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Hyperbaric Therapy

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

I have just had the ok to start this treament next week, to clean and build new cells to my larnyx and voice box where i was given radiation, if anyone has every had this procedure, please feel free to post, tell me of your expereince and if it was a positive diretion for you. This is my last hope. Thanks, I'm hoping for a miracle, or some improvement to the voice area. Thank you. Dennis

denistd's picture
denistd
Posts: 487
Joined: Apr 2009

Hi Dennis, I underwent hyperbaric treatments, the reason I had it was so that some teeth could be pulled. The hyperbaric supposedly facilitates blood through through areas that have been subjected to radiation. When I had the teeth pulled, the pain was minimal and the bleeding ok. I need some more teeth pulled but will not have the treatment. Have not heard of it as a facilitator for repairing laryngeal cells. The treatment itself is duck soup, just time consuming
Denis

debbiejeanne's picture
debbiejeanne
Posts: 2266
Joined: Jan 2010

dennis, I've never heard of it but I wish you the very best. You will need to let us know if it truly works. Good luck.
Debbie

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Keep those comments coming, positive or negative, I was told it works totally different on each person, I'm hoping for some success!!!, Thank You

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Will keep you in my prayers and my thought that it works for you my friend.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I really hope that this works for you and gives you some of the relief that you need. I know that you have had a rough time with the radiation side effects too. Keep us posted, I will keep praying.

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Thanks Sweetblood, that means alot, I need all the good thoughts you can give me...Dennis, and I will keep you posted

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

I went to another dentist Friday and got more of the same story nothing they can do. My Jaw will not open enough for them to do anything, he suggests I do some hyperbaric treatments and get all the molders pulled. Here is the big kicker if they accidently break the Jaw bone I will need to get the Jaw replaced. I am going to Google and see what Jaw bone replacement is about, I hope they don’t use a dead mans Jaw…

Keep strong and keep fighting.

debbiejeanne's picture
debbiejeanne
Posts: 2266
Joined: Jan 2010

Hondo, I'm sorry to hear that you have been faced with yet another opstical. I hope that you will find good news in your research. Sometimes it just seems like it never ends. Hang in there and we will be praying for you. Keep us posted.
God Bless,
Debbie

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Something I have learned that with God even something bad can be good if he blesses it. I don’t know where he is leading but I am willing to follow him all the way. Even if I am toothless here on this earth I know he will have a new pair waiting for me in heaven.

Thanks you very much and God continue to bless you too.

kennethlocklear
Posts: 3
Joined: May 2010

While I am new to this forum, I am pleased to hear of fellow believers that can praise Jesus through life’s challenges. I have come to a point where I couldn't say I wish this had never happened because I have become so much closer to God through this. Not only has my relationship grown closer to God, but God has used me to testify of His greatness despite this disease.
One of the first things a close friend of mine said upon hearing my stage 4 diagnosis was "Count it all joy". I didn't get this at all until recently. I have been able to count this all Joy do to my complete reliance upon Jesus.
When the doctors told me it was hopeless and that I would die, my family and Church declared in God's Word that I would live to testify of His greatness. I had a son 18 months after diagnosis. Not only I am living, but my family is expanding. God is good, all the time!
I just wanted to say thank you for your words of encouragement.
Sincerely,
Ken

debbiejeanne's picture
debbiejeanne
Posts: 2266
Joined: Jan 2010

Ken, i am a very strong believer and I know without a doubt that God has brought me thru many, many hard struggles. God has worked miracles in my life that I and my family have WITNESSED. Without my faith in God I would not have made it this far in life. I am struggling right now due to the loss of a nephew who was like my own son. Some days I just want to completely give up but then I remember that God will bring me thru this as He has all my struggles and heartaches. I know God will continue to be with me, protect me, and lead me where He wants my life to go. I put all my trust in God b/c without Him, I am truly lost.
Thank you for your post and God bless you friend.
Debbie

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

You are so correct, at first having this cancer was to me a low blow, it is only now I realized what God was doing, it is a way to help others know him. What Satan menthe as a curse God turned in to a Blessing

All the best to you

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Please let us know what's going on in your life and the jaw situation, praying for you and your family..Dennis, You'll get around this

