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Chef Trek

Chefdaddy
Posts: 164
Joined: Dec 2009

I apologize it took me so long to get a new thread started. I had looked all over the site for the "new thread" button and it was right in front of me the whole time. I'm blaming starvation and pain! lol

Thank you everyone for your support and prayers.

Mike

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

That would be awesome Mike....

Disney Orlando is only about 40 miles from me... Plus there are tons of other places right there. I think there are three separate Disney Parks, then also Universal and Sea World. Also over in Tampa (about 75 miles or so) you have Busch Gardens Tampa....

As for the hairline. I have a lot less facial hair than I used to, but it's mostly under my chin so shaving is less frequesnt and easier, LOL. The neckline in the back has moved up a few inches, but not that bad or noticeable really. I keep my hair fairly short and tapered, so it just blends in.

You sound great and hopefully you are finally on your way to some relief and recovery.....

Kick Butt, and God Bless,
John

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

John, I lived in the Tampa/St Pete area for 4 years and went to Busch Gardens everytime my grandchildren came down to visit. I absolutely loved it, you can spend an entire day there enjoying the rides, shows and animals. I definitely recommend it if Mike gets a chance to see it with his kids, he will love it as much as the kids do.

I miss Florida but it was too far away from all of my family so I moved back to NH ten years ago.

Mike, I hope you are finally starting to improve and the pain is under control. I lost some of the hair on the back of my head also from the radiation. I wear my hair shoulder length so it really doesn't show but the back of my neck gets cold a lot easier now ;-)

Take care and stay strong,
Glenna

Greend's picture
Greend
Posts: 679
Joined: Feb 2010

Chef

I had the exact same thing plus one morning I woke up and every hair on my face (I had a beard) left me overnight. That was a shock plus I never found them on the pillow.

Disney World is a blast for all.

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

That is great news for the kids, Disneyland California or Florida, I am just so glad to see things starting to work for the better now, and when you are talking Disneyland there is a kid in every one of us.

Yep the hair up the right side of the back of my neck about even with the ears was all missing one morning; remind me of the hair cut my uncle would give me when I was a kid. We could not complain because it was for free, one size fit all, just lucky he was there for us.

I have no idea how you can do so much for your kids and keep going with all the problems you are having. God bless and be with you and the kids

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Fish tacos? Maybe Hondo can make guacamole, since he's got the avocado connections.

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Scrapple is pretty popular here in Delaware, too. One town where they make scrapple actually has the Apple Scrapple Festival every year -- they grow apples there, too -- and thousands of people turn out. Believe it or not, they even have a scrapple sculpting competition.
I grew up eating the stuff, but hadn't had any in many years. As I was recovering from treatment, it was the first "meat" I ate, and tasted pretty darned good.
And, for those of you who don't like the idea of eating "everything but the squeal," they even make turkey scrapple now. It's not bad.

--Jim in Delaware

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Fish tacos with avocado, now you are talking, I may not have any saliva but somehow I am drooling at the very thought of something so good.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

i love walt disney world. there are 3 parks, plus downtown disney.

no one warned me about the exit burns on my back, and the hairloss. my picture is from the night before i started radiation. i just got my hair the way i wanted it. i lost 4 inches in the back and had burns too. i tried to keep my hair long, but it was a mess. i cut it all really short to start again. the 4 inches i lost grew back super curley. half the back is wavy, the rest super curls. looks weird.

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

The hair loss and new growth is rather amusing I guess. Not to be crude, but I lost most of my body hair. When I started getting it back for several months it was almost like going through puberty. Everything came back really fine and super straight. But eventually what body hair that you are going to get back seems to return to the normal adult variety.

Of course it also goes without saying unfortunately. You still end up with hair in places that you wish you didn't and nothing in the areas that you want hair, LOL....

John

cwcad's picture
cwcad
Posts: 117
Joined: Nov 2009

In a positive way of thinking the treatments burned my neck so completely that I now only have a beard above my jaw line. The heavy coarse hair on my neck is completely gone. Here is the positive thought. Prior to treatment I needed to use a fresh blade each time I shaved. Now a razor can last up to seven months. That is a considerable saving in my razor blade budget and I do not miss the neck hair one bit.

