Mar 21, 2010 - 7:00 pm
These discussion boards are very informative! I found out the dreaded news over the cell phone during my son's soccer coach meeting. Because I didn't really grasp the reality of the situation, amazingly, I told the doc...he need to call me back because I was in the middle of a meeting! After the reality soaked in (10 minutes later...)...I can't really describe the sentiment. I was like an emotional time bomb especially the next day. I'm doing much better than two weeks ago. I'm 44, in relative good health, pretty active, etc. Go figure. It was a terrible thing to hear over the phone, but after further thought, I guess there's no other way to break the news. It wasn't necessarily insensitive...he was straight to the point relaying to me that my PSA is 2.2, the stage was T1C (which I guess doesn't mean too much considering the majority of people are diagnosed the same way...), and a Gleason score of 3,4=7. I would classify the call similar to a rollercoaster ride...the term early detection was used a couple times in the conversation along with an estimation of being most likely curable (positive), but he also used the term "aggressive" which scared the you know what out of me. Before I could get the one million questions started, he told to immediately go and purchase a book at your traditional type of book store...Barnes and Noble, Books-a-Million, etc., titled Guide to Surviving Prostate Cancer by Dr Patrick Walsh. I have to admit it's pretty good and answered many of my questions, however the book is dated 2007 and it's 2010 now. With three years omitted, I'm looking for the latest and greatest. I've got a frat brother who is a doctor...immediately told me that at my age for peace of mind...get the gland out of your body, however the dreaded side effects seem so confusing and I understand...everyone is different. Also had a friend that entertained Da Vinci about three years ago...he seems like a happy camper with incontinence completely gone and a little problems with the mojo which he glady told me they've got plenty of stuff out there to fix that...he's 55 having done this at 52. I'm 44 with much optimism leaning totally towards Da Vinci - Sentara Norfolk General has some outstanding oncologists over there...I hear some of the very best - Dr Fabrizio and Dr Lance...I hear they've got two more guys over there that are just as reputable. But...like I said...that was three years ago when he had the procedure done. This book leans more towards "open prostatectomy" and states that it is the gold standard because the surgeon has the element of "feel" on his side. Robotic radical prostatectomy was somewhat looked down upon...it also detailed radiation seeds and I'm now reading much on proton therapy. Both sound like great alternatives, but I don't see any 40+ year old going in these routes...as a matter of fact, it seems everyone under 50 gets the gland taken out. I think I understand the bias...as an educator I was told that no question is a dumb one...I guess the rationale is based upon the younger you are, the better able you are to bounce back physically from the trauma of surgery. I'm in Virginia Beach area...looking for some well informed input. Sorry for being so long winded...