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Burns

Skittles
Posts: 17
Joined: Mar 2010

Hi,
well I made it thru 5 1/2 weeks of treatment until the burns got to bad we had to stop. It has been a week in a half since last treatment. During that time they put me on the Fentanyl pain patch. That is one nasty patch.I was very sick from it, the only time during all this treatment that I threw up! after that came to find out I had a UTI. Very painful
That is now under control. I could not stand the smell!My skin is starting to peel, I think that is a good thing?I go see the rad doc tomorrow hopefully we can finish the last treatments, boosts, but did anyone have "stuff" leak out whenever you sat or slept? is it normal? I haven't been able to wear panties because of where the burns are peeling very raw
any suggestions?

Thanks
Lisa

lemonade
Posts: 62
Joined: Feb 2010

The burned tissue was "weepy", but it stopped about 2 weeks out of treatment. It might not have been that long. I was always sitting on a towel at home and/or using panti liners. I slept with a towel under my bum because the burns were oozing.

I bought some boy short panties at Target that were real soft. I wear a size 6 and bought XXL so they would be nice and loose. My radiation tech recommended cotton, but they were too tight in the legs. At home I tried to get as much air as possible to the burns. I usually was in my sleep shirt and sitting on towels, so I wouldn't ruin the upholstery.

The only time I broke down during the treatment was when I used a Fentanyl patch. I drove myself that day to radiation. Before I left, I urinated. It was about week 5. At this point, I had to stand in the shower with a hand-held showerhead and run water over me because it was so painful for my urine to touch all of the burned tissue. Well, I was in a hurry, and I didn't get in the shower and was in a lot of pain. I only live about 10 minutes from the medical center in Houston. I barely made it there. I kept getting dizzy in the car. By the time I made it to the hospital, they put me in a wheelchair. And then I broke down in the middle of the hospital lobby. I boo hooed all the way to radiation. I ripped off that patch after 2 days. I hated that patch, too. I think it was worse than the pain.

On the leakage - I had a monarc sling surgical procedure a couple of years ago for bladder leakage. I had a slight problem with it when I laughed or sneezed. I have been wearing panty liners for years. I am 52. Apparently the monarc sling isn't working very well anymore. I am currently wearing a long panti liner plus another long one cut in half. I was in Target the other day and "sharted". As Jack Nicholson said in the "Bucket List" (movie) - never trust a fart. Also, my gynecologist said it could be some vaginal discharge instead of the bladder. I just put on my 1 1/2 panti liners and I am good to go.

Here's some more fun stuff to watch out for. I was Stage IIIB and I finished treatment October 2009. I just started physical therapy for my hips this month. They hurt all the time. The muscles shortened in the pelvic area. This started mid January where I could hardly get out of a chair without holding on to something. I wish I hadn't waited so long to start, but I didn't know. My radiation oncologist was just concerned about getting his treatment completed, and not so much about the side effects. My radiation techs said I was getting a pretty high dose, so everybody is different. My vagina also shrunk up and shortened. I have had to use a dilator on that and hormone cream.

Just because you are finished with the treatment, doesn't mean there aren't other things to deal with. My friends, especially, don't really understand the major changes and after effects of the chemo and radiation.

Just take it a day at a time, but I wanted to give you a heads up about the physical therapy if your hips hurt. I'm sure it depends on how much radiation you received.

Barbara

cbs6931's picture
cbs6931
Posts: 63
Joined: Mar 2010

As goofy as it sounds these are the only thing i can wear right now - I appropriated several pairs of my sons very old and very soft boxer shorts. Thankfully he is pretty slim so they don't fall off. They feel great. I notice that I am very moist also, but so far none of the leakage problems. One word of caution - make sure that you are taking enough stool softerners if you need them. Something messed me up - not sure if it is the pain killers or something else, the result has been sheer misery. I've decided its better to take too many than too few... My Dr would not put me on the patch due to the issues you two have experienced. I also sleep on a towel. Lots of warm bathes have helped me more than anything else - I've spend alot of time in my tub with the jacuzzi piece running.