The neck is the only place that I suffered any hair loss. I didn't have much on my head to begin with since God only made so many good heads and the rest he put hair on them. LOL!

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

you should see my boyfriend Pauls hair. His hair on his head is as fine and soft as it always was, but a little grayer. but his eyebrows are very dark and bushier, and his mustache is the same dark color, but the rest of his beard comes in gray!! how weird is that???

Kathy

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

Mike,

my boyfriend and I are in Florida, we could come help eat when he actually starts eating!!!!
Mike, would you happen to remember any more on the cookbook name from the 1800s?

as far as scrapple, i guess that hot dogs are alot prettier considering whats in those!!
same as spam!! lol!

Kathy

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

so sorry to hear you lost someone important to you....

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Its been a few days since you posted, hope you are doing OK, I know the treatment is getting really hard about now but everyday brings you close to the finish line. Take care my friend you are in my thought and prayers through out the day.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hondo and everyone,

Sorry I haven't posted, not in very good shape.

It turns out that it was not bone chips trying to come through my gums, it is exposed jaw bone in several places in mouth. They are planning to do surgery but I have to wait until I'm done with radiation on the 29th and a week after that.The Fentynal isn't working.

They stopped all chemo now due to the mouth problems.

I'm extremely weak and fatigued, they finally found a canned food that doesn't have Iodine in it but I won't receive it for 10 days.

I need to rest again so I will try to check in a little later.

Your friend,

Mike

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Mike,

So glad they've finally come up with a safer canned food for you. I don't want to think about how much more difficult this journey would be for me without the canned nutrition going in my tube right now. Having to wait another 10 days seems crazy, but at least you know it's coming.

Hate that you've met with yet another obstacle. Mike, I wish I could send you strength through the internet - you've showed us all here so much about strength and perseverance - wish there were a way for us to give you a physical boost. I know it's hard, and I've only experienced a fraction of the trials you have.

Keep knowing that there are a lot of us pulling for you and those kids. Like another survivor says, "When you're walking through hell, keep moving".

- Pam

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Sorry to hear about another problem that you don’t need, but I am glad to hear from you my friend. The 29th will be a celebration day in my book.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

mike, i am so sorry that you are in such pain. i am worried since you won't be getting that food for ten days. can you use resource boost breeze? it has sugar tho, i know some people don't do sugar, but i do not see iodine listed? it was on sale at walgreens, i ordered some two days ago. i know that at the height of my pain i really felt like that fentanyl was not helping. know that i am praying for you and the kids daily. i just want this to be over for you. sending you love and light. may you feel His presence and may God keep you in His tender care.

d

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Sorry to hear about the exposed skeletal in your mouth. My gum tissue, also, took a major loss- but not as extreme as your's. My larger concern was the bottom of my mouth, behind my lower-teeth. I can see the white of bone all along the left side to just behind my lower-front right-side teeth, and did make an issue about it with all my Drs. It was my Dentist(!!!) who spelled-it-out for me. Mike, look for a PM from me.

You, Mike, are experiencing something we have all been at risk for, in regards to gum tissue, loss, and the going forward. I state, again, that this is what my experience tells me: it is the combo of chemo where the rad is done that takes one to the physical extreme; and the mouth was, in my case, most vulnerable to the negative, when the rads were done while I was getting accelerated Cisplatin and FU5 via pumps I carried for 96-hours. Just getting the rads was a minor negative- my mouth recovered while getting only the rads in weeks #7 and #8. And with the particulars of what I experienced, I do wonder if the Med/Cancer community isn't still trying to get a handle on the gum tissue thing. I expressed large concerns over this issue in prior threads, and the responses did leave me wondering if such is 1)something we're "not supposed-to talk about," or 2)something that is only experienced to the problematic level by few of us.

Again, Mike- look for a PM from me. You, my friend, are in all of our Prayers. Know it, and...

Believe.

kcass

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

for some reason i do not have the option to edit my last post. the boost breeze DOES have iodine in it. i stand corrected. sorry.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi my friends,

Thank you all for your prayers and encouragement. It does help.

