Saw oncologist today ------------ nothing but bad news & I'm really scared :(

pinkflutterby
pinkflutterby Member Posts: 615 Member
edited March 2014 in Breast Cancer #1
Well I saw my oncologist today over the past month I have had a bone scan, pet scan and a MRI of my brain. The MRI showed hot spots on my brain so I see a neurosurgeon tomorrow to set a time for him to do a spinal tap to get the fluid to test on it to determine the cancer cells then they talked about putting some port type thing in my HEAD to administer meds to my brain!

Im freaked out!!!!!!!!!!!!!!!

♥ to all Libby
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Comments

  • chenheart
    chenheart Member Posts: 5,159
    #2
    libby,
    We understand the
    libby,

    We understand the freak-out quotient~it is a regular reaction in here! Especially when we are playing the Waiting Game!

    It goes without saying that you have the love and support of all of the sisters here on the Boards, and please keep us in the loop! We care about you...you are Family.

    Hugs,
    Chen♥
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #3
    I am so sorry. I know a
    I am so sorry. I know a little boy who has a port in his head, because of a tumor. The port he has is for draining. I understand you being freaked out, I would be to. Wait and see what the neuro says, maybe its not as bad as you think. I will keep that thought as well as keep you in my prayers.
  • dyaneb123
    dyaneb123 Member Posts: 950
    #4
    Kat11 said:

    I am so sorry. I know a
    I am so sorry. I know a little boy who has a port in his head, because of a tumor. The port he has is for draining. I understand you being freaked out, I would be to. Wait and see what the neuro says, maybe its not as bad as you think. I will keep that thought as well as keep you in my prayers.

    Big hugs Libby...I know you
    Big hugs Libby...I know you must be scared, but maybe someone has experienced the same thing and can give you better idea of what's really involved...I hope so...and I hope it goes well for you..
  • mom62
    mom62 Member Posts: 604 Member
    #5
    Freak Away
    Hi Libby,

    As a two time survivor and soon to go for another PET scan I can completely relate to you honey. You have every right to freak out. If I were you I'd probably be 1/2 in the bag by now and having a good cry or screaming out loud (in the cellar of course so the kids wouldn't hear me). I don't think anyone is ever prepared to hear bad news but it doesn't have to be the end of the world. Every day is a blessing that I get to spend with my kids. Hold on to what is most important to you and it will get you through this as well. Best of luck!

    Terry
  • laurissa
    laurissa Member Posts: 773
    #6
    Hi Libby
    I'm sorry about the MRI results. You're in my thoughts. Stay positive and keep us posted.
  • pdv
    pdv Member Posts: 56
    #7
    I totally understand your
    I totally understand your being freaked out. I would be too. Since being diagnosed with bc I have been very unsure about what is going to happen but one thing I found that helped is reading as much about it as possible. The more I knew, the less upset I got...and...I now even try to joke as much about the things that are happening to me as possible. That really helps believe it or not. I pray for your anxiety and hope God will grant you a real peace about what is to come.

    Pat
  • Marcia527
    Marcia527 Member Posts: 2,729
    #8
    Someone on here posted that
    Someone on here posted that brain cancer was treatable. I remember this but not who posted it. Hugs.
  • carkris
    carkris Member Posts: 4,553 Member
    #9
    Marcia527 said:

    Someone on here posted that
    Someone on here posted that brain cancer was treatable. I remember this but not who posted it. Hugs.

    I have heard of a port to
    I have heard of a port to administer chemo, since it does not pass the blood /brain barier. meaning the chemo doesnt reach the brain through injection in the blood. but I have heard more of using radiation.
    We are with you and will be praying for peace, strength and recovery.
  • jennytwist
    jennytwist Member Posts: 896
    #10
    carkris said:

    I have heard of a port to
    I have heard of a port to administer chemo, since it does not pass the blood /brain barier. meaning the chemo doesnt reach the brain through injection in the blood. but I have heard more of using radiation.
    We are with you and will be praying for peace, strength and recovery.