Chris3
Posts: 53
Joined: Mar 2010

First I tried mens boxer shorts, but the "butt" was too small and the leg area too loose. The leg holes would get all bunched up under my pants. I found some "boy shorts" in the womens section (Lucky Brand). They fit snuggly, but not too tightly. I wish I had found them earlier in my radiation treatment. I think the leg elastic from my regular panties really aggravated my burns and caused my skin to breakdown even sooner. I ended up in the hospital for 12 days with Stage 3 Radiation Burns. When the Burn Treatment Nurse was dressing my wounds, she had used some gauze "boy shorts." I knew as soon as I got out of the hospital, I needed to find some soft, all cotton boy shorts. I strongly suggest them.

sissy310
Posts: 300
Joined: May 2010

I'm starting week 4 of radiation treatment tomorrow. Right now I have a lot of itching (probably the skin drying out?) and a slight slight burning but nothing more. Does this intense burning just start one day or does it gradually build? I'm wearing boxer shorts to bed now but find that it is somewhat uncomfortable as they do bunch up...maybe I will try the towel only...the part I guess that scares me the most is the burning. My rad doc said she has morphine cream...has anyone heard of that? I also have pain pills to take just in case (which i'm beginning to think is a given to take from hearing everyone's stories).

Chris, did you have all around radiation or the IMRT I think it is called. Just curious. Be well, Marilyne

z's picture
z
Posts: 1250
Joined: May 2009

Hi Marilyne,

I remember the intense burning and I found that my daily bath was very soothing, I also would go get zapped come home home and apply bag balm (used on cow utters), and also given to me by my radiologist, and take a pain pill. I tried not taking the pain meds until I absolutley had to, and at about the start of the 3rd rad week I absolutley had too. These 3 things really helped me. That morphine cream sounds good. I think I would have liked to have tried something like that. I had some itching, but it lasted a couple days and that was it. My cancer was at the anal verge, which is right at the exit point. Now if my itch was higher up, I think that would have been worse. I know other posters have experienced the severe itchiness, and I can't remember what they did, but maybe they will post some info for you. Have a good Monday. Lori

Chris3
Posts: 53
Joined: Mar 2010

I certainly don't want to scare you because everyone's situation is different. I thought I was doing pretty well through Week 4. It was during Week 5 that the wheels seemed to fall off the bus. I bought boxer shorts and started wearing sweat pants because regular pants rubbed too much. Skirts or dresses would have worked, but I didn't have those in my wardrobe. My skin just got really red and raw, especially where the elastic on my panties had rubbed. (I suggest finding "boy short" underwear.) My rad onc wrote me a script for Desoximetasone Cream (corticosteroid) - maybe if I had had the script earlier it would have helped.

Note - I will warn you against one ointment: I was given a sample of Calmoseptine by the rad onc nurse. It felt really good because it is cooling (due to Menthol) but it was next to impossible to get off (due to Zinc Oxide) before my next radiation session. My skin was already raw and I had to rub to get the ointment off so I believe that made matters much worse. So make sure you avoid anything that is moisture barrier ointment because they are the dickens to remove and you don't want anything remaining for your rad treatments.

By the end of Week 5 I was miserable. As disgusting as this sounds, I could only pee while kneeling in a bathtub full of water. They increased my pain meds twice over the weekend but nothing seemed to help. Monday of Week 6 my rad onc decided we needed to stop the treatments in hopes that a break would help. But, late Tuesday evening I started bleeding from the vulva area, so off to the emergency room we went. They said I had Stage 3 Radiation Burns (out of 4). The put me on Dilaudid for the pain. I was in the hospital for 12 days getting wound treatment - they used an oinment called Biafine covered with vaseline gauze. Plus, I couldn't control my bowels or my bladder because they were inflammed and irritated from the radiation. I was a hot mess.

As far as the type of radiation, I'm not sure what kind I had (how can I not know that???) - I will need to ask. I had a pelvic lymph node involved, so I may have had full pelvic radiation.

The good news from all of this is that all that radiation that caused all that trouble blasted the crap out of my anal tumor and shrunk the lymph node tumor down from the size of a lime to residual scar tissue. So, as of my first post-treatment scans, the cancer is gone.

Sorry my story is so scary. I would just do anything possible to avoid irritation in that area. For daytime, I would suggest finding some soft cotton womens "boy shorts" since they do not have any elastic around the legs - I wish I had gotten some from the beginning of my treatment. I slept in a TShirt with no panties to give my skin a break, and slept on a towel or a quilted pad to protect the bed from any leakage.

I wish you the best for your treatments and for a successful outcome.