Good news! We met with Make-A-Wish staff and we are going to Disneyland California. We were trying to go to Disney World, but my son wouldn't be able to handle that many hours in a seat while in flight. His spine has to many problems. They are either going to rent a small RV and we drive down, in this way he can lie down when he needs to, or, we might be taking the train with a private compartment with a bed. He and my daughter are very excited about going. We will probably be going in September after kids have gone back to school so there won't be quite as long lines and the temperature isn't quite as hot.

I did find out something pretty cool, Make-A-Wish has a private room with a bed at Disneyland for their kids to lie down if they become fatigued in stead of having to go all the way back to their hotel room.

Has anyone any input on this? I am concerned about the condition of my lower lip and the tip of my tongue. My bottom lip is burned so much that it is an open sore, bleeding all the time and swollen large. The tip of my tongue hurts constantly and burned as well. It feels like I have it sitting in a boiling pot of water all the time. My question is: Do they have me lined up right in the radiation machine? There is at least 3/4 inch slop from where my chin sits and the top of my head is to touch the mask. It depends on how they position me as to whether or not I will be touching the top or the bottom of the mask. This seems wrong to me.

I know they go by the tattoo mark on my chest, but why the lip and tip of tongue burns?

It makes talking very difficult.

Sweets, thank you about the Boost, I had already found out the hard way that it has Iodine.

I have to run off for more radiation, thank you everyone for your prayers and encouragement.

Your friend

Mike

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Hi Mike, glad you got the Disney trip squared away. Hopefully you and the kids can enjoy a great day....

As for the mask, mine fit so tight that I usually had diamond welts across my forehaead everyday after treatment. I could barely open my eyes, my nose was squished and I could only open my mouth with clincehd lips...so in other words, my mask was extremely tight fit.

They didn't use a tatoo for mine. I know everyday when the put the mask on they had some kind of an alignment going on, reading numbers to each other. If it was off more than a few milimeters. I'd have to get a new mask made, which they did twice I believe.

So if your is that lose, I'd question that it's hitting the exact same spot with radiation everytime.

They also did an X-Ray every Monday after I was bolted in to make sure that I hadn't lost too much weight and the mask was too lose also.

God Bless Brother.
John

Fire34
Posts: 350
Joined: Feb 2010

Mike
Sorry to hear about the extra troulble you are having. I wish you well. As John said my mask als was extremely tight with all the troulbe he mentioned. I was also aligned every Monday and if the rad/onc didnt like what he saw I was aligned again. I did have a new mask made after the 3rd week due to weight loss. If you have any movement just as John said I would get it refit. Best Wishes
Dave

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Mike- might be typical. My upper-lip only had one minor sore on it, but the lower lip developed a number of sores. Bleeding was not a problem, though. Rad Dr. said to just put the Aquaphor ointment on the lip sores. Swallowing this ointment was a concern to me, but by then I wasn't exactly ingesting anything by mouth other than H2O and chopped-up pills, and the liquid Morph.

As for the tongue- unfortunately, yes. I had flesh-colored stripes running lengthwise down my tongue, and my Onco called it "scalding." Most unpleasant, of course. The entire mouth area is in harm's way, and I would urge you to make sure your Drs. know about the problem, and that they provide relief.

As for the mask- I had a goatee when I was fitted for mine, and after I shaved it off a little extra room mighta resulted. Because of prior neck trauma, I had them cut away a little below the chin to help in swallowing during the rads. And, yes, I could move a little within the mask, and would before the zapping actually started the 20-place sessions, but once those sessions started I didn't really have any problems with movement. EVERYONE hates the mask, Mike. As I've noted before, I found that holding my mouth in an overbite position, with lips a little open, allowed me to breathe thru both my nose and mouth during the sessions, and made it a lot easier to get thru them. AND, I would typically take a 1/2-tab of Xanax about 1/2-hour before every Rad session, and that included the times of Morph after I got home from the Rad.

We're all Praying for you, Mike.

Believe.

kcass

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Kent,

I had a rough time during radiation on Friday, I started choking and coughing on stomach acid as it went into my lungs. That broke a bunch of mucous loose in my throat and I was in trouble as I couldn't breathe and was still coughing. The technicians finally came in to see if I was alright and by that time I had coughed up something in the mask and could breathe again. I told them I needed to spit and clear my throat but they said I was half way through and they would have to restart the first part of alignment again if I got up. It was obvious they didn't want to do anything over so I went along with it but I shouldn't have as I had more difficulty towards the end.

