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Chef Trek

Chefdaddy
Posts: 164
Joined: Dec 2009

I apologize it took me so long to get a new thread started. I had looked all over the site for the "new thread" button and it was right in front of me the whole time. I'm blaming starvation and pain! lol

Thank you everyone for your support and prayers.

Mike

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Pam,

I'm so glad you're all done with treatment and you'e getting better. I'm looking forward to that as well!

Yes, today was a great weight off, I'm still having a hard time believing it's finally over.
I really hope it is.

I was afraid the judge was going to make it an issue as to whether or not I could take care of my son being sick. Even sick, I think the judge new the kids were safer being with me than with my ex, as he never brought it up.

Keep getting better Pam!

Your friend

Mike

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Great news Chef ! Very happy that things fell your way. Hopefully this is the first of many things that will start to go right for you. You have amazed me to date with how well you have gone - so I'm sure you will kick butt now and get on with it all. Good luck to you.

Scambuster in China

Chefdaddy
Posts: 164
Joined: Dec 2009

Thank you Scambuster,

I can definitely deal with this kind of turnout as part of the "New Normal" lol

Your Friend

Mike

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

That is very good news, one less burden off your shoulder and I am sure the kids are relieved to know that they are now safe. I do admit I feel sorry for the ex, because somewhere deep down hidden in her heart she still has feeling but she has let her anger control her life so long to the point that those feeling are buried under hate and confusion.

Only 4 more treatments to go brother you should be able to do these standing on you hear. lol I am going to celebrate your passing the finish line with a big glass of fruit juice on the 29th.

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

WTG Mike,

Yup, you definitely have a weight off, ever how much that wack job ex-wife of yours weighs.....

Keep on truckin buddy, that tunnel exit is getting closer every day bro...

God Bless,
John

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

i am so glad that the judge came down on your side.

you are getting toward the end of your treatment. i think about all of you, every day. you are all coming down to the end. then you can focus on healing.

mike, are you getting in nutrition? i think i worry about you the most with the nutrition, you have lost so much weight.

hang in there all.

Chefdaddy
Posts: 164
Joined: Dec 2009

My dear friends

I thank God for you all.

Hondo,

Yes, I too feel bad for her, it's obvious that her mind was broken by her ex boyfriends treatment to her and she now has so much history confused. She's so full of hate, especially towards me. She told flat out lies in court, enough that the judge put her under oath again and caught her on them. But, the sad thing is that I could tell that she truly believed everything she was saying and I think the judge recognized that as well.

John,

I think I can finally tell that it's sunlight at the other end of the tunnel and not another flippin train coming at me. lol

Sweets,

Yes, I too am very glad that the judge saw that she is a very troubled and confused woman, and that he sided for us. My kids are very happy and they're breathing a little easier now.

Nutrition has been a very big problem. They told me yesterday that I have lost way to much of my muscle mass and that I am basically like a starving person from Ethiopia.

The stinkin supplier for the canned food said they were having difficulties and had not shipped it like they told me they had. My radiation Doc was very ticked...again!

Tonight, I was able to put in my PEG, 640 calories of Carnations Instant Breakfast mixed with Half N Half, but that's not enough. I don't know if it's because how rich liquid foods are, but I get sick to my stomach very easy and have to go very very slow.

With this crazy schedule between radiation and hydration every day and the two not in the same area, and cooking meals for the kids when I finally do get home, it's been very difficult for me to have enough time to sit to do my feeding process before I collapse.

I am so very exhausted and fatigued all the time now. Today, my poor daughter had to wheel me around all of my appointments in one of the hospitals wheelchairs. When we first arrived my left leg started going numb from my hip down and I almost fell several times and walking became impossible.

The Doc told me later that I most likely had a pinched nerve, since I no longer have a butt, or any fat to protect the nerves back there. Luckily, by the time I finished my last appointment, enough feeling had returned that I was able to walk to the vehicle and drive.

I want to thank you all for your never ending support and concern.

Your friend,

"Buttless" Mike

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

Mike I lost so much weight the first & second time that I had to prop up myself on one side to sit on the toilet for fear of falling in and flushing myself down. I look back and laugh at it now but was hard to believe I lost so much weight.

