Mar 06, 2010 - 11:15 pm
My mother was recently diagnosed with GBM. She underwent a craniotomy to resect two tumors on January 20. Following an an amazingly-fast regrowth of one of the tumors, she underwent a second craniotomy on January 29. She has recovered from her surgeries very well, and she was slated to start radiation therapy/temodar next Tuesday.
Nevertheless, her radiation oncologist called on Friday, informing us that an MRI showed the tumors had grown again and that radiation/chemotherapy might not do much. He raised the possibility of a third craniotomy, but I am worried that before we get to radio/chemo, the tumor will have grown back again. She will also begin to wear away psychologically and physically if the only way to control the tumor is to perform a craniotomy every two months.
Is there anyone else out there who has undergone three craniotomies in two months? Is this the calling card of a particular horrible GBM tumor? What else can be done?
I adore my mom. She killed herself to educate me, to give me the best, to give me a great life. And I cannot do anything for her. And, the doctors have still not explained to her what GBM is. (She lives in a developing nation, where keeping patients informed is not a high priority.) It kills me everytime she tells me to cheer up because she knows she will recover completely from this.
Good luck to everyone.