My upper lip is almost as bad as my lower lip. The back of my neck is very burned and the skin is very dark, almost gray. It is covered with sores and scabs.

My tongue is very painful now, this morning when I woke up it was stuck to my lip and it was not pleasant getting them apart. I use the Lidocaine all through the day to try to ease the pain for a few minutes. I had to cut back on the Fentynal as it was making my to unstable to walk without the fear of falling down.

At what point do they bring in the baste? lol

I don't get any anxiety from having the mask on or being confined unless I can't breathe, either from coughing or from choking on the mucous. I usually fall asleep during the last half of the session.

I asked the technician about all the slop in the mask and he told me that the only place we don't lose weight is the top of the head. So, that's why they want my head to the top. I told him that once he lines me up and the top of my head is touching the top then I just slip back down to where my chin is touching, without my moving, it just happens. He said thats why they do the scan before they start so they can make the necessary adjustments.
I hope their "adjustments" are correct, my tongue and lips don't think they are! I told him that if I had something to put my feet against so I could keep myself at the top it would be better, but he told me they don't do that and he wants me to be relaxed during the procedure.

Trying to suck in air while you're turning blue is extremely relaxing, just as you pass out! lol

Thank you for the input Kent, and the prayers.

Your friend

Mike

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi John and Dave.

I didn't mean to ignore you guys, I'm not running on all cylinders right now.

I need to lie down so I will continue this later.

Your friend

Mike

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Glad you are still kickin...it's hard, but you've already gone through a lot.

You mentioned pushing down on something. When I had my treatments they had my push down on this board like contraptioon that had straps like a jump rope on it. I had to pull up on the straps and push with my feet so as to keep my shoulders pressed down during the treatment.

JG

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi John,

That's exactly what I thought they should have something to help yourself stay in place.
They put a foam wedge under my knees and thats it!

They put small foam wedges under my back that go out to help hold my elbows up, but they usually get knocked off when the machine rolls around.

I was "kickin", now it resembles a muscle spasm in my toe! lol

I have eleven more treatments to go. Gulp!

Your friend

Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

The 29th is not that far away anymore I will be counting down the days with you my friend.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Mike,
I have only my mask to hold me in place. I also have the foam wedges behind my knees, but think they're for comfort. I have what feels like metal clips that just push down on the tops of my shoulders - when I asked if they were to hold me in place, my rad tech said "no, that's the mask. These keep your shoulders out of the field.".

Here's hoping that toe spasm builds momentum again. 11 days.

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

At your stage I was on Morph and ice, with the PEG fully operational. Sounds like you're a bit worse-off than I experienced, because of the upper-lip. Mike, I'm 16-month, had gained all my weight back some 8-months after the last Rad, and even returned to work a month after that last Rad. You are living the rough times, Mike. And your times appear to be a lot rougher than a number of others. You just gotta fight the good fight, Mike, and know beyond any and all doubt that you WILL win this battle. As I've recovered at the end of my battle, so will you. Weeks #2-6 were so wonderful for me that they culminated in my spending the first four days of week #6 in a hospital, getting Morph shot into the Port on an hourly basis, along with extreme antibiotics. Thing is, Mike, I turned the corner over the last two days I spent in the hospital- that's when my recovery began, even though I still had over two weeks of Rads yet to go thru. So it was with my battle. What you are living, Mike, is just your battle. As man, Mike, all one can do is have his shirtsleeves rolled-up, fists clenched, wear yourself a nasty grin, and Pray. Hey, you ever wonder what it woulda been like to step in a ring with a prize fighter? Happening now, Mike, and you are up to the task at hand. With me, my opponent didn't know I have a Floyd Patterson left hook. And, remember- you have some important players in your corner:

MAKE SURE THE DRS. KNOW HOW YOU'RE DOING IN THIS FIGHT- they are in this battle with you, as are the Nurses. Also, you must get your nutrition, Mike- this is a MUST. You have to give your body the ammo it needs to win this battle.

