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Nasopharyngeal Cancer

davey3
Posts: 7
Joined: Mar 2010

David Here.
They told me this is what I have and that its a rare Cancer because of where it is located.
I have not started any treatment yet but I do know I am in stage 3 and have 2 yrs to live..
Meeting with all of my Cancer team @ Sloan Kettering next week after I get a Pet Scan.
ANYONE have any suggestions on where to start to learn how to deal with this new Bump in my life.

David

EstherMSKCC
Posts: 20
Joined: Feb 2010

Dear David,

I'm very sorry to hear of your diagnosis. I am an employee of Memorial Sloan-Kettering Cancer Center and came across your post for more information on this disease and how to cope with the diagnosis. Here are a few links on our web site that may be of help as you begin educating yourself about nasopharyngeal cancer and seeking out support:

Overview of nasophyngeal cancer: http://www.mskcc.org/mskcc/html/9983.cfm#400639

Treatment options: http://www.mskcc.org/mskcc/html/9992.cfm

Survivorship and Support (including info about rehabilitation after treatment): http://www.mskcc.org/mskcc/html/9991.cfm

Patient Stories: http://www.mskcc.org/mskcc/html/84352.cfm

Help for the Newly Diagnosed: http://www.mskcc.org/mskcc/html/11984.cfm

Here is a link to an organization dedicated to raising awareness and supporting people with oral and head and neck cancers: http://www.spohnc.org/

I hope this information is useful - I wish you good luck with treatment at Sloan-Kettering and your journey ahead. -Esther

davey3
Posts: 7
Joined: Mar 2010

Esther thank you for the support.
My team at MSKCC start with Dr Boyel as the surgen ,Dr Lee for RAD and Dr Pfister for chmeo.
I have been told they are good.
I go back this Wed for Pet Scan and to meet with my Rad doctor to see what options we have.

Thank you agian.

Davey

EstherMSKCC
Posts: 20
Joined: Feb 2010

You are welcome! Good luck today - you are in good hands. -Esther

EstherMSKCC
Posts: 20
Joined: Feb 2010

You are welcome! Good luck today - you are in good hands. -Esther

EstherMSKCC
Posts: 20
Joined: Feb 2010

You are welcome! Good luck today - you are in good hands. -Esther

bbg17
Posts: 1
Joined: Apr 2010

Hello David,
I hope you are doing ok, I found out I had this cancer back in October of 2009, I went through all teratments, Chemo and radiation. My PET scan in March shown I am clear. So hang in there, you will be fine. If you would like to chat, send me an email and I will share my experience. luluo5o7@aol.com. Good luck Lulu

dukers101
Posts: 14
Joined: Jan 2010

All I can say is read and place calls to all the Cancer institues and get as much information as you can. I ended up with 13 hrs of brain surgery and 6 weeks of radiation.That was in 1995 and thank God, still cancer free. Whatever option you choose, keep positive thoughts but get 2nd ,third and even more opinions to make a sound decision.Dont delay, everyday is critical and if radiaton is an option afterwards for the treatment-DO IT!!My friend who had something similar did not and did not make it.Radiation is not painful at all.
Let me know if there is anything further I can help with

Hondo's picture
Hondo
Posts: 6624
Joined: Apr 2009

I been living with this NPC for better then 9 years now, trust in you doctors and do what they tell you. The treatment is hard as all cancer treatment are, but you can survive it; and life after cancer is still good.

Take care

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