Apr 24, 2010 - 5:10 pm
I have been through a lot this past month, certainly noting I expected. Had 2 colonscopies and path reports came back negative although my local Dr. sent me to Mayo Clinic becasue of what he feared to be familial polyposis. I had genetic testing and it proved to be negative,but due to the large amount of polyps on the colon I was told I needed surgery. I had my entire colon removed. The plan was to make a J-pouch out of the samll intestine and reverse the ilestomy in about 3-4 months. When the surgeon was in there, he removed the colon but also removed the rectum as there was a large cancerous tumor there. He also removed 49 lymph nodes and fortunately, only 1 was affected. I had the MRI, the CAT scan and a PET scan and they all came back looking great. I was told I need to take 6 months of chemo as a preventative. I am having my port installed on Mon. and begin treatments on May 4th. One of the drugs they are giving me can cause neuropathy. That scared me. Tingling in toes and fingers, must drink all my liquids at room temp. I'm just on overload.