Believe, Mike.

kcass

Chefdaddy
Posts: 164
Joined: Dec 2009

Thanks guys and gals.

Today was rough, as I realize all Mondays are now. After a weekend of no hydration, I wake up very dizzy, can barely walk and have to have my daughter help hold me up until I get there,lie down and get hooked up for hydration.

I'm still waiting for the new liquid food to arrive, it better get her soon, I lost another 8 pounds.

After we were through we were near the main hospitals ER and my daughters ulcer was tearing her up with nausea and pain so I had her looked at in the ER, but since she's still 17 she is seen in the Doernbecher's Children's Hospital's ER, a few feet away from the main ER.

While there, my brother contacted me to let me know that his daughter, who has three small children, 5, 3 and 1 1/2, had all just been physically abused by her boyfriend. He also hurt her as well. He was arrested and she left her home, two hours away, and went to her dad's for protection and to have the injury to her spine looked at by a specialist here.

The smallest one could not put any weight on his foot from what he did. Child Protective Services were brought in, along with a few other authorities, they wanted her and the kids to all be checked out. So here I am, with my daughter, who got her ulcer from the daily abuse by her mother's boyfriend and now here's my brother, with his daughter, and his grand kids, all injured by her boyfriend.

Then we learn that they released the guy from jail because of over crowding and that she hadn't filed charges against him. She was so upset they had to give her a sedative to calm her down. She had told the arresting police officers several times that she was filing charges. So now she has to go back to file charges.

The ER doctors and nurses were amazed they released the guy. By 11:30pm, we learned they were admitting the smallest child for further testing, due to what they saw from x-raying his body.

People that purposely hurt children are a total waste of skin, they should not share the same air with the rest of the population and should be terminated.

I definitely have a good reasons to fight through this damned illness and this barbaric treatment regimen, and that's to put myself in charge of the retirement plans for these two child abusing bastards. Unfortunately, their plans don't look so good.

Thank you everyone for your encouragement, I'm exhausted from this long stressful day and I need to turn the brain off.

Your "opinionated" friend

Mike

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

HI Mike,

Sorry ti hear your family is going through the nightmare or an abuser of children let alone your own duaghter. I share your views my friend and just hope you legal & prison system will 'take care' of them. Child abusers do not fair well in Australian prisons and are labelled 'Rock Spiders'. I assume the same happens in the US. Save your energy for now to fight your fight.

I hope you get some relief soon re your liquid foods. We are all thinking about you and sending the good vibes.

Scambuster

Chefdaddy
Posts: 164
Joined: Dec 2009

G'Day Scambuster,

Both my children were abused by my ex's boyfriend. My 14 year old son has leukemia and cannot walk due to both legs being surgically reconstructed, so running away to a safe place was out of the question. This guy purposely physically hurt him.

I would love to be the warden of a prison made just for these kind of people, they would think Hell was a vacation.

Thank you for your encouragement Scambuster.

Your friend

Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Sometimes it seams like the hold world is just gone crazy, there is a guy here arrested in Louisiana for killing his girlfriend 2 years son. What harm can a 2 year old do to a grown man that he would beat the kid to death, how sick can a person be. Then there was a guy who we all worked with for years, everyone thought he was a very nice guy did all his work and on time, never a problem. Until he was caught by the internet police trying to buy sex from a 13 year girl, I too don’t understand it and wonder how sad our world has become and how the Laws protect the criminal more then the victims.

If you get that job as Warden call me I would love to be the guy on the furnace handle keeping Hell HOT for people who hurt these little ones…

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

here in Florida, when injury has occurred, the state automatically
presses charges even if the victim changes her mind. protective measure to victims too
afraid to press on.
Hope it gets better for all of you!

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Hondo and thegirlfriend,

That's exactly what this backwards ass state of Orygun needs, some intelligent law makers to put laws like that in place that are based on common sense!

I swear they filmed the movie "Deliverance" here and they didn't need to use actors!
Everyday I here banjos here.

Here in Portland, some law enforcement officers shoot unarmed, burnt, naked people, instead of the real criminals.

There are so many "deal making" District Attorneys in this state. The last time the retarded puke attacked my daughter, the local D.A. didn't even charge him for hurting her, but instead charged him for breaking a "No Contact Order". Then the waste of skin D.A. pleaded that completely out. And to think, we pay these people to protect the victims and seek justice.

