Mar 31, 2010 - 2:31 pm
Just wondering if anyone has had experience themselves or family members with this sub-type of kidney cancer. We were told that this sub-type is usually seen in children, but is rarely seen in adults. My husband is 30 years old and had a radical nephrectomy of his left kidney back in February. Since surgery the cancer has spread to the lower spine. Based on the very little information I can find for this sub-type on the internet, it appears that when it shows up in adults it is very aggressive.
I understand that our prognosis is poor. But the last thing I want to do is to waste anytime we have left. As of this point, either no one wants to tell us a timeline or they just have no idea.
It is incredibly hard to have grown up in the information age but cannot seem find what you are looking for on the internet. I plan on posting updates on this blog in case there is some one else out there who wants answers regarding this sub-type. I know that some are of the opinion, "what you don't know can't hurt you" but I am of the opposite opinion that knowledge is power. All we can do is plan for the worst and hope for the best.
God's blessings to all of you that deal with this horrible disease and to the family members that have to watch someone suffer through it.
Any information that anyone could share would be grately appreciated.