really discoouraged

azgrandma
azgrandma Member Posts: 609 Member
edited March 2014 in Ovarian Cancer #1
got blood work back and white count is still very low can not get chemo
monday i will be four weeks behind schedule on chemo
please pray whtie count will come back up

Comments

  • leesag
    leesag Member Posts: 621 Member
    Neulasta?
    Have they been able to give the Neulasta or neupogen shots to stimulate white blood cell production? I get a Neulasta shot the day after chemo to bring up my white blood counts.

    I'll keep you in my prayers!

    Hugs!
    Leesa
  • msfanciful
    msfanciful Member Posts: 559
    I'm wondering that also.
    I

    I'm wondering that also.

    I would usually receive the Neulasta shot at least 24hrs after my chemo.

    It really seemed to boost the wbc. So have you been receiving these shots?

    Please find out and let us know and why or why not, something is just not adding up here.

    I'm going to see my oncologist Tuesday and I'll be sure to ask about this.

    I'll keep praying,

    Sharon
  • azgrandma
    azgrandma Member Posts: 609 Member

    I'm wondering that also.
    I

    I'm wondering that also.

    I would usually receive the Neulasta shot at least 24hrs after my chemo.

    It really seemed to boost the wbc. So have you been receiving these shots?

    Please find out and let us know and why or why not, something is just not adding up here.

    I'm going to see my oncologist Tuesday and I'll be sure to ask about this.

    I'll keep praying,

    Sharon

    got the shots
    i am given neulasta the day of chemo
    this time 3 weeks after chemo had to get 2 pints of blood
    the next week went 3 days in a row for neupagen shots for a totol of 3 shots, it brought it up very little
    they sent me to hematologist and will find out next week what he is gong to do with me
    red and white is low as well as hemoglobin and hemacrit
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    Praying your blood counts go up
    I can feel your dissapointment and totally understand. Are you drinking boost or ensure each day to help your body rebound, along with a vitamin and iron supplement. I just learned we should take vitamin c with Iron so we get more from it. I know my body sometimes just tells me I have to take a break, whether I like it or not.(I know that doesn't help hearing that.)
    nu
    We well all focus on your bone marrow kicking in and building them blood counts back up. It well happen. :-) Hugs ♥ Prayers Bonnie
  • arbor3
    arbor3 Member Posts: 103
    HELLO
    Hi

    Don,t know if it helps or not.!!!! I read on this site that GATORAID can help boost the white cell count. I am on TOPOTECAN, which is very hard on the white and red cell counts. After my first round of the chemo, I caught a sinus infection and had to be hospitolized, my counts were so low. I start my fifth round on monday and my red cells have been down but my white cell count has been holding. I having been drinking two 20oz bottles of gatoraid a day.
    Don,t know if it is keeping my white count up but I will keep drinking until I am through with the chemo.

    Dinora
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    arbor3 said:

    HELLO
    Hi

    Don,t know if it helps or not.!!!! I read on this site that GATORAID can help boost the white cell count. I am on TOPOTECAN, which is very hard on the white and red cell counts. After my first round of the chemo, I caught a sinus infection and had to be hospitolized, my counts were so low. I start my fifth round on monday and my red cells have been down but my white cell count has been holding. I having been drinking two 20oz bottles of gatoraid a day.
    Don,t know if it is keeping my white count up but I will keep drinking until I am through with the chemo.

    Dinora

    Don't know about Gatorade,
    Don't know about Gatorade, but one of the side effects of Lithium is an increase in white blood cells. That may be a bit extreme, however.

    Carlene

    ETA....I have never taken Lithium, but I had a son-in-law who took it for a while. (Not long enough, however.) I just remember reading the insert and the part about white blood cells.
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    arbor3 said:

    HELLO
    Hi

    Don,t know if it helps or not.!!!! I read on this site that GATORAID can help boost the white cell count. I am on TOPOTECAN, which is very hard on the white and red cell counts. After my first round of the chemo, I caught a sinus infection and had to be hospitolized, my counts were so low. I start my fifth round on monday and my red cells have been down but my white cell count has been holding. I having been drinking two 20oz bottles of gatoraid a day.
    Don,t know if it is keeping my white count up but I will keep drinking until I am through with the chemo.

    Dinora

    gatorade
    Dinora, gatorade is great for you as it gives your body many electrictrolites,,, I am suppose to drink at least 32oz while healing from surgery. It also keeps you hydrated so you are not dealing with dehydration. Wise recommendation :-) Hugs ♥ Prayers Bonnie
  • Susan523
    Susan523 Member Posts: 231 Member
    I had the same problem...
    all of my chemo was delayed this last round; I was supposed to have 6 treatments completed in December, but due to the treatment delays (low white cells & red), I didn't receive my 6th treatment until Feb 9th. And a week later, I had to have 2 pts. of blood.

    Try to be patient. I was also getting Epogen shots to raise the cells, but it didn't help a whole lot.

    Praying for you~ and Gatorade can't hurt. I drink it too.

    ~Susan xoxo
  • catcan
    catcan Member Posts: 119
    praying
    Praying for you. Hope the counts go up. I also drink 32 oz of gatoraid per my nurses recommendation. it can't hurt and as previously said it helps the electrolites.

    Hugs

    Cat
  • msfanciful
    msfanciful Member Posts: 559
    I too drank gatorade (orange
    I too drank gatorade (orange was my most tolerable).

    It seemed to keep my energy up. Also look into ensure or boost, these were my staple drinks, but they did help.