kennethlocklear
Posts: 3
Joined: May 2010

I am a stage 4 colon cancer survivor that started working in hyperbaric medicine after watching numerous patients recovery quickly from throat cancer / radiation tissue damage. I couldn't believe how quickly (usually within 90 - 120 days) they would heal with something so simple. Little did I know that it would play a part in saving my life 20 years later.
While Hyperbaric Oxygen Therapy (HBOT) is approved for treating the damaging effects of radiation, it is also used to make the radiation more effective. I am one of the first humans to discover that it also makes chemotherapy more effective while reducing the side effects. While this has been theorized for years, no one had ever done a human study. But with me being a stage 4 patient and working in the field, I knew the risks and potential benefits and it was a no brainer to try it on myself.
My passion for HBOT has lead me to create a medical journal that promotes the us of HBOT. Our most recent issue was dedicated to the long known science of how it works on active cancers. You can read more about this online at: www.hyperbaricmagazine.com
It is a very well known scientific fact that HBOT in no way causes the spread of cancer. In 1931 it was discovered that cancer can not live in the presence of pure oxygen. It was from here that it became logical to research how increased oxygen could aid other forms of cancer therapy.
If you are considering having HBOT to close a radiation induced wound, you have nothing but good times to look forward to. It is approved by all insurance carriers and Medicare. It is painless and a good way to get some rest. It won’t cure cancer but will sure as heck give you the best shot for feeling well while enduring every other form of therapy. I have been on chemotherapy for almost 2 ½ years without ever being sick, anemic, or weak. HBOT build both red & white blood cells and promotes a healthy body while your other therapies do what they were designed to do.

debbiejeanne's picture
debbiejeanne
Posts: 2266
Joined: Jan 2010

ken, welcome and thank you for this impressive post. Many here have been wondering if this could help them and it sounds like you have answered their questions. Thank you for taking the time to help by posting, it is greatly appreciated by all. I'm glad that you won the battle with your cancer and that you didn't have all the bad effects of the trmnts.
God Bless,
Debbie

kennethlocklear
Posts: 3
Joined: May 2010

Thank you for your kind words.
I was already on a path to raise awareness of HBOT for other indications (such as stroke, autisim, etc.) before my diagnosis, but cancer helped to redirect my focus on what this therapy could do for this patient population. Little did I know that at age 38 I would be one of them. But I feel God has used me as a vessel. I have been given knowledge of how this therapy works and applies to cancer and am fortunate enough to work with enough doctors that understand the theories and are willing to apply it in an attempt to improve the lives of fellow patients. When you have stage 4 you have nothing but hope. That very hope opened the doors for me to discover something that I hope will benefit the rest of us.
I have made it my life's mission to inform the world through publications & web sites how HBOT can affect cancer and the other therapies we take.
I look forward to sharing any information I have with this community because this is how we all gain knowledge.
Thank you again,
Ken

debbiejeanne's picture
debbiejeanne
Posts: 2266
Joined: Jan 2010

ken, i'm very sorry that you are going thru the battle but I'm glad you decided to come here and share your knowledge with us. I think you're awesome! You will be in my prayers. Prayers have a powerful impact as many of us know. Have a wonderful day! :0)
God Bless,
Debbie

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

This is very welcome, Ken- you, and the info you've provided. They use the HBOT at the hospital where I got my PEG and Port, but my Drs. are actually aligned with another hospital- and kinda wish this treatment had been at least mentioned by them.

Any possibility the HBOT can help Lhermitte's Sign-type nerve damage?

Also- who would you suggest I talk to in regards to this treatment for my mouth/teeth? My ENT, Rad, or Onco? My regular Dr. isn't really an option, for me.

thanks

kcass

Yankee617
Posts: 5
Joined: Jun 2010

"It is a very well known scientific fact that HBOT in no way causes the spread of cancer. In 1931 it was discovered that cancer can not live in the presence of pure oxygen. It was from here that it became logical to research how increased oxygen could aid other forms of cancer therapy."

Ken, the above statement seems a bit over-the-top. Could you point to some authoritative studies supporting this statement?

I've had two round of radiation to my neck and am about to undergo a second neck surgery. My doctors worry about wound healing, but are also worried about using HBOT specifically because they think it could promote the growth of any residual cancer cells. Right now, I think they plan to take a "wait-and-see" approach and only use HBOT if I appear to be having a very difficult time healing after surgery.

There are always two basic issues for any treatment for any medical condition: (1) safety, and (2) efficacy. I went to the web site for your HBOT magazine hoping to find authoritative scientific/clinical data supporting your claims of safety. If its there, its well-hidden.

I'm not trying to rain on your parade, but your claims regarding the use of HBOT in cancer patients need substantiation - especially because they seem to run counter to the worries my doctors have expressed to me.

===

See this article:

http://www.oncologystat.com/journals/journal_scans/Hyperbaric_Oxygen_Therapy_for_Late_Radiation_Associated_Tissue_Necroses_Is_It_Safe_in_Patients_With_Locoregionally_Recurrent_and_Then_Successfully_Salvaged_Head-and-Neck_Cancers.html;jsessionid=2870057B08ABD424069127E5D668E7EC

"HBOT increases the risk of cancer re-recurrence" in locoregionally recurrent head and neck cancer. "HBOT should be given with caution... "if it cannot be omitted entirely," it should be deferred for 9 months or longer.

