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Pancreatic cancer and liver lesions

Nunu123
Posts: 11
Joined: Jan 2010

My husband has finished his chemo and rads treatment for pancreatic cancer. We waited four weeks to do the PET scan and it showed up that the tumour in the pancreas reacted to the treatment. So, it should be operable. The problem is that there are now lesions on my husbands liver showing nup on the PET scan.
I am told by the radiographer that an operation is now not an option because the lesions are not in one part of the liver but in all of it, he went on to suggest that we meet the oncologist to disscuss and we must look at chemotheraphy if offered it.
I am afraid because I saw the scan and I am not sure that all the lesions could be cancer? But there are so many.

Has anyone had this? What was the course of treatment offered and were you a candidate for surgery after this treatment?

Thanks.

Nunu123
Posts: 11
Joined: Jan 2010

Anyone?

Aezoro
Posts: 2
Joined: Mar 2010

I would recommend that you speak to your oncologist. My wife had surgery (whipple) and now is going to go for chemo and radiation. So that would not apply. I would recommend that you check out the better centers in the country. Check out US News and World Report ranking, that is how we chose our hospital.

mr steve
Posts: 286
Joined: Sep 2009

If surgery is out due to the tumors in the liver you might be able to have a TACE done(its like a heart cathertheration but they shoot the chemo stright into the liver)

LEE1953
Posts: 2
Joined: Apr 2010

Is this done in addition to or instead of chemo through a central line? Also, do you know what institutions are doing this - wonder how to bring it up to the oncologist?

mr steve
Posts: 286
Joined: Sep 2009

I don't know if it can be used with Chemo treatments too. We had it done at The James at OSU. I would just ask your Onc if they have heard of this type of treatment. No it was done just like a heart cath the entry point was in the groin

campbell587
Posts: 1
Joined: Mar 2010

I am a 51 yr old female. From the beginning of my diagnosis,I have been considered stage 4 unresectable mestastic pancreatic cancer. Surgery was not option because of 2 lesions on my liver. nor is radiation because the cancer is not in one localized area. Only option is to control the spreading. Its been a year now and I am on my 3rd line of treatment. Gemzar and Tarvia was my 1st line of treatment and worked very well for 9 months, until I built a immune to it. My scan SUV went back up. Then I used xeloda and oxaplatin. Only for 3 mos- I was not responding well to that, I am now back on Gemzar with taxatere, well see how this goes. Good luck to you

LEE1953
Posts: 2
Joined: Apr 2010

abbreviated background: 62 year old male---CT showed pancreatic tumor 8 months ago. Received Gemzar 3 months (5 treatments) then surgery (Whipple). Margins were clear but 6 out of 26 lymph nodes were positive and surgeon found a lesion on liver that did not show up on CT before surgery had atypical cells. Plan was to start chemo in 6 weeks post op. CT before chemo showed another liver lesion. Started Gemzar, Cisplatin once every 2 weeks for 4 sessions. In addition, took 100 mg of Tarceva every day. Oncologist changed chemo agents now because he said CT & lab work indicated previous agents had plateaued, which I expect means the cancer has become resistant to the other chemo drugs. Started Oxaloplatin and Xeloda this week and suppose to continue for 9 weeks before another CT. Nurse suggested not eating anything cold for 5 days. Could someone give me an idea of what to expect with this regime and how long the sensitivity (if that is what it is) lasts to cold food or beverages?

mjd107
Posts: 10
Joined: May 2010

The sensitivity to cold only affected me with the first dose of oxalipatin. I guess that
it varies from one person to another. After 4 doses of oxalipatin and xeloda, I had a CAT
scan which showed that those drugs had no effect on my cancer. The oncologist now has me taking docetaxel which I know was what they used to give stage IV pancreatic cancer patients way before Gemzar came along. The docetaxel is making me very fatigued, more so
than the other drugs. I really don't believe that my oncologist is going to be able to cure me. I would suggest that you look at some ( non chemo ) alternative cancer treatments. Unless you can get into a clinical trial, I recommend looking at the following web sites http://cancerfightingstrategies.com or
http://cancer-prevention.net

If you have any questions about these web sites, feel free to send me a personal email.

I have been using some of these supplements since January.

mjd107
Posts: 10
Joined: May 2010

Have you considered alternative treatments such as naturally occuring plant extracts?

I have researched on-line about things such as graviola, ellagic acid, zeolite, triphala,
and curcumin.

I still have not found out if oxaplatin & xeloda are working for me.

