female, no prior medical history. dx:Rhabdomyosarcoma alveolar metatasic to bone marrow. We do get blood transfusions, however the frequency has dramatically decreased. No brain or spinal cord infiltration. Patient is on protocol COG ARST 0431. Patient is very responsive to chemo. We don't have a primary source, so radidation and surg, aren't options. Patient is up moving and acting normal without any side effects from any treatment. Evaluation week came, results reports "Dramatic improvement" in overall disease process.
The research that they have on the internet is terrible, I mean aweful, and the numbers are all over the place without consistancy. I have researched this rare form of cancer and have emailed over 20 research physicans and have had a poor response, however it is the summertime.
What have you found?
By the way, we have a very positive attitude, and we pray alot, and we share this with our friends. We have found that http://www.lotsahelpinghands.com/ really has come in handy. I highly suggest it.
Thank you. Looking forward to your responses.