Hang in there champ you are on home stretch and I am fixing to pore the grape juicy to solute you while passed the finish line

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009
Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009
Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

Duplicate

Chefdaddy
Posts: 164
Joined: Dec 2009

Boy Hondo can I relate!

I would never have thought I would fear a toilet. lol

Today, all the chemo and radiation nurses were extremely upset that Apria Health Care still had not shipped me the replacement food.

I will be so glad when this is all over with, all my energy has been depleted. I now have to use a wheelchair if I have more than 30 feet to walk, or otherwise I get light headed and naucious.

They also told me today that I will have to wait longer than the scheduled 2 weeks to have surgery to repair the exposed jaw bone areas, as I am now too weak to have any surgery.
This is really making my anger towards Apria increase.

I'm sure that had it been a close relative to whoever is in charge of getting that stuff shipped, it would have been done several weeks ago.

Take care my friend

Mike

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

do you know what it is called? maybe we can look it up and get it shipped from someone else? riddiculous. you are right. people should treat people the way they would want their loved one treated.

i understand about feeling sick and needing to go slow with the feeding. (that's what happened to me after rads and i got down to 88lbs) i really think you should talk to your docs about getting a pump like i have for your feeding. you have the kids you are cooking for and taking care of, you are busy, and we need to get some nutrition in you. when you get your food, the pump, or at least even a gravity bag would make it easy on you. you could be getting almost all the cals you need while sleeping. do you have your own nutrition people? actually, irc it was my gastro lady that reccomended i should get the pump, then the nutrition people made it happen.

you can tolerate the carnation instant breakfast? that's good. how about yogurt thinned with skim milk? or yogurt smoothie? bolthouse farms protein drinks? naked juices? all stuff i have managed to put in feed tube. thinned baby foods like sweet potatoes, sqash, carrots. do you have a juicer? i could send you mine if you wanted.

having a boney backside stinks. i remember complaining to my friends sister about trying to sleep at night because the bed springs were digging into my boney hips and arse. the sister was so nice, she got me a suprise xmas gift of a thick memory foam pad and new sheets for my bed. made a big difference.

as far as being buttless, i just saw a commercial for booty pop underwear for women. guys are out of luck.

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

Tomorrow is Friday, that means only two more rads to go my friend.

As you begin to look back at the journey you have just taking it does not make us weaker is only reinforces our inner strength to keep us going forward.

The light at the end of the tunnel is shining bright for you, or maybe it is you whose shining so bright with all that rad in you, anyway you are almost there my friend.

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

Mike, I went in a few days ago for follow-ups for both my chemo doctor and my rads doctor. It's been since mid June last year for me that I finished my last chemo/rads. I decided to ask if I could visit the rads technicians that were with me everyday last summer as I was being treated. I routinely visit my chemo nurses and enjoy that a lot.

It was really nice to see the rads techs again for both them and myself, especially under normal conditions and just a nice visit. We all hugged and enjoyed conversation and a few jokes. It made a nice closure to a bad situation that I had endured.

I hope you'll consider that same experience in the months after you are through with this ordeal also. I'll really be happy for you and your children when your life starts becoming "normal" again and you can get on with living and enjoying your life and children.

This ordeal will always stay with you as it does all of us. Like Tim says, in the long run it makes us all stronger. It takes you to a point that you could never imagine that you could endure, but you do, and it makes us all stronger.

Continue kicking azz, and good times are just ahead my friend....

God Bless,
John

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi my friends,

To Sweets: I don't know the proper name, but I think it's something like Scandia-Shake,
I thought it was supposed to be a canned drink, but I'm told it's a packaged dry mix, like Carnation's Instant Breakfast, but has 600 calories.

I have been thinking about seeing if I can get a gravity bag feeder, it should make the process easier. I am lactose intolerant, so when I use half N half it comes with it's side effects, but it's tolerable.

You are a sweetheart to offer your juicer my dear. I used to have a Champion several years ago and it was a very good one, I miss having one.

To Hondo: Yes my friend, I do feel like a glow worm! lol Oh, did I tell you that they have now determined that I have Shingles? I don't know why God thought it was a good idea to have me compete with Job. lol I'm one big sore with two feet.