In two more days I will have my platelet count checked again. If it is high enough, I will
have my fourth chemo oxaplatin treatment on Thursday June 3.

It is tough to keep up hope. I would like to keep in touch with you. Best Wishes.

unicorn1209
Posts: 6
Joined: May 2010

My partner has been diagnosed just last week with metastatic pancreatic cancer with metastases to the liver... no radiation or surgery - She starts chemo this Friday with Gemzar.. Hearing it's been a year for you gives me a little more hope..... I posted a topic on another board.

merce
Posts: 1
Joined: Jul 2010

Dear Unicorn

Hope chemo is going well for your partner. How is she feeling and responding to it, or is it too early to say?

My husband was diagnosed a month ago with stage IV pancreatic cancer with liver met - inoperable (although debatable) but he hasn't been able to start chemo because of general physical weakness. Has anyone heard of bedbound patients or those with fever receiving chemo anyway?

Any relevant comments, much appreciated.
Thanks and keep up the hope!

stephanie649
Posts: 1
Joined: Apr 2010

This same thing happened to my mother. At the time the only option offered to my mother was more chemo or see if Vanderbilt had any clinical trials. She decided to go with more chemo till she couldn't take the side effects anymore. She has been in relatively good health for over 6 mths. Her health is now declining, but she chose the no treatment route. They do have treatment now where the chemo is actually given directly to the liver thru the main vein. I apologize for not knowing the name of that, but in simple terms thats what they do. I don't know what the criteria is to be candidate for this option. I have heard that there has been very good success with this. I'm not a dr, but as a daughter of a pancreatic cancer patient this disease is very tough, because there hasn't been many advances in treating this type of cancer. The dr's seem to not know what to do either. Don't give up hope.

Nunu123
Posts: 11
Joined: Jan 2010

I am exploring options and hope for the best, the doctors in Europe are pretty much rubbish, England and Malta are the worst place to be, Malta is asctually rubbish.

The doctors do not help when they say you have excessive liver mets which means there are more than normal.

angbertolino
Posts: 4
Joined: May 2010

Hi, my partner was diagnosed with pancreatic cancer last september. She did the chemo and radiation and neither worked. The doctor was unable to do a whipple so I went searching for other options. Turns out there is a doctor in Tennessee named Dr. Stephen Cantrell and he is having an 80% success rate with curing inoperable stage III and stage IV pancreatic cancer as well as some other cancers. My partner and I are using this treatment now and it has barely any side effects aside from mild fatigue and muscle aches.

mjd107
Posts: 10
Joined: May 2010

Dear angbertolino: I would like to learn more about Dr. Cantrell's treatment program.

joe123
Posts: 3
Joined: Jun 2011

Did you ever find anything else out?

baxterjankirby
Posts: 1
Joined: Jul 2010

what info can you give me on this Doctor? I was diagnosed with a 3 cm tumor in Feb., had 4 cycles of Xeloda and GTX which shrunk the tumor. In spite of several very small liver lesions( which when tested prior to actual surgery came back negative), they did perform the whipple surgery. Now I am again getting chemo and there are more lesions on my liver.
The doctors still don't know if they are cancerous. Don't know if Dr Cantrell's treatment is for me but would like to look into it. Any help would be appreciated.

joe123
Posts: 3
Joined: Jun 2011

Hello, Would love to know if the treatments worked for your partner?

colinclark
Posts: 1
Joined: May 2010

hi i was diagnosed with pancreatic cancer and liver cancer in march 2008 they operated removing the tail of the pancreas my spleen and part of the liver on the 8th may 08 so far all scans have been negative but i was so lucky the hospital i was going to did all the scans ct and mri and nothing showed up i was accussed of being a drug seeking person so i paid to see an oncoligist at a differant hospital he did an endiscopic ultrsound whith came back showing tumour markers i was booked for an op in 2 weeks time they then gave me a ct scan which was clear so they booked me for an mri saying if it came back clear they would cancell the op i didnt go for the mri when asked by the surgon after the op why i didnt go i said that if it was clear you would have cancelled the op and now it would be to late as they told me that another 2 weeks and it was to late to operate so i urge anyone with pains in there tummy to push and get second and third opions its to late if you wait

