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After Effects From ABVD
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May 18, 2010 - 8:20 pm
I am 44 now & had Hodgkins when I was 25--1992. I have had thyroid & infertilty issues in the past. But this weekend I found out that I have major heart issues. I have to have my mitral valve replaced because of the damage from the chemo. And I have nonischemic cardiomyopathy....your heart "squeeze" is weakened. Has anyone else had to have this done or these issues? |
Joined: Dec 2009
Yes, I have had radiation and ABVD damage my heart. The adriomycin has caused "blunting of the normal augmentation" and I have the start of valve problems.
I have found that seeing a long term effect specialists has helped me tremendously to sort these things out. Have you tried joining the mailing lists on http://www.acor.org/? I joined the LT-Survivors list. There are many survivors that have faced or are facing the same issues. There is a wealth of knowledge on this board. It lead me to my current LT Effects Specialist. It is tricky to figure out how to join, try using the help page.
I have learned it is imprtant to see a cardiac surgeon that has operated on radiated hearts. Did you have radiation also? Best wishes to you,
Cathy
HD 1989 rads
HD 1994 ABVD
IDC 2008 - double mastectomy
Joined: May 2010
Hi Cathy, thanks for responding!! I did not even know that there was such a specialist. I will join today. I did have radiation/surgeries first, the dam cancer cells where hiding behind my "protective" plates for my lungs. They got big enough to see within a year, so I had more surgery and chemo.
I will add the question onto my list for my cardiologist about the surgeon. I see him on the 28th.
Thank you,
Andrea