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Raynaud's and pain after chemo

Debbie Lou
Posts: 14
Joined: Nov 2009

Is there anyone out there diagnosed with Raynaud's after chemo? Im a will be 15 year survivor of Hodgkins Lymphoma on the 17th of this month and it seems like Im falling apart. I hurt all over most days. Im only 37years old and sometimes I move like a 90 year old woman. I was told I had Raynaud's right after chemo and my fingers don't seem to turn white as much but my legs have started to turn purple along with my feet. I notice it more when I get out of the shower. Im seeing a neurologist right now for the pain but Im afraid she wont be able to help me with the pain although she seems to think it is Fibromyalgia. I just dont know. I want my life back and Im sick of feeling like a side show. I would be greatful if anyone out there could share any information about Raynaud's or pain after chemo. Thanks in advance.

CindiLouWho
Posts: 3
Joined: Mar 2010

I have small cell lung cancer. I have had four rounds of chemo. The last time I had chemo was December 9th. One week ago, both of my hands turned blue. It was like I dipped my palms in blue ink! Very scary! A few days later I was told that it was Raynaud's and is a rare side effect of one of my chemo drugs. It happens usually in response to cold or strong emotions, or repetitive movement. The tiny blood vessels spasm and the hands/feet/ears/nose turn first pale, then blue due to lack of oxygen in the tissues, and then red or flushed as the blood returns. Some medicines can make it worse; cold medicines, like sudafed and high blood pressure or heart meds. There are also medicines that may help with this condition. This can be a serious condition because it can lead to gangrene. Google Raynaud's for more specific info. Mine came after I had been knitting (repetitive movement). I also have neuropathy from this chemo drug. My hands and feet tingle almost constantly. I hope all this helps and I know how scary this can be.

Debbie Lou
Posts: 14
Joined: Nov 2009

What chemo drug are they saying caused this and did they say if it will get better or is it a live long thing. I know it is scary I was at the grocery store and reached into the freezer to get some veg. and my fingers