SF_2_EP
Posts: 3
Joined: Jun 2011

I know that for most the pancreatic discussions are dormant, maybe one or two people talking to cyber space, sadly all postings are old, posted by other individuals that maybe are no longer with us.I just want to say that I feel that there are doctors out there that really dont know much about this disease seriously they say things like, Islet Cell Tumors are slow growing and that they rarely give off any symtoms since they hardly release any hormones into the blood flow.I had three different onocologist tell me three different findings about my pancreatic cancer, then to add insult to injury the Social security Administration has a Compasionate list of diseases that qualify for disability and pancreatic cancer is on the list.Then they have another page called the compasionate qualifications where they dont explain any knowledge or have any evidence how they determine how serious pancreatic cancer is or how they break it down to determine the seriousness of the disease.I dont know what kind of information the American Cancer Society has kept them up dated with but it all ends with the dicision of someone called the Adjudicator,gladly for our sake this person dont work in the OR but seems he has the title as the hang man, so we must drop to our knees and plead for mercy.

mr steve
Posts: 286
Joined: Sep 2009

My wife has been getting treatment for over 3 years now for islet cell with mets to liver ovaries lymph nodes on who knows where else at this point. but with the 2 big flare up of tumors afinitor and avastin seem to be shrinling most of the tumors.

Steve

catz111
Posts: 3
Joined: Jul 2011

I don't know how this works so I've just latched on to your post. I was diagnosed with inoperable pancreatic cancer in April 2011. Two years ago I had horrific pain in my abdomen, duly went to the Dr's and was told I had an inflamed stomach lining and was prescribed Omeprazole. I don't like taking medicine and hadn't been to the Dr's for over 15 years but the pain was so bad at this point (on a scale of 1 - 10 it was a 20! - I finally went. The Omeprazole did nothing and, looking at the side effects I decided not to take it.

I went to a homoeopath and she treated me for the diagnosis given. The pain never really went away, but it was manageable. I never took any kind of painkiller.

Mid March, my skin and eyes started to turn yellow - the dreaded jaundice. I went back to the Dr's in April and was sent to have an ultrasound. They found a mass on my pancreas which was blocking the common bile duct. I was booked in to have a plastic stent fitted as an outpatient and had weekly blood tests done. I also researched alternative treatments and the homoeopath altered my remedies.

In June, the jaundice had still not cleared and I started to feel unwell, I knew the stent wasn't working. Finally, I got the shakes and a temperature. I called the Dr out and was admitted to hospital the same day. On the 8th day, the stent was replaced with a metal one and the following day I was sent home. I was told I had a cystic mass on the head of my pancreas and a further mass in the neck which was pushing into the head and squashing the bile duct. When in hospital the Dr's wanted me to book in for chemo/radiation. I refused point blank. I had researched enough to know that there was very little hope with that treatment. Why spend the next 6 months or so being violently sick with no quality of life, that was my interpretation. I informed them that I was sticking with my alternative treatments....they weren't too happy with me. In addition, I changed my diet completely. Out went the coke, chocolate, sweets of any kind, desserts...well, you get the picture. In came water, dark fruits - grapes, plums, raspberries, blackberries etc. Certain nuts, though other things remained in moderation, butter, whole milk, bread (brown, always) cereals, a little meat.

At the time of writing this, I am in perfect health, I have very little pain and the only medication I take for that is ONE 500mg paracetomol tablet a day - if it's needed. I am taking homoeopathy remedies and dandelion root - dug them up from the garden.

I eat between 6 - 9 small meals a day. Typically. hemp seeds first thing, followed by 2 shredded wheat with milk and half a teaspoon of sugar, 2 hours later I may have either one slice of bacon with fried tomatoes (in extra virgin olive oil) fried bread and a glass of orange juice an hour later a banana or yoghurt, dinner, well whatever I fancy, usually a small plate of vegetables with either fish or chicken. An hour after that I get peckish and have cheese on toast - one slice, inbetween I munch on fruit and nuts. Finally, I'll have a cup of coffee on milk. I walk my dogs every day and keep up with the housework.

Regardless of the outcome, I am enjoying life, it's just that I may know more than most how much time I have which leaves me to get my affairs in order - just in case. However, I feel that this 'problem' can be faced with a positive attitude and a belief in the body's power of self healing - with the right fuel to help it along.

My way isn't everybody's way but, it works for me. I am constantly researching alternative treatments and the latest I am hoping to try is a programme based on Royal Rife's machine.

I sincerely hope everybody here finds their own way to deal with this illness and whatever course of treatment you take, whether it be traditional or alternative, if you believe, it will work for you.

God bless and peace to all.

catz111
Posts: 3
Joined: Jul 2011

Edited...again.:)

catz111
Posts: 3
Joined: Jul 2011

Apologies, computer playing up...same post 3 times so I'm editing. :)

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