My husband was diagnosed with myxofibrosarcoma on 4/2010. At that time he had the tumor removed surgically and did well for a year. Then the cancer recurred. It is now in his groin area and he is undergoing chemo at Fox Chase Cancer Hospital in Philadelphia. They are talking amputating the leg and hip area if the chemo does not work. I have a lot of faith in the doctors at Fox Chase and whatever the outcome I know it will be a good one.Please respond if there is anyone with similar experiences
My thoughts and prayers are with you and your husband. I hope the chemo helps your husband. My sarcoma was on my upper thigh and last year I had two operations and 34 radiation treatments. Because myxofibrosarcoma is so rare, it's hard to find a lot of information on it. Occasionally there are clinical trials that are available. I would consider this option before amputation.
I am in similar situation. I had been cleared for 16 months after having surgery chemo and radiation then showed in my lungs during the routine 3 months chest Xrays. Had bronch, and a wedge of my left lung where the sarcoma was excised, last aug. 3 2011. I will have surgery again on nov. 2 on my right leg (original site) which had recurrence. It is overwhelming.
I am in Ohio, being seen at University of Michigan Comprehensive Cancer Center and at Ohio State University.
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Joined: Jun 2011
My husband was diagnosed with myxofibrosarcoma on 4/2010. At that time he had the tumor removed surgically and did well for a year. Then the cancer recurred. It is now in his groin area and he is undergoing chemo at Fox Chase Cancer Hospital in Philadelphia. They are talking amputating the leg and hip area if the chemo does not work. I have a lot of faith in the doctors at Fox Chase and whatever the outcome I know it will be a good one.Please respond if there is anyone with similar experiences
Joined: Mar 2010
Hi Grannie Annie,
My thoughts and prayers are with you and your husband. I hope the chemo helps your husband. My sarcoma was on my upper thigh and last year I had two operations and 34 radiation treatments. Because myxofibrosarcoma is so rare, it's hard to find a lot of information on it. Occasionally there are clinical trials that are available. I would consider this option before amputation.
Suzie sunshine (Joni)
Joined: Oct 2011
hi Grannyannie,
By this time I hope your husband is doing fine.
I am in similar situation. I had been cleared for 16 months after having surgery chemo and radiation then showed in my lungs during the routine 3 months chest Xrays. Had bronch, and a wedge of my left lung where the sarcoma was excised, last aug. 3 2011. I will have surgery again on nov. 2 on my right leg (original site) which had recurrence. It is overwhelming.
I am in Ohio, being seen at University of Michigan Comprehensive Cancer Center and at Ohio State University.
Joined: Nov 2009
Hi Suzie
Just had my 6 monthly CT scan check up...Results is still clear....All the best
Chez