    They will find out what's going on with your counts.

    Sharon
  • BonnieR
    BonnieR Member Posts: 1,526 Member

    I too drank gatorade (orange
    I too drank gatorade (orange was my most tolerable).

    It seemed to keep my energy up. Also look into ensure or boost, these were my staple drinks, but they did help.

    They will find out what's going on with your counts.

    Sharon

    boost
    I agree with the boost or ensure, I drink it each day to give me the necessary nutrietns to help my body recover. Boost is best to me. :-)
  • azgrandma
    azgrandma Member Posts: 609 Member
    BonnieR said:

    boost
    I agree with the boost or ensure, I drink it each day to give me the necessary nutrietns to help my body recover. Boost is best to me. :-)

    will give it a atry
    i like the fruit punch gatorade but just can not stand boost it is so vitamin tasting
    i take slow fe iron and streess tabs, just started back on the stresstabs, they are giving me more energy

    the darn muscle spasms are hard for me to deal with

    will try the gatorade thanks for letting me know
  • NCEllen
    NCEllen Member Posts: 115
    azgrandma said:

    will give it a atry
    i like the fruit punch gatorade but just can not stand boost it is so vitamin tasting
    i take slow fe iron and streess tabs, just started back on the stresstabs, they are giving me more energy

    the darn muscle spasms are hard for me to deal with

    will try the gatorade thanks for letting me know

    Praying that numbers will come up
    Hi - your body really took a whacking with the chemo, but will heal and those numbers will come up so you can be on your way to finish the rounds! I still try to stay hydrated and I like Gatorade and lemon Crystal Light - really cold with ice (lots of Crystal light flavors to choose feom). I used to enrich my Boost w/frozen yogurt for the milkshake effect - esp. chocolate and would add a touch of left over coffee to a choc. instant breakfast for some mocha flavor. Been experiencing calf muscle cramps lately also- irritating!
    Good luck, prayer and hope you get your numbers up soon. Ellen
  • leesag
    leesag Member Posts: 621 Member
    azgrandma said:

    will give it a atry
    i like the fruit punch gatorade but just can not stand boost it is so vitamin tasting
    i take slow fe iron and streess tabs, just started back on the stresstabs, they are giving me more energy

    the darn muscle spasms are hard for me to deal with

    will try the gatorade thanks for letting me know

    I'm with you on the boost!
    I'm with you on the boost! My doctor recommended Carnation Instant Breakfast Drink, which I love! It tastes like chocolate milk and has 20% of the Daily Recommended Protein:)

    Still praying!

    Leesa
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    azgrandma said:

    will give it a atry
    i like the fruit punch gatorade but just can not stand boost it is so vitamin tasting
    i take slow fe iron and streess tabs, just started back on the stresstabs, they are giving me more energy

    the darn muscle spasms are hard for me to deal with

    will try the gatorade thanks for letting me know

    vitamin c with your
    I found out i shoud be taking vitamin C with the iron as it helps our body absorb it better. hope it all works for you
  • azgrandma
    azgrandma Member Posts: 609 Member
    BonnieR said:

    vitamin c with your
    I found out i shoud be taking vitamin C with the iron as it helps our body absorb it better. hope it all works for you

    neupagen
    jut finished 3 rounds of neupagen shots, get tested monday so pleae pray numbers will be up.
    i as so discouraged as not only is whte down, red, hemacrit, hemaglobin and 2 other things do nto know what they are.

    Kind of scarry

    ps i am drinking the gatorade now
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    azgrandma said:

    neupagen
    jut finished 3 rounds of neupagen shots, get tested monday so pleae pray numbers will be up.
    i as so discouraged as not only is whte down, red, hemacrit, hemaglobin and 2 other things do nto know what they are.

    Kind of scarry

    ps i am drinking the gatorade now

    Praying
    I am and have been lifting you in prayer. Let us know on Monday how it goes and also talk to your doc about maybe spacing the chemo out a little further. I know its scary but I do that a lot. Like on carbo they wanted every 3 weeks, but I went every 3 1/2 - 4 weeks instead to give my body more recovery time. Hugs ♥ Prayers Bonnie
  • azgrandma
    azgrandma Member Posts: 609 Member
    BonnieR said:

    Praying
    I am and have been lifting you in prayer. Let us know on Monday how it goes and also talk to your doc about maybe spacing the chemo out a little further. I know its scary but I do that a lot. Like on carbo they wanted every 3 weeks, but I went every 3 1/2 - 4 weeks instead to give my body more recovery time. Hugs ♥ Prayers Bonnie

    9 weeks
    tomorrow it will be 9 weeks since i had any chemo
    will be so behind
    get blood tested again in morn
  • LPack
    LPack Member Posts: 645
    azgrandma said:

    9 weeks
    tomorrow it will be 9 weeks since i had any chemo
    will be so behind
    get blood tested again in morn

    behind
    I know how you feel. I will be going Monday, May 3rd for a seconde opinion regarding my counts.

    Sorry to hear you have not recovered yet. Have you had any transfusions?

    Living for Eternity,
    Libby
  • azgrandma
    azgrandma Member Posts: 609 Member
    LPack said:

    behind
    I know how you feel. I will be going Monday, May 3rd for a seconde opinion regarding my counts.

    Sorry to hear you have not recovered yet. Have you had any transfusions?

    Living for Eternity,
    Libby

    yes
    had two transfusions and 2 sets of three shots