Apr 06, 2010 - 2:02 am
I apologize in advance if there is anger in this message, however I am so frustrated.
Around 2003 I had MOH's surgery on my right leg, to remove DFSP. Although the tumor wasn't excessively large, the tentacle like projections of the DFSP extended far beyond the actual lump.
Since my initial surgery, I moved away from my hometown, and I am now seeing new doctors.
Most recently, it has been about 2 months now. I have this mass growing on my face. It is growing and replicating fast. I completely fear it is DFSP spread to my face.
I want to cry. My dermatologist at UCLA has admitted to knowing nothing about DFSP. My oncologist at UCLA also seems to be completely in the dark when it comes to this disease.
I feel like I know more than they do. They have no interest in running tests, they totally discredit all my concerns.
Anyway, I have an appointment to have my face looked at. I'm totally in fear. If this has spread to my face, then there is no way I am going to have the willpower to survive. I can't stand scars. If my face must be cut into, I will commit suicide. I'm not kidding.
Also if anyone out there has DFSP, don't listen to doctors who say it grows slowly. My DFSP was rapidly growing in size. This growth on my face has doubled in size in just one month.
I don't know what else to do. Besides UCLA where the heck do I go. Does anyone know any good doctors in the los angeles area, or even anywhere in California, I will travel.