Chris

462lt's picture
462lt
Posts: 118
Joined: Jun 2010

I thought I was doing good with just the misery of going to the bathroom very bloody and feels like pooping glass. I have had 18 treatments and have 10 to go. I thought maybe I would get to skip the burn part I guess was just kidding myself.Sorry but this sucks..Laura

z's picture
z
Posts: 1250
Joined: May 2009

Hi Laura,

I remember the pooping glass feeling. I know how that hurts. I know that some posters have taken stool softners to help with that. I never did, I just didn't want anything else in my body. All I did was take the pain meds and have a water bottle by the bathroom and use that while going. Not that it would take away the pain from the inside, but it was just soothing. You are more than half done, which is great. It won't be too much longer and the healing will begin. I hope you will fly through your final 10. Lori

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mp327
Posts: 2820
Joined: Jan 2010

The pooping glass feeling--oh, how I remember that! I'm sorry you are having to experience all of this. What helped me get through it was just constantly reminding myself that it was not forever, but actually only a short snippet of time in my life. However, I do admit that time passes slower when in pain. I know some people have gotten prescriptions for lidocaine cream which can be applied to the anal area prior to a BM. I don't know if this will ease the pain for you, but it might be worth a try. I wish you the very best and will keep you in my thoughts and prayers. You can get to that finish line!

sissy310
Posts: 300
Joined: May 2010

Regardless of how some of this sounds scary and painful, I am glad you all are being honest about it. My husband and I disagree on one thing: I would rather KNOW what could happen and be prepared and he would rather be left in the dark and not know. As I'm starting week four I know some of this stuff will shortly occur so I am really paying close attention to what you are saying. I meet with my rad onc on Weds and I might ask her for that morphine cream early just to have in my bag of tricks. I will also ask her about that cow udder cream.

cujuja4evr
Posts: 106
Joined: Jul 2010

If I'm not mistaken, you responded to one of my posts and told me about lidocaine. Well, HONEY, I love you!!! I have had several BMs since we talked and I used the lidocaine and OMG I feel like a new person. I was more surprised at the pain I didn't feel!!!! I was sitting there, holding on for dear life, just waiting to give birth to a set of twins through my butt and NOTHING...but small pieces coming out quickly and quietly - NO PAIN. LADIES/GENTLEMEN - PLEASE TRY LIDOCAINE. IT WORKS! Thank you so much. For once, I can have a BM without having my face all screwed before I even sit on the toilet. Seeing all of these posts about the pain experienced with radiation has brought back some awful memories and I could cry when I look back. I never thought that I would get through it, but I DID! Everyone else here going through it WILL make it.

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mp327
Posts: 2820
Joined: Jan 2010

Three cheers for Lidocaine cream! I'm so very glad to hear this is helping you! Had I only had this information when I was in treatment, I could have saved myself a lot of excruciating pain. I don't remember who told me about this, but I'm glad I could pass it on to you. Here's hoping there's no more glass in your BM's from here on!

sissy310
Posts: 300
Joined: May 2010

18 treatments sound like a lot before all this happened no? Or is that pretty common to start feeling this around week four or so? Did you have all around radiation treatment or IMRT? My rad onc said that the all around is not as intense as IMRT but I'm thinking wait, more of my body is being zapped, wouldn't that expose more to the radiation damage? Oh boy. I have a feeling Laura I'm not too far behind you with pooping glass. Great. I thought the bleeding hemi's and Harvey the tumor were bad enough. I guess the upside to this is we might be in pain for awhile but think about the tumor and what he is going through...that should give us some consolation. It does me anyway. I hope that this goes quickly for you, Laura and things will get better. Marilyne

mp327's picture
mp327
Posts: 2820
Joined: Jan 2010

As for the radiation, IMRT vs. another kind, the IMRT, if given like mine was, will cover the entire pelvic area to start. Then at some point, the rad onc will shrink the treatment field, perhaps a couple of times, with the last zaps being directed only at the tumor. This way of delivering the treatment insures that any rogue cells that may have migrated away from the tumor will be zapped. My treatment field was reduced twice during my 30 total treatments. The tumor was getting zapped the whole time and received the most radiation, which makes sense since that's the source of the cancer. As for how another type of radiation treatment differs from this, I'm not sure. I hope this makes sense.