He spent a total of 6 hours behind bars and my kids are still in ongoing heavy counselling.

Hondo my friend, you got a deal! Get that sucker hot!

I better sign off before I say too much, as this issue is a very exposed nerve to me.

Plus, they will probably find a reason to shoot me, while I'm taking a shower. lol

I know, they will confuse my Fentynal "lolly pop" for a weapon!

Okay okay, I'm off.

Your friend

Full of holes Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Countdown to the finish line if I am right 9 more to go brother. I know you are losing a lot of weight right about now, just hope your food can show-up in time so you don’t need the hospital stay.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi my friend,

I think you are right on the number. Just as you described to me the other day, I'm noticing the pain level rising rapidly as I get closer to the end.

I had some success getting 600 calories in my PEG yesterday and almost that today. I found in the grocery store some canned nectar drinks. Each can(pop can size)has 200 calories.
There are a couple different brands out there, but the "Jumex" brand has the most calories.

I also had one of those milk drinks that's supposed to resemble a milkshake. It has 200 calories per 8oz. serving and it comes in a 16oz. container.
I did notice having more energy today.

I will be glad when the canned food gets here, as it has 600 calories per can.

I'm heading off to bed, as I am pretty loopy from the lolly pop.

God Bless

Mike

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Glad to see you moving toward the end of the road buddy, keep up the good work. I hear some pretty positive vibes in your post Mike, glad to see that.

Take care and waiting anxiously for more positive news shortly down the road from you....

John

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

You are getting close to the end now, after tomorrow you will only have 6 more to go. Sorry you are in so much pain, but I am Glad to hear you are getting some food or drink in you. Get some rest your body needs it.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi John and Hondo,

I only had radiation today, when I got home I laid down for a nap at 1:30pm and I woke up at 7:30pm. I think it all caught up with me.

The back of my neck is all scabs and sores, but I have been noticing a lot of soreness and achyness in my shoulder muscles, below my neck. I got another mirror and looked at my backside and saw that the skin was dark and grayish down about 8 inches below my neck and over to my right shoulder blade.

When I got to radiation today I asked the tech about it and he said" that's normal, we're radiating you from here up" He pointed to where his nipples would be and up to his nose.
Just the other day he did the same thing, but he told me it was from the top of the chest bone up. Can radiation cook your heart, or some other important organ? I'm beginning to think that no matter where you get burns that they would say "that's normal". lol

After this I may need extensive counselling before I can ever put another steak on the barbecue!

Your friend

Seared Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

You got that right Mike, after radiation you know just what happens in side of a microwave oven and cooking will never be the same. Glad to hear you got some rest as you body needs it.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

i am so mad i am shaking. these people who hurt children should be terminated. i am sorry for this latest family crises. prayers as always. i am hoping that food is coming soon? hugs to you and kids mike,

d

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Sweets,

I'm so glad to hear from you, I was getting very worried that you had a setback.

Today before I laid down for a nap I had a loud knocking at the front door and I thought it would be UPS delivering my food. I had to hold back my laughter when I answered the door, as it was a Mexican gentleman who apparently supplied the previous family that had lived here with Tamales. lol

It turned out that the baby has a fractured leg and now has a cast on that he doesn't like very much. My brother has been with the other two boys constantly and he told me today that he can't believe the degree of anger and filthy language that comes out of the two boys mouths.

The oldest is 4, not 5 as I had thought. He said that the oldest constantly play acts with whatever he can get in his hands to pretend it's a sword or knife and then curses loudly that he's going to kill the *****. (his mother) Then the younger brother copies him saying the same things. My brother told me that while the CPS worker was interviewing the kids at my brothers apartment, he got to see the kids doing this behavior and became very angry at what he was seeing as result of the boyfriends domination and abuse.

Both boys have not had a night yet that hasn't been filled with nightmares and crying.

CPS said the boys will be going through heavy counselling, as well as mom.

Yes Sweets, I can't agree with you more regarding terminating waste of skin child molesters and abusers.

