May 19, 2010 - 11:19 am
39yrs old male. with a family. non smoker. just diagnosed with stage IV NSCLC.
My PET came back and my whole left lung lit up.
As did the lymph nodes around the lung. A left posterior rib. My Iliac Crest bone. T2 in my spine.
A month ago, I thought I might have had allergies or pneumonia. Today, I fear I may not see the birth of my child in December.
I do not know what to do next. Heck, I don't even know what to call my situation. Am I dying? Does saying that mean I'm being defeatist? Everyone keeps saying a positive attitude is so important... but give me a break if I can't feel depressed on hearing this news somebody's expectations are out of whack...
Treatment should start next week if I can confirm whether I am EGFR or Alk positive.
But what then? How many people actually survive for very long when they are where I am?