    Sending you
    positive energy and love! Please keep us posted and know we are all here for you - keeping you close to our hearts and in our prayers!
    much love,
    Jenny
  • elm3544
    elm3544 Member Posts: 748
    #11
    Hoping for good news from
    Hoping for good news from the neurosurgeon. So sorry you're going through this.
  • susie09
    susie09 Member Posts: 2,930
    #12
    mom62 said:

    Freak Away
    Hi Libby,

    As a two time survivor and soon to go for another PET scan I can completely relate to you honey. You have every right to freak out. If I were you I'd probably be 1/2 in the bag by now and having a good cry or screaming out loud (in the cellar of course so the kids wouldn't hear me). I don't think anyone is ever prepared to hear bad news but it doesn't have to be the end of the world. Every day is a blessing that I get to spend with my kids. Hold on to what is most important to you and it will get you through this as well. Best of luck!

    Terry

    I am so sorry Libby! Just
    I am so sorry Libby! Just know that we are all here for you, anytime and all of the time!
  • New Flower
    New Flower Member Posts: 4,294
    #13
    elm3544 said:

    Hoping for good news from
    Hoping for good news from the neurosurgeon. So sorry you're going through this.

    Hi Libby
    Wishing you luck tomorrow. Ask your neurosurgeon as many questions as you need to feel comfortable and positive about your treatment. We will be thinking of you.
    Sending you a big hug,
    New Flower
  • Mama G
    Mama G Member Posts: 762
    #14
    New Flower said:

    Hi Libby
    Wishing you luck tomorrow. Ask your neurosurgeon as many questions as you need to feel comfortable and positive about your treatment. We will be thinking of you.
    Sending you a big hug,
    New Flower

    what about radiation?
    When my sister developed some hot spots in her brain they told her it was no problem, the radiation will take care of it, and it did!
    My prayers are with you, Libby. Please let us know what's going on. I'll be thinking of you and hoping for good news.
  • pinkkari09
    pinkkari09 Member Posts: 877
    #15
    Hang in there Libby, were
    Hang in there Libby, were all here for you and you can do this!
    Mountains of Love and Big Cyber Hugs,
    Kari
  • meena1
    meena1 Member Posts: 1,003
    #16
    pinkkari09 said:

    Hang in there Libby, were
    Hang in there Libby, were all here for you and you can do this!
    Mountains of Love and Big Cyber Hugs,
    Kari

    I will keep you in my
    I will keep you in my prayers today as you go to the neurosurgeon. Take care and stay strong. Hugs.
  • camsgram
    camsgram Member Posts: 106
    #17
    Hi Libby. STAY STRONG! I
    Hi Libby. STAY STRONG! I have read many of your comments and can tell you are one of the strongest people out there. You and your children are in my thoughts and prayers.
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #18
    Libby, we're here with you.
    Libby, we're here with you. Yes, I, too, would be scared to death with the worst part being having to play the waiting game again. Try to not worry until you get the true diagnosis. I'll be thinking of you today and hoping for a report from you that is more positive. Take care and sending strength your way!!
  • Sharon_D
    Sharon_D Member Posts: 55
    #19
    MyTurnNow said:

    Libby, we're here with you.
    Libby, we're here with you. Yes, I, too, would be scared to death with the worst part being having to play the waiting game again. Try to not worry until you get the true diagnosis. I'll be thinking of you today and hoping for a report from you that is more positive. Take care and sending strength your way!!

    Hey
    Brain cancer is definately treatable!!!! We have a close friend who had it and they treated him and now he is fine. So don't go getting out the do-it-yourself-will-kit just yet! You've got a bunch of time left to drive your kids nuts!
  • jnl
    jnl Member Posts: 3,869 Member
    #20
    New Flower said:

    Hi Libby
    Wishing you luck tomorrow. Ask your neurosurgeon as many questions as you need to feel comfortable and positive about your treatment. We will be thinking of you.
    Sending you a big hug,
    New Flower

    Good luck with your doctor's
    Good luck with your doctor's appointment today. Praying for you

    Hugs, Leeza
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #21
    pinkkari09 said:

    Hang in there Libby, were
    Hang in there Libby, were all here for you and you can do this!
    Mountains of Love and Big Cyber Hugs,
    Kari

    I am so sorry Libby for your
    I am so sorry Libby for your news. Please hang in there and know that we are all here for you.

    Sue :)

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