To John: I think the guy that came up with the phrase "What doesn't kill you makes you stronger" probably died, or should have! lol

When I finally am able to put some weight back on I will have two more surgeries, one for my exposed jaw bone areas and the second one for my torn tendons in my shoulder. So I'm not sure how far out "normal" is going to be, I know it will much closer than it has been in a long time!

I know what you mean as far as thinking "I can't make it through another day", but somehow I did. My endurance level is higher than I ever imagined it could be. But, I attribute that to all of you people here, always encouraging me!

Thank you all for being here!

Your friend

Mike

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

Only one more to go daddy Mike then at lease the radiation will be over. Sorry to hear about the shingles another one of those nasty sides affects of cancer treatment. Like you said you have been through a lot and you are so much stronger for it.

If there is anything good about having cancer it is the people we meet and the friends we make and I am glad to be one of your many friends.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hondo I feel the same, meeting you and all my other new friends on here has been very rewarding. I enjoy and look forward to our weekly phone conversations, it gives me something to look forward to.

I look forward to meeting you and your family one of these up coming days.

Your friend

Mike

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Hi Mike,
I have been down the shingles road and can give you 1st hand advice. 1. Doctors don't know how to treat it. 2. Naturopaths do.

Shingles is one of the herpes viruses that affects and inflames the myelin sheath (or part of your little nerve transmitters - hence the pain). You would normally be afflicted in one zone of your body and only on one side, depending where in your nervous system the virus has taken residence. Cause is varied but almost always associated with being run down, stressed, and being unbalanced is the diet as mentioned below. No surprise you have been hit.

This virus loves Arginine and hates Lysine (Amino Acids) Arginine is prevalent in Acidic foods i.e. sugars, red meats, alcohol (Esp Red Wine). Lysine is prevalent in green leafy vegetables and root vegetables. You can obtain L-Lysine at your local Vitamin store (crush and put through the PEG). While your diet is almost non-existent, hopefully you will start your feeding soon and get your recovery underway.

I also took Homeopathic medicine from my Naturopath which were an important part of the recovery. I have seen sooooo many times, people with this condition who do not heed the advice given and continue the Arginine rich diet and relying on Zovirax from their doctor and yes 6 months later, they still have it and it's worse and when it gets in your eyes, it can get really bad.

I know you can't really do much with your diet just now Mike and you will need calories but if you can somehow work the Vege soups into your diet ASAP, it will help not just the Shingles, but your recovery from the Rads (Turnips, parsnips, carrots, beet-root + the spinaches, parsley etc cooked and blended).

Of course i would love to have you see a good Naturopath. This is all more for your information so when you get the chance, you can hopefully swing some of the diet etc to help reduce the effects of this added pain in the A___ which you don;t need. I do know if not treated, it can get a hold and be much harder to treat later on. The sooner the better in this case. I know you have a lot on your plate right now but hope this bit of insight helps. Glad to hear Monday will be your last session. You have done amazingly well. I am astonished.

Wishing you and kids well.
Scambuster

staceya's picture
staceya
Posts: 701
Joined: Jan 2010

Dear Mike
You will be done on Monday?
What time?
I will do a cheer for you.
I also agree with the l-lysine.
Good luck!
Stacey

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

awesome news Mike!!

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi my friends,

This won't be very long, as I'm in a lot of pain. On Friday, the radiation nurse decided to use tape to hold down these clear wet moisturizing pads that was covering all the open sores and burns that are all around my neck and throat. This morning, when I tried to take them off, the tape removed several layers of grey cooked skin and now, most of my throat and neck is raw, bleeding and extremely painful.

My daughter tried putting Lidocaine over the sores to give me a little break from the pain. But it was only temporary.

These clear pads keep scabs from forming and it seems it's not healing because there is no scabs forming. The nurse said they don't want scabs because they crack and bleed. I think that's better than having open sores that the lightest brush of air hurts like heck.

I don't know what to do, last Thursday, I woke up stuck to my pillow, the sores had glued me to the pillow case and it took me along time to painfully break myself free.

It's hard enough dealing with the increased mouth and throat pain this last two weeks of radiation, but this is almost too much.

If there was a way for me to do a "self-induced" coma until they healed, I would!

The shingles are nothing compared to this.

Please, if you have any advice I could sure us it.

Oh Stacey,
My radiation starts at 11:00am, thank you!

Thank you everyone.