Your friend

Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

It is a sad thing to hear how some people can be so shocking on how and what they teach there children. My father was a seaman and when he would come home if we did anything he did not like he would beat us with out any mercy, I am glad that my Mother was there to stop him or he would have killed us. There marriage did not last long

Take care my friend

Chefdaddy
Posts: 164
Joined: Dec 2009

I'm so very sad to hear you went through that as well Hondo. I too had a father that shouldn't have had any children, he had an incredible temper.

He had a habit of kicking you in the tail bone as you walked away from him. When I was 15 I was 6 foot and 200lbs. and after a brief argument I turned to walk away and I knew what was coming. I had had my fill, so I turned and caught his foot as it was coming towards me and shoved it up towards the ceiling and then I stepped on his other foot that was on the floor.
As he stood there in pain, doing the splits, I told him if he ever touched me again, it would hurt him, not me! After that he started being nicer to me and we finally became friends.

Unfortunately, I had to wait until I was big enough to protect myself. These poor helpless children are defenseless and have to rely on their mother and when mom is also being beaten and mind controlled the kids don't have any protection until the mother takes a big risk for her and the kids by contacting law enforcement or Child Protective Services.

Take care my friend,

Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

How are you doing today, you are in the last full week of treatment, just up ahead is the finish line and soon you will be the one crossing it. I know it has all been hard but most of it is all behind you now.

Take care my friend I am waiting at the 29th finish line for you.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Hondo,

Yuppers, this is the final week! Yippie!!! It actually ends on Monday, the 29th.

The day started off very scary, as radiation's machine had broken down earlier, and by the time I got out of there and home to change into dress clothes and drive back down town in heavy late afternoon traffic, I was almost late to court. That would have been very bad.

When my crazy ex saw me enter the courtroom she couldn't stop staring at me, as I'm now 60lbs lighter, burnt swollen lips, big radiation sores on the back of my neck, radiation burns on both sides of my throat and surgery scars on my neck. (real hunk huh? lol)

She then came to my part of the table that faces the judge and started putting her hands on me, and started crying, asking me if I had cancer, was I sick? I kept telling her to take her hands off me and go sit down. This went on for nearly five minutes and finally the judge entered the courtroom and she had to go back to the other end of the table.

Then the judge started staring at me and said "I'm going to ask you a personal question".
I responded with "Do I have to answer it in this arena?" He said "No, but I"m going to ask it anyway and if you do not want to answer it then just say that you decline to answer".

He then said, "You look very different from almost 2 months ago, are you ill?" I said "I've been under the weather lately", he smiled at me, knowing I wasn't going to give him a strait answer if I could get away with it. He then asked, "Are you well enough to go through todays hearing?" I said "Yes". and that was the end of that. But the ex, who was so tearful and concerned a couple minutes before, immediately started bashing and blaming me for everything. The judge caught her lying and then put her under oath.

In the end, the judge ruled against her motion in trying to get the previous judges Order of no parenting time, and no contact reversed.

I'm so glad this is over. For her to get another chance at this in court in trying to get the "No Parenting Time or Contact Order" overturned, she would have to Ex Parte a judge and convince him to go against what todays judge ruled today. I don't see that happening any time soon.

After the judge made his ruling, she started yelling at him, saying that she was taking this to the media. I was really hoping that he would hit her with contempt, but he knows she's nuts.

Other than truly fearing that she might appear with a loaded gun and shoot my butt, I feel like a big load has been taken off. The kids were very happy when they found out the final results.

Now, I can finally concentrate on making it through this final week.

Thank you for your never ending words of encouragement.

Your friend,

Mike

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Mike,
What great news! So glad you have this one thing off of your plate. Wonderful that your kids can (hopefully) feel like the court system is really out to help them.

I know what you mean about showing up in court looking a little worse for wear. I had to face my ex last month in court. Outside the courtroom was a sign saying that cell phones and hats were prohibited - my friend later said that was perfect, since no one could go against a pitiful bald woman. Very glad that the judge was wise enough to realize that even if you're very ill, you're the only acceptable option.

So, 6 days? Great. Hope you can get this last leg completed, and get on to the business of speedy recovery. I'm almost 2 weeks since last chemo, nearly 1 since last rad, and I'm already showing signs of recovery. Hope it's at least as quick for you.

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