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a miracle happened.

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

Hi Everybody. I cant write much here, I am home from the hospital,and very sore and tired. The good news is I do not have cancer. My ent got me opened up, started taking out stuff, sending stuff off to the lab, including my lump. The first results came up negitve for any cancer. Still she said she had to take out the lump, tissue, nerves, and some lympm nodes. Tuesday she called me at the hospital and there is no cancer in any of it. She asked the pathologist why my needle biopsy showed cancer cells. He said the begign tumor I have sloffs off cells that can make a false positve. I forget the name of the tumor but usually happens in people in their 30s. This is a miracle, so even if I had to go through this pain at least I am healthy.
Mary

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

I can't believe it!! I am SO glad for you.
I have been thinking of you all week.
After all this time..all the worry you had....

Please stay on the site anyway!!

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Mary- have you ever had a more excellent surprise in your life? I mean- WOW! Know that I am so very happy for you. Does kinda lead one to wonder if our Prayers...Yeah, Mary, anything is possible. Now you are testimony to the fact with your experience. Go forward with it, Mary, into the rest of your life. As always, with me...

Believe

kcass

Hondo's picture
Hondo
Posts: 5782
Joined: Apr 2009

Mary

I am so glad to hear the news, Now you can believe in the POWER of PRAYER

God bless and keep you

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Hi Mary,

Well you must be one happy and relieved lady !! Good for you. I was always concerned with your diagnosis from your first post ;

"I have always felt fine and healthy. I have been a vegetariann for 10 yrs and then a vegan." (I asked 'Why would this person get cancer ??")

Maybe it has really paid off. Anyway I am very happy for you.

Regds
Scambuster

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Your post has brought tears to my eyes. I've included you in my prayers every day for the last several days. Not that the prayers of a jaded old newsman tipped the balance in your favor, but there were a lot of other people out there pulling for you as well. It's so wonderful to know, once again, that prayer works.
God has blessed you.

--Jim in Delaware

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

But the happiness way outweighs the jealousy. This is fantastic news, Mary - you have been blessed, and I'm glad to know about it; very happy for you. Heal, and enjoy your family.

- Pam

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Congrats Mary. Great News, so happy for you....Please keep us informed about your progess. Dennis

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

Oh Happy Day!!! What an answer to your prayers!! I thought that to avoid false positives,
they did more than one test on biopsies and/or initial tests. wow, that must have really
threw you!!
my cousin just found out a couple of days ago, that for a year and a half, he didnt have ALS, but a case of lime disease. He begins treatment for that this week. He was very shocked as well.

An undescribable relief Im sure for you Mary!!! Im so happy for you!!!

Skiffin16's picture
Skiffin16
Posts: 8086
Joined: Sep 2009

Great News Mary....

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

So happy for you Mary.

MarineE5
Posts: 754
Joined: Dec 2005

Mary,

Remember awhile back, you questioned why it was going to take soooo long to be operated on ? Over a month of mental strain and worry.

Is it just a schedule back log or was it in God's hands to have this happen so close to Easter ? Only you will know for sure. Many Prayers have been sent out for you over this long time. I know that when I first got this cancer, I asked God if He didn't mind, I'd like to see my 1st grandson play baseball, he was only 5 months old at the time. I knew it was in His hands. My one Grandfather died 2 months after I was born. Was history about to repeat itself? I am still here and hopefully will be here to see my grandson play baseball in College. He starts Tee Ball in a few weeks : )

The Sun is very bright here on the East Coast, or is that your smile that is making it so bright here.

Enjoy your Easter with your family and a speedy recovery to you.

My Best to You and Everyone Here

SIRENAF42's picture
SIRENAF42
Posts: 204
Joined: Oct 2008

Once you are rested and feeling better, I want to see video of the Praise God, Happy Dance :)

Ohh Happy Day!

Sirena

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

Thankyou all for your prayers. This has been such a miracle for me. It was all the prayers, even from myself, I hadnt prayed in years, but I did and so did so many people.
My husband had come into my room after surgery and told me he talked to the doctor, he said the operation went shorter since they couldnt find cancer. I thought he had heard wrong until my doctor called me later. At that time she was still waiting for the final pathology. When she called me Tuesday afternoon I just kept saying are you 100% positive????? Even yesterday when she came into take out my drain, I said are you sure nothing was cancer in my neck? I have to get the name of the tumor I had, has a long name and I forgot it already. I guess because if the needle biopsy,she had to take alot of tissue out, since it takes time for the final. Now my left ear is numb and part of my upper chest, but thats ok. I am feeling pretty good today, throat is sore still.
I will continue to pray for all of you, to heal and be cured,I will stay on here for awhile, maybe someone else will be like me and I can be a help to them.
Mary

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Awesome news

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I can't tell you how happy I am for you. There should be more stories like yours on here, it made my day and made me smile.

Take care,
Glenna

Skiffin16's picture
Skiffin16
Posts: 8086
Joined: Sep 2009

You could go ahead and get a dose or two of chemo and a few radiation exposures bolted to the table if you realllly want to get the full effect...LOL...April Fools.

Glad you have been spared the full course.

John

pattyanny's picture
pattyanny
Posts: 523
Joined: Jul 2009

What fantastic news Mary! You have been on my mind, and in my prayers! I am overjoyed at your good news, and I know you must be too! Stay healthy, and live everyday to the fullest!
Thank you Jesus! Patty

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I am at a friends house. I have no internet right now. I have been praying for you all week. Imagine my suprise to see this today! Mary that is wonderful. I am crying I am so happy for you.

