I just had surgery for oral cancer. The cancer was under my lower front teeth. This was #4.
I had wanted to have my remaining teeth pulled but was advised not to because I have a neurotic jaw. I got that because of having two years of intravenous Zometa. followed by Boniva. I was put on antibiotics to help with the pain, but my mouth hurt more and more. My surgeon kept doing biopsy's and they would come back ok,Then one came back malignant. His suggestion was to replace my jaw bone. I chose to have a lesser surgery that took out the teeth and some of the bone. He told my family that he thought that I had made the right decision and said that he had gotten all of the cancer and that I would not need radiation.
When I went for my 6 week appointment he said that he wanted me to have radiation. there are so many things that I am confused about. I won't even go in to those. Also I have a pituitary
adenoma. They want to remove that as soon as possible. He thinks I should do the radiation before the brain surgery. I have decided not to do the radiation because from what I know about the side effects I just don't think I would have quality of life. I own an Italian restaurant and I am the chef. I wouldn't be able to taste or probably eat my own food. Now I know that some of you are thinking that my life is more important than my food and my restaurant and it truly is !! I don't want to die but I want to live not exist.I could really use some suggestions or just thoughts. I know I have been blessed in so many ways and there are those of you that are a lot worse off than me and I hesitated to even write this because I don't want to sound like I feel sorry for myself, well some times I do, but then I pray a lot and get over it Anyway thanks for reading this and God Bless all of you beautiful souls that have suffered from any form of this horrible disease......Mary Ann