May 19, 2010 - 1:00 pm
Hello all. I've not been able to write due to a substantial setback after five weeks of radiation. After finishing week 5 of radiation (and the chemo in week 5) I developed severe tissue breakdown and extreme pain. Oral pain medication provided no relief at all and I began to bleed from the vaginal area.
I was hospitalized for pain control and treatments of the wounds; these were mainly in the front and back body creases and also the labia was raw and swollen. I remain in the hospital (today is my 8th day) where they are cleaning and dressing the burns with saline, Biafine topical ointment and vaseline gause several times a day. I have been on Dilaudid per IV, then switched to morphine - both IV and oral. Today we are hoping that oral morphine alone will control the pain as we work toward going home this weekend. The burn wounds are getting better slowly as is the pain.
I'm sorry for the detail, all leading to my question - has any of you had to stop radiation for several days? So far it is out of the question that I resume radiation. I have 8 days remaining; I finished 25 of the 33 treatments when I had to stop. I am wondering about any experience you may have with stopping and restarting radiation treatments. Is there a point at which there is no option to restart? If I can finish later does it impact the ultimate outcome?
These are questions for my Doctors of course, but any info or experience you could share would be very appreciated. I am anxious to catch up with you all when I get home and hope things are going well for you.