Apr 20, 2010 - 9:31 am
Hi all, I am new here but an old hand on the Rare Cancer Alliance anal cancer forum.
I am interested to know what states my fellow patients live in. It seems to me like there are very serious few cases out west, where I live (SoCal).
If you are willing to chime in with your general location, I'd love to know. I am NOT a stalker :) MP327 can vouch for me..I think.
I was initially treated by an onc in private practice, who knew my parents. He chose a brilliant, effective alternative chemo after doing some EXTRA research looking for something new for liver mets from SCC, and it was the right one for my liver mets: Carbo, Taxol, and Xeloda. But his office was understaffed and it was at times very hard to even schedule a chemo!
I transferred to City of Hope in Duarte, a major, well funded center. The care was so well coordinated that it was astonishing! But they were shocked and mystified at my San Diego guy's choice. They had to acknowledge though that he fixed my liver and it's stayed fixed for almost two years now. But I could tell they'd have given me conventional treatment had I gone to them first.
Curious also as to whose been to the biggies like MDA, Sloan-Kettering, etc.