Mike

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

My only experience is with Aquaphor. Good stuff, but cannot know if it'd help with what you got going-on. Do know you can't keep the sores covered in non-sleeping hours: your skin needs to breathe

A coma is taking it too far, Mike. Morph is dangerous, but manageable. I was on for 4 of 5 consecutive weeks. Talk to your Dr. about. They gotta have a means of connecting, 24/7.

kcass

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Kent,

Good hearing from you again.

I was teasing about the "self-induced" coma. Only in my dreams lol

Keeping them uncovered is exactly how I felt as well, but then they put these clear moisturizing sheets over the scabs and of course the scabs came off leaving raw, painful and seeping sores.

The Aquaphor is okay, but it covers like a bandage as well, as it is very greasy.

I'm on Fentynal patches as well as Fentynal lolly pops, which makes me loopy very quick, but unfortunately doesn't effect the pain level.

I'm sitting here with goose bumps all over my body, as my neck and throat feels like someone cut the skin off with a knife.

I hope someone has some experience and advise from going through this kind of thing, but I feel sorry for them if they did.

Take care my friend and thank you.

Mike

staceya's picture
staceya
Posts: 701
Joined: Jan 2010

Is there a wound care team at the hospital?

The rad nurse told me to let the scabs/exudate form and not touch them. HOWEVER The wound care team(who ended up being right) told me to remove the scabs as the skin would never heal with the thick layer of dead tissue and exudate on them.

I also stuck to the bed and lost a bunch of skin to the pillow case. When I was at work I used telfa non stick pads..BUT since ALL of the skin was raw, I had to keep the telfa in place with coban wrapped around the whole neck.
Caution telfa pads do NOT breath and could cause infection if left on too long.
I would recommend strongly that the people who work with bed sores at the hospital or home health take a look at your neck.

When the wounds are covered up, they could get infected. There ARE dressings that breath, so the wound is covered (amazing how air blowing does hurt)but are still protective. Please see someone tomorrow after your rads.
Let us know what they said.
My neck is completed healed..its discolored and has large spots, but it is in one piece.

I will do a cheer for you tomorrow at 11 (mountain time)
Stacey

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Never, ever put adhesive anything on burned skin - EVER!. Let the Dr know and ask never to work with that nurse again until after she attends nursing school.

I have a similar issue with bleeding around my surgery scar and the nurse SPECIFICALLY said ABSOLUTELY no adhesive around burns. Instead I got this stuff called silver sulfadiazine Cream and they lather that on *unless* I'm being radiated. This stuff is pretty good and is far better than ripping dead skin off a burnt neck. Wow sorry that happened to you Mike.

Best,

Mick

staceya's picture
staceya
Posts: 701
Joined: Jan 2010

Yes NO tape ever.. I also used silvadene cream.

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

I am glad to see you post again I was getting worried, how are you doing my friend, how many more treatments before you are finish.

All the best to you

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

Silver Sulfadiazine!! thats what the ER gave me when I burned my arms so badly from
my airbag deploying from a car accident. It works really well. Try that!

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

Makes you wonder where they got there schooling from, I would love to pull the tape off of there skin for once and see if they like it, maybe then the next time they would be a little more compassionate when sticking or removing any type of tape.

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

As you go for your last treatment today I just want you to know you will be in my thoughts and prayers.

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

Hi Mike, the silver sulfadiazine is good stuff, it's used specifically for burn patients....

Thinking of you today, and hoping you are near the end of this regime', onward and upward buddy.

John

staceya's picture
staceya
Posts: 701
Joined: Jan 2010

Yipee!! Last day.
Not to be a pest, but I really hope someone looked at your neck today who can advise you.
Stacey

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

You should be well done by now on both sides now, I hope all went well with you last treatment, I will wait to call you before I break the Wine out

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

You should be well done by now on both sides, I hope all went well with you last treatment, I will wait to call you before I break the Wine out

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

I was wondering how you are doing knowing your last treatment was Monday. It will take a few weeks for things to start to heal as the body needs to purge out all the bad stuff they have been giving you to kill the cancer.

Take care my firend

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

hope you are doing ok, and just resting.

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

I tried to call all week-end long but did not get an answer; let me know how you are doing

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Many of us are wondering how you're doing, Mike.

Believe

kcass

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