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JDuke
Posts: 443
Joined: Nov 2009

all the good advice given. Heed all the valuable suggestions, water bottles, boy shorts or VERY big granny panties, soaking baths, creams (but remove before radiation), stay hydrated to minimize the effects on your kidneys and bladder, stool softeners (I had relentless diarhea so I didn't need them), Benedryl will help you sleep (ask your Onc. first) and it really helped me with itching.

In my opinion the most important thing is to remind yourself that you can and will get through this. Once treatment is complete and the healing starts it will be amazingly swift.

Prayers for your strength and determination.

Joanne

sissy310
Posts: 300
Joined: May 2010

Hi Martha - I think I have full pelvic radiation as it goes all around my body - and they zap me in 8 quadrants around the pelvic area front and back. They told me today that the last three rad treatments will be focused on Harvey alone and called them 'boosters'...so I'm not sure what I am having. Sometimes I feel like the sun with the planets rotating around me (me on the table and these four round 'machines' circling my body. One I know is a CT scanner and the other two I think are flat and do xrays in case the CT scanner isn't working and then there is the radiation machine that makes the zapping and humming sounds. I may ask if I can take a picture of it when my last rad treatment is done...I will bribe them with cupcakes first. lol

sissy310
Posts: 300
Joined: May 2010

I am receiving the IMRT - I asked the last time I was there and from your description, it sounds like I am getting the same type of treatment. It will be interesting to see with these last 9 radiation treatments how they do this...if they shorten the area or focus only on the tumor area. Take that Harvey, I hope you are suffering and squirming and down to the size of a shriveled up prune. :-)

pjjenkins's picture
pjjenkins
Posts: 173
Joined: Mar 2009

One of the big differences I see in treatment in reading these posts is the way doctors handle pain alleviation. I actually started out before diagnosis with pain not fully controlled by over the counter meds though 5 mg. of oxycodone handled it easily.

My radiation oncologist at the outset told us (my husband and me) that pain control was a major factor in getting through this treatment. Both my oncologists encouraged me to use what I needed as I felt I needed it. I don't remember how fast I increased the dosage nor how high it actually got. I had both oxycodone and oxycontin in varying strengths. I know at the peak of things, I really needed quite a bit. But since about 5 weeks post treatment, I have not needed any prescription painkillers.

Laura, I think my doctors were right. Don't hold back on the painkillers.

My thoughts and prayers go out to all who are currently undergoing treatment!

Priscilla

Chris3
Posts: 53
Joined: Mar 2010

My doctors all said it was important to "get ahead of the pain" - don't wait until you are already hurting to take the meds because it is harding to get the pain under control.

Laura and Marilyne, we're all pulling for you!

Chris

sissy310
Posts: 300
Joined: May 2010

But when do you know when that point is? If I have to say I have pain it is so minimal right now (itching is worse) -- a few weeks ago I can say I had pain and took the pain pills and they helped a lot. Then I did not have pain anymore. that's when I had the fevers too. Both stopped at the same time. Perhaps I have not hit that point yet or maybe I should take a pain pill anyway and see if that makes a difference.

Laura, we will get through this - one step at a time. Thanks everyone for your thoughts and cheering on and knowledge. Be well, Mariyne

sissy310
Posts: 300
Joined: May 2010

Hi Laura - I too thought I was going to skip the burn part...so much for that huh? Yikes, no kidding it sucks. My only consolation is that if I'm miserable, then Harvey my tumor must be just as miserable.

cujuja4evr
Posts: 106
Joined: Jul 2010

You may not believe this, but when I had extreme itching...I mean itching so bad that I cried because it felt like I had ants crawling under my skin throughout my pelvic area. I felt like I was climbing the walls because I had never had this type of intense burning and itching before. I would be laying on the bed, watching TV, and then all of a sudden I would jump a mile out of bed and grab what I could of my pelvic area and I went into panic mode because the itching was on the inside, not the out. I went through this madness for a couple of weeks! Things had gotten so bad that the radiologist felt that the radiation may have damaged my nerves and she was crazy enough to prescribe anticonvulsant medication!! Luckily, once I picked up the medication and read the warnings and side effects, I had my husband immediately return the medication to the pharmacist who gave me a refund without question. My mother went to the Pharmacy at Target and spoke to the Pharmacist who suggested Benadryl. Guess what? No sooner than I swallowed the two pills, the itching stopped and since Benadryl causes drowsiness, I slept like a baby for the first time since my treatment started! It sounds simple, but sometimes it's the simple things that work for the most difficult problems. Please try it and let me know if it worked for you too.