Nina1943
Posts: 4
Joined: Jun 2010

I have been told that the hyperbaric chamber forces oxygen into the cells and aids in healing when healing is slow or seems not to be happening. My neighbor went through having radiation and chemo, and he was burned badly. He actually turned black over parts of his face and neck. He was done with the cancer, but was simply not healing well. After a number of treatments in the chamber he reported to me that he could not see any results of it. However, by the time he was done with treatment he was all pink and healthy looking again. He is cancer free today, and completely healed. My brother in law runs a hyperbaric clinic, and he tells me that it is used basically as a healing aid. Not just for cancer survivers, but any wound that refuses to heal properly.

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

I've gone 5 days threw this, i stay 2-1/2 hours in the chamber system, your slid in o your back, and the door closes, it's all glass so not to closed in, the assistant will inform you he is going to lower the oxygen and proceed full strength on the hydrogen, you ears pop and it's like being on a airplane, you watch t.v, read a book. the treatment ends with the the levels being brought back down, the feeling you have alot of energy, hard to sleep at night, the healing is taking place inside, they tell me half in the sessions i should see some change. I'll keep everyone posted, I went to the Cancer Doctor, Monday, and my airway has opened more, which we feel this is s positive way to go, he said we will talk about the trach removal in 2 weeks...please pray this happens, for it causes me alot of distress, and seems to be a hang up with me, I can keep my trach most of teh day, so I am hoping, anyone that has had a trach and had it removed, please write me back...thanks Dennis

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Thanks for the up-date on what you are doing, I am thinking about doing this myself but just want to see if it really helps first. Keeping you in prayers

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Hi Dennis,

I had a trach 15 years ago because of surgery to rewire all of the broken bones in my face and a broken jaw that I received in a car accident. I only had it for about 4 weeks but it was stitched to my throat and I hated the whole experience. The removal was nothing, at least back then, they removed the stitches and then they just pull it out. They didn't even stitch the incision closed, they taped a gauze pad over it and told me not to get it wet for 2 days. I was amazed how easy the whole procedure was. Like I said, this was 15 years ago but I'm sure it is done the same way now.

Wishing you the best as you continue the hyperbaric treatments, think positive thoughts ;-)

My best to you and everyone on these boards - Glenna

Clearblue
Posts: 188
Joined: Apr 2010

Hi there deniss,
My wife didnt have Rad Therapy but had a trachi for 6 months after laryngpharingial surgeries.

After she had her feeding tube removed, the trach was next.

It drove her nuts. It was plugged closed for about a month and half, "just in case" she needed it, according to the docs. Because partial larengectomies are suseptible to aspiration and neumonia , they wanted to be sure that gd forbid she needed it, there would be an open airway. She first had a plastic canola and then a metal canola, which made talking easier.

But, after her eating improved and her breathing was constant, and the fact that she wasnt really using it, she insisted in removing it. One surgeion agreed to this. The hole can close in two weeks, but sometimes in adults it can take a month. THere are somecases where the hole doesnt close completely and there is a quick surgical procedure for this. Her hole is now almost completely closed, but not 100%.

When they removed it, she had to say in hospital overnight for observation to see if there was any problems breathing, eating etc. A day after , she felt like "a different person" .
We have check ups every two weeks to check that there is no swelling or swallowing problems.
SO far so good, and she is coughing much much less. As i understand it, many people with trachi fell like theyre being starngled. I dont think anyone who hasnt had it, can really understand the feeling of a trachi in the throat.

Today she needs to be very minded when she eats and MAINLY others need to understand that eating and speaking is difficult, so they need constand reminding about this.

I have followed many of your posts; i wish from the depth of my heart that you will feel better and get over you r terrible challenges you face.

I hope to hear how your latest therapy is and was. Under what circumstances can a person have this. Is this to deal only with damaged done by Radiation or can it be used combat tumors too.

Go well
Clear.

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

I sit here feeling alone an wondering what life is going to throw next, to tell you the truth the trach in my throat is making me gag and choke, I appreciate everyones input, and I am hoping it's positive news next few weeks from teh docotr, your right, if you haven't one of these it's like being pinched to death, i thik it's causing more pain and irritation than teh breathing, i closed mine off most of the day, i still get winded if i have to run, but can handle it closed off, i had my plug up last night, and and woke up to clean it out because there was no air coming threw it, I didn't die at least...lol, still taking my therapy, the 2-1/2 hour hydrogen sleep, will commnet end of this week how i'm feeling..best to all Dennis

Paulssister
Posts: 30
Joined: Jun 2010

Dennis...

I only joined this web site yesterday but today I feel I have gained a family. Here's wishing you the best. Please keep us up to date on your progress and remember you are in everyone's prayers.

Kind regards,

Susan

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Glad you found us......Hang in there, type what you feel, we are hear to listen..Dennis

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