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anaplastic astrocytoma grade 3

momsworld's picture
momsworld
Posts: 135
Joined: May 2010

Hi,
I was hoping to find a parent of a child diagnosed with AA grade 3 to talk to. My daughter was diagnosed in March 2010 and has had 2 brain surgeries since then to remove the tumor. She is 12 years old and a loving, helpful, beautiful girl. I have been devestated over this diagnosis and I would like someone who has been through this or is going through this to write back as I am feeling all alone on this one. Tina

MariaRuiz555
Posts: 6
Joined: Apr 2010

Hi my 4 year old son was diagnosed in February and underwent surgery in April. We are currently undergong treatment in UCSF. How is your daughter doing. Is sh undergong chemo and radiation?

momsworld's picture
momsworld
Posts: 135
Joined: May 2010

My daughter is just finishing up on her chemo and she has 8 days left of radiation. She will be on chemo 5 days on, 23 days off after that for 1 year. How about your son? how is he doing? my daughters tumor was removed, was your sons? her tumor was located in the cerrebellum and was the size of a golf ball. She is going to Dartmouth medical center in Lebanon, NH. We are very happy with her team but unhappy with the diagnosis. we had 2 other hospitals do pathology on the tumor and all came back the same. Needless to say it is devastating.

prayers4payton
Posts: 2