sissy310
Posts: 300
Joined: May 2010

Okay, I'm heading out to buy some Benadryl. The itching is horrible as from your description I know you know what I mean. I'm up half the night because I keep getting cold compresses made from clean washcloths and just lay it on top of me, soothes me a little bit but holy cow!! I am going to start benedryl and see if that works. If not, maybe it will put me to sleep so I do not care about the itch. Isn't it amazing how prescriptions are given out - anticonvulsant meds? How is that supposed to help with an itch or even nerve damage? I don't understand. Maybe it soothes the nerves but I'm glad you gave it back. Be well, Marilyne

cujuja4evr
Posts: 106
Joined: Jul 2010

Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!

sissy310
Posts: 300
Joined: May 2010

I have been using the benedryl now for a couple days and it does help. I have to take two pills. One does not seem to do the trick totally. Plus I've been using some hydrocordisone (Sp?) in the pelvic area. I'm now going into week 6 and the anal areA pain has gotten worse over the weekend - had my PICC line removed (yeah, freeeeeedom from the chemo pack! and thought oh maybe I will have more of a relaxing weekend - until I went to the bathroom this morning! HOLY MOLEY...

I remember reading other posts about how one gal when she went to the bathroom had to lay down until the pain subsided. Well that was me this morning. I literally crawled from the bathroom to the bed and lay in a fetal position for a little bit. Did take a pain pill but unfortunately, took it right before I had to go to the potty (not realizing that it would cause this much pain) Now I will simply take the pain pill as prescribed and hope that it at least takes the edge off. With 9 radiation treatments still left to go it's a bit unnerving to think this might get worse. However, I had many people come in here and tell me to stay on top of the pain, take the meds and moisturize, sit in a sitz bath, pat dry, etc.and with their expertise and first hand knowledge I am listening intently. I do walk around the house now in a sundress and no underwear and sleep without underwear - it's just more comfortable. I put a couple towels under me just in case. I see my radiologist and oncologist this week and may ask for some lidocaine cream. I mean what can it hurt. Anything we can use that will not cause infection or make things worse down there but rather give us some peace and pain free moments - why not?

Be well. Marilyne

cujuja4evr
Posts: 106
Joined: Jul 2010

I never thought that I'd ever get the opportunity to talk to others who knew EXACTLY what I was talking about. I suffered terribly when I had a BM. OMG, I did exactly the same thing you did - practically crawled from the bathroom to the bed and laid in the fetal position while sobbing uncontrollably. But, you know what??? There is a light at the end of the tunnel! I can look back and remember the pain, but now I look forward which such hope and positivity (BECAUSE OF THIS SUPPORT GROUP!) and feel that the worst is over and now I am truly in recovery. The BMs for me now are no where near as bad because I'm using lidocaine and I feel pretty much like I used to. When I feel like I have to go to the bathroom, I go...just apply a little lidocaine over, around, and a little in the anus opening, pick up a magazine and relax and let nature takes its course. This is the most normal I have felt since my treatments have ended. I know you still have some more treatments to go, but it will get better over time. Hang in there and best wishes to ya!

Blessings!
Judy

sissy310
Posts: 300
Joined: May 2010

Thanks for the support and giving me some new information that it can get better. I wrote on top of my notebook that i bting to the dr visits "LIDOCANE" to remind me to ask for it. Thanks Judy.

sissy310
Posts: 300
Joined: May 2010

Thanks for the support and giving me some new information that it can get better. I wrote on top of my notebook that i bting to the dr visits "LIDOCANE" to remind me to ask for it. Thanks Judy.

cujuja4evr
Posts: 106
Joined: Jul 2010

Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!

lizdeli's picture
lizdeli
Posts: 520
Joined: Jul 2009

It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

The good news is that it went away 3 days after my last radiation treatment.

Liz

lizdeli's picture
lizdeli
Posts: 520
Joined: Jul 2009

It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

The good news is that it went away 3 days after my last radiation treatment.

Liz

lizdeli's picture
lizdeli
Posts: 520
Joined: Jul 2009

It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

The good news is that it went away 3 days after my last radiation treatment.