I hope everyone is doing okay. Thinking of all of you.

sweet

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

Sweet-I was wondering where you are.

nicki74
Posts: 55
Joined: Feb 2010

Mary, I am soo happy for you! that is absolutely wonderful news!

the power of prayer is amazing!

Fire34
Posts: 352
Joined: Feb 2010

Mary
Like Stacy have been wondering where you were at. Then come to find out the great news you received. Very happy for you
Dave

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

A week today since my neck dissection and finding out I dont have cancer at all. I am happy my ent didnt go all the way and do a radical dissection like she planned. When she got the news from pathology that it most likely wasnt cancer, she didnt take out as much. As it is I have a numb ear, numbness in my jawbone and collarbone and upper chest. Skin of my scalp above my ear is tender. But all that doesnt matter, I dont have cancer. I am feeling wonderful.
Thankyou to all of you for being here for me. You all kept me from getting so stressed out. I will pray for all of you.
Mary

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

Had my stitches out yesterday. I got the name of my tumor. It is called "pilomatrixoma" I looked online and it is found usually in young children. Is a cyst of calcified hair cells. I found one site that said adults 50-65 can get it though is rare. I read that it can show up as cancer in a biopsy.
While in surgery, my doctor had to treat my mass as though it was cancer, but rather then a radical dissection I had a modified one. Was the day after surgery that we got the final report that it was never cancer. I kept asking " Are they sure????"
My incision in my neck is long. Numb in neck, jawbone, collar bone and ear. I dont know if I will get feelings back, she said probably not in my ear. I feel like I have a clamp on my neck, feels so tight. I do good up until afternoon then have to take a pain pill.
Still this is nothing compared to what all of you have gone through. My thoughts and prayers are with all on here.
Mary in Northern California

Hondo's picture
Hondo
Posts: 5782
Joined: Apr 2009

Thanks for the up-date I am just so glad that is was not cancer.

God be with you

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

And play it forward, Mary. Do this for all of us. You know you have all the blessings that we have to give you in your long future. Take some time to heal, then please play it forward, Nurse Mary.

Believe

kcass

Fire34
Posts: 352
Joined: Feb 2010

Mary
Congratulations on your good news. Still Best Wishes
Dave

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Mary,
Your story reminds us all that there are still miracles. My partner, Mark is newly diagnosed. And there are some weird factors going in, like he has had a lump on his neck for years that just recently began to grow, he has 2 other lumps on his body, including his torso, there is no outwardly sign of cancer in his mouth or on the suspected tonsil...So your story has grabbed my attention, and I have to ask, was there any other diagnostic test other than the needle biopsy that indicated you had cancer? Did you have a PET before your extensive surgery? We have an appointment with the ENT oncology guy next week, and it may be a stretch, but there is no bad question, right?
Kim

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

Hi Kim,
I had a small lump on the back of my neck. My primary doctor thought it was a cyst but sent me to the ENT. She did a CT scan first that showed just the lump. Then a needle biopsy. Now this came back as squamous cell carcinoma! She then ordered a PET scan and it just showed this one lump only. So she scheduled me for surgery for a neck dissection ( which as everybody knows I waited 5 weeks to have!) As she had my neck open and sending specimens to the lab everything was coming back negative for cancer. Instead of the radical dissection she did a modified. She told me that until she had final pathology back she had to still treat the lump as if it was cancer. The next day she called me while I was in the hospital that the lump was never cancer at all. What I had was called ( PILOMATRIXOMA) this is a cyst found in children. Is is being found in adults ages 50-65 but rarely. I have done research on this and in a needle biopsy can show up as squamous cell carcinoma and being I am 56 they said it was cancer. With the modified neck dissection she also did biopsies for my throat, tonsils etc, and all negative. This was a miracle for me.
I hope all goes well for your partner. Where is the lump on his neck? With a postive SCC diagnois the only way to know 100% is with the neck dissection surgery.
Mary

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Mark's lumps are under his jaw. They say there are 2 lymph nodes involved. But again, there was one lump there for a very long time (years). I too researched pilmatrixoma and saw the age range (he is in it) these lumps appear on other parts of the body, like the torso (he has that). Worrisome thing there are TWO lumps and that is more rare than having this kind of tumor at all. I still go back and forth from disbelief to hunkering down for the big battle ahead. Don't want to feed my denial, but there is no reason not to ask. Wish there was a better way to be sure than neck discection. Hope you are feeling better every day. A miracle like yours has the ability to restore a lot of things, I am sure.
(Extra question: how do I get a picture on my posts?)

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

Hi Kim,
About your picture, go to your profile page and there is an edit tab. I think that is where I put on my picture.
My lump was far back near my hair line. Wasnt even in a lymphnode. Has Mark had a CT scan or a PET scan yet? Thats what I had done. Then since I had the SCC dianosis it had to be taken out. The people on this site got me through all this. They have been through it all.
I was in shock when I was told I didnt have cancer. My primary doctor all along had told me he thought it was just a cyst.
I hurt alot, but it will go away in time.
Mark will make it through all this, people on this site will help you both.
Mary in Northern calif.

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Mary,
Thanks a bunch for telling me how to get the picture up. I love this man. But as you talk more about you case I am less hopeful for our own miracle. I can only hope now that the primary is in the tonsil and there are no distant mets on the PET. That, I believe will be our best case scenerio at this point.
So happy for you...a reminder that there are still long shots! It keeps hope alive.

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