Mar 10, 2010 - 10:53 am
I am beyond grateful to find this website. My mother, 67, was diagnosed w/ a GBM in October, 09 and my family has been going through this alone w/ a ton of questions. We noticed some thing was not right w/ her b/c she could not retrieve her words, names and communication became increasingly difficult. On 10/26/09 she had surgery and the surgeon was able to do a complete resection (3cm tumor) and he did use the G-Wafers. Later I learned that having the wafers would exclude her from many clinical trials, and I still wonder if the surgeon should have asked us prior to using them, however, it is comforting to know they started to combat the cancer immediately. She's already completed her 6 wks of radiation w/ the Temodar 125 mg. She also took steroids during her 6 wks of radiation to combat brain swelling, then she was taken off for a few weeks. She had an MRI in 2/10/10 and there was no re-growth nor evidence of cancer. She has done one month of Temodar 250 mg and will start her next cycle in a week. She did vomit for hours the first 3 days but we finally figured out you weren't suppose to take it w/ food. She was exhausted and could not stay awake but they put her back on the steroid, the generic, dexamethosone (sp) and it was like she was raised from the dead. She's still tired, but only takes an occasional cat nap and its brought her appetite back. However, I can tell something is off b/c she's having a hard time retrieving her words again and although, she's so much like herself, she struggles w/ multiple step tasks, so we worry, is its growing back. Oh yea, she did have major problems w/ her left eye, which was finally dx'ed as a 'dry eye' by the eye doctor and was easily taken care of w/ drops,however, she suffered w/ blurred vision for weeks b/c neither the surgeon or oncologist could figure out the problem.
I apologize for this way too lengthy note, but I figured it was important to give some history.
Your experiences, comments and insight will be appreciated.
God Bless you all.