Liz

cujuja4evr
Posts: 106
Joined: Jul 2010

It's amazing how so many of us are going through and have gone through the same experience. Listening to you and others, I feel like I've been in a reality show where you had cameras installed throughout my home recording everything that was going on. You have my life down to a Tee! I hate the fact that we are all going through this, but I love the fact that we are not alone anymore! Hope your recovery goes well for you. I'm feeling great today! I take this one day at a time and each day seems better than the day before!

Hugz
Judy

P.S. I see that I'm not the only one sending multiple posts by mistake! Hee! Hee! On one board, my computer went crazy and I kept hitting the send button and it posted about 9 or so of the same response. :-)

sissy310
Posts: 300
Joined: May 2010

Good to hear that you are doing better each day and I pray that you continue to do so - that gives me hope - it's just a matter of now getting from point A to point B and finishing up the last few weeks. I agree, it is wonderful to be able to come in here and vent and see that his is a common occurrence and others have also gone through it. It does help.

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nonichol
Posts: 114
Joined: Jul 2010

I have begun having the itch as well. It has been just a night, which is strange, but I thin that is when cells trjuvenate most. I dunno know, not a scientist. Anyway now hiving them today as well as last night. Bendaryl make me nervous rather than sleepy. So I just tried childrens Benadryl feel a little better. OMG. Thanks fod for this site, especially when I had an accident yesterday as I was walking across the room, Thankfully I was at home. If I hadn't read about people having accidents it would have totally freaked me out. I had my accident at noon and knew why, but still late last night found myself dowm a bit from it as I like to have control of big issues, let alone minor ones like BM control.
Itchy, fatigued and crappily,
Norma

azkookie18
Posts: 22
Joined: Jul 2010

You'd mentioned you were also a stage iv.
Just curious as to what your treatments have been to date?

nonichol's picture
nonichol
Posts: 114
Joined: Jul 2010

AZ,
Just having what I presume is standard txment. IMRT radiation for six weeks, it was going to be five weeks, but Doc added another week after Stage iv confirmed. Two weeks chemo with mytomycin and 5fu. Chemo seems to have affected my memory immediately, which is disconcerting to say the least. Hoefully it will go away shortly after txment.
Norma

pjjenkins's picture
pjjenkins
Posts: 173
Joined: Mar 2009

Before you know it you will be on the other side of treatment with us! Keeping you in thoughts and prayers...PJJ

462lt's picture
462lt
Posts: 118
Joined: Jun 2010

Yea had my last radiation treatment today. Put a fork in it I'm done. Got on top of the pain with a little help from my regular doctor. Makes such a difference. I also got a UTI and got that under control now i'm oozing alitte and I know the itching is going to start soon feel a little treak every now and then so thanks for the info about benadrly. See my surgeon on the 26th hoping the tumor shrunk enough only need to remove scar tissue. I have rectal cancer that is 1cmm from the anal verge if not I am in big trouble don't want a colostomy. Thanks again for all the info on this anal site radiation treatment more like your experience than colon cancer radiation. Good luck to everyone. Laura

z's picture
z
Posts: 1250
Joined: May 2009

Hi Laura,
Good for you and completing tx. I hope that you'll only have to remove the scar tissue, that would be great. Now let the healing begin. I wish you well. Lori

mp327's picture
mp327
Posts: 2820
Joined: Jan 2010

Hi Laura--

I'm so glad to hear your radiation is done. I send you best wishes on your appt. on the 26th. and hope that all news will be good for you. Please let us know. Here's wishing you a quick recovery from treatment.

cujuja4evr
Posts: 106
Joined: Jul 2010

I'm so glad to hear you're finished your last treatment. I cried on my last day. I was given a Guardian Angel pin, a survey to complete, and some aftercare instructions. I remember that day well. I never thought that the day would come where I wouldn't have to lay on that table and hear that machine. Welcome to recovery! Take things slow...one day at a time. You will get stronger and feel better as each day passes!

Judy

nonichol's picture
nonichol
Posts: 114
Joined: Jul 2010

The nurse gave me a tea receipe for a sitz bath using black or green tea. 3 tea bags a Quart of water, brew the tea. then I put it in my butt bucket add tap water let it cool a bit and sit in it. OMG it actually hepls with the itch and irritated skin by drying it up. My skin looks and feels much better. Try it, really Ass Tea is good for you.
Norma

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