Just got off the phone with my bro. They ended up giving him IV fluids and Zofran (after he threw up)...is having appt this a.m. with Chemo doc. Said he couldn't brush teeth because gums were all torn up....I told him that one of you had posted about using baking soda and water, he was going to go try it.
He is ready to quit. He has only gone thru two rounds and has about 3-5 left......doesn't think he can make it/tolerate it. I don't know what to say to him.
Sweet, thank you about the sleeping with head elevated, he did that last night and at least he didn't feel worse this a.m.( also, I read him your post about liking the Essentials program-- it made him feel good that even though he feels so horrible, that he could help)
Seems I remember someone saying that things don't normally get too bad from rad until 3rd round--unless sensitive to it. Apparently he is. the pain in his mouth and throat is fairly well maintained with current pain meds, but not for the rest of him. Doesn't think he could stand a compress at this time because he is soooo raw and swollen. His wife says that his whole face is pretty swollen.
God help him!!--And all of you!!!! Why the hell is he hurting so badly!?!?!?!? Why do I have to be so far away when he needs me the most??? He always takes my calls...I think he is hopeful too that I will have some info for him. Now I am at a loss. He can't stand the mask much more either. They crush it onto him so hard that it leaves impressions on his face, with only this little hole to breath out of!!! What a nightmare....something that should be in one of the SAW Movies!! How to kill yourself while trying to save yourself....How very f'd up!! I am sorry. I realize that most of you have been through or are going through something similar.....I just want to help my brother. If ANYONE has any words of advise that I could relay to him, I know we would both appreciate it so very much. God Bless -Jess