Dorian And LeesaG

cancer survivor x 4
cancer survivor x 4 Member Posts: 177
edited March 2014 in Ovarian Cancer #1
Please post. We are thinking about you and worrying. Thank-You, Paula
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Comments

  • msfanciful
    msfanciful Member Posts: 559
    Yes you guys...
    Please let

    Yes you guys...

    Please let us know how you are doing?

    I've gotten so use to seeing your regular posts. I know it's selfish, but we do care.

    Love,

    Sharon
  • leesag
    leesag Member Posts: 621 Member
    Chemo Update
    You guys are the best!

    I haven't posted because I was stressing about my oncologist appointment which was yesterday. I had worried myself into a state of exhaustion I think, so when I heard Dr. Miller say the word CURE and then saw her write CURE on my care plan, everything inside me rejoiced and collapsed at the same time!

    Yes, our goal is to eradicate this monster inside me, using six treatments of carbo/taxol, one every three weeks. While I am all to aware of the recurrence rate of this, I am focusing on the word CURE and praying that, like so many others, I have many years (dare I say decades) of dancing with NED at the end of my treatment schedule. We briefly discussed IP therapy, but decided against it.

    After I met with the oncologist, Dr. Miller, a wonderful woman who will provide not only the knowledge to develop a battle plan but also the care and comfort that I, personally, need; we traveled throughout the hospital to get the necessary tests done before the portacath goes in on Thursday. Everything was accomplished quickly, but it was a lot more walking than I've done since I got out of the hospital 2 weeks ago! First it was a visit to the vampires for a blood draw (I'm eager to see my CA125 results after surgery), then off to Radiology for a chest xray, then on to Cardiology for an EKG! You'd think they'd keep all of the pre-surgical testing locations fairly close, but NOOOOOOOOO!

    So, here is my schedule for the next two weeks:

    Tomorrow: removal of a broken wisdom tooth (happened over the weekend, lucky me)
    Thursday: insertion of portacath
    Wednesday 3/10: post op with Dr. Im (gyn/onc)followed by new chemo patient orientation
    Thursday 3/11: Chemo Treatment #1

    Oh..I left out Saturday: BIG bottle of Red Wine! lol

    On another note: my husband and I had been given a DVD of the first PET scan and we've avoided looking at it. Dr. Miller popped it into her computer and showed it to us. It wasn't as scary as I thought it would be (but I had no idea what I was looking at) and my husband, who is a nurse and has seen scary PET scans, said it was much better than he had expected.


    It's amazing how even good news can be draining! (It's also amazing what "good news" is in my new reality--Stage 3C is good news, chemotherapy is good news...!)

    I've been worried about our Linda and Meghan too... I hope all went well with her paracentesis yesterday. I'm keeping her and Meghan in my thoughts and prayers.


    Hugs to all!

    Leesa

    (PS: I also got a prescription for "cranial prosthesis for psychological support" so I guess my insurance company will pay for my new hair! I have to restrain my husband from choosing something totally inappropriate, like a mullet!)
  • leesag
    leesag Member Posts: 621 Member
    leesag said:

    Chemo Update
    You guys are the best!

    I haven't posted because I was stressing about my oncologist appointment which was yesterday. I had worried myself into a state of exhaustion I think, so when I heard Dr. Miller say the word CURE and then saw her write CURE on my care plan, everything inside me rejoiced and collapsed at the same time!

    Yes, our goal is to eradicate this monster inside me, using six treatments of carbo/taxol, one every three weeks. While I am all to aware of the recurrence rate of this, I am focusing on the word CURE and praying that, like so many others, I have many years (dare I say decades) of dancing with NED at the end of my treatment schedule. We briefly discussed IP therapy, but decided against it.

    After I met with the oncologist, Dr. Miller, a wonderful woman who will provide not only the knowledge to develop a battle plan but also the care and comfort that I, personally, need; we traveled throughout the hospital to get the necessary tests done before the portacath goes in on Thursday. Everything was accomplished quickly, but it was a lot more walking than I've done since I got out of the hospital 2 weeks ago! First it was a visit to the vampires for a blood draw (I'm eager to see my CA125 results after surgery), then off to Radiology for a chest xray, then on to Cardiology for an EKG! You'd think they'd keep all of the pre-surgical testing locations fairly close, but NOOOOOOOOO!

    So, here is my schedule for the next two weeks:

    Tomorrow: removal of a broken wisdom tooth (happened over the weekend, lucky me)
    Thursday: insertion of portacath
    Wednesday 3/10: post op with Dr. Im (gyn/onc)followed by new chemo patient orientation
    Thursday 3/11: Chemo Treatment #1

    Oh..I left out Saturday: BIG bottle of Red Wine! lol

    On another note: my husband and I had been given a DVD of the first PET scan and we've avoided looking at it. Dr. Miller popped it into her computer and showed it to us. It wasn't as scary as I thought it would be (but I had no idea what I was looking at) and my husband, who is a nurse and has seen scary PET scans, said it was much better than he had expected.


    It's amazing how even good news can be draining! (It's also amazing what "good news" is in my new reality--Stage 3C is good news, chemotherapy is good news...!)

    I've been worried about our Linda and Meghan too... I hope all went well with her paracentesis yesterday. I'm keeping her and Meghan in my thoughts and prayers.


    Hugs to all!

    Leesa

    (PS: I also got a prescription for "cranial prosthesis for psychological support" so I guess my insurance company will pay for my new hair! I have to restrain my husband from choosing something totally inappropriate, like a mullet!)

    Sorry for the long winded post
    Wow, I sure do write a lot!

    Sorry about that ladies!

    :)

    Leesa
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    leesag said:

    Sorry for the long winded post
    Wow, I sure do write a lot!

    Sorry about that ladies!

    :)

    Leesa

    Hi Leesa
    It is a joy to read your news. I am sure you'll cope fine on the chemo regime - it is the same as mine and before you know it you are on your last infusion. Wishing you all the best Tina xx
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    leesag said:

    Chemo Update
    You guys are the best!

    I haven't posted because I was stressing about my oncologist appointment which was yesterday. I had worried myself into a state of exhaustion I think, so when I heard Dr. Miller say the word CURE and then saw her write CURE on my care plan, everything inside me rejoiced and collapsed at the same time!

    Yes, our goal is to eradicate this monster inside me, using six treatments of carbo/taxol, one every three weeks. While I am all to aware of the recurrence rate of this, I am focusing on the word CURE and praying that, like so many others, I have many years (dare I say decades) of dancing with NED at the end of my treatment schedule. We briefly discussed IP therapy, but decided against it.

    After I met with the oncologist, Dr. Miller, a wonderful woman who will provide not only the knowledge to develop a battle plan but also the care and comfort that I, personally, need; we traveled throughout the hospital to get the necessary tests done before the portacath goes in on Thursday. Everything was accomplished quickly, but it was a lot more walking than I've done since I got out of the hospital 2 weeks ago! First it was a visit to the vampires for a blood draw (I'm eager to see my CA125 results after surgery), then off to Radiology for a chest xray, then on to Cardiology for an EKG! You'd think they'd keep all of the pre-surgical testing locations fairly close, but NOOOOOOOOO!

    So, here is my schedule for the next two weeks:

    Tomorrow: removal of a broken wisdom tooth (happened over the weekend, lucky me)
    Thursday: insertion of portacath
    Wednesday 3/10: post op with Dr. Im (gyn/onc)followed by new chemo patient orientation
    Thursday 3/11: Chemo Treatment #1

    Oh..I left out Saturday: BIG bottle of Red Wine! lol

    On another note: my husband and I had been given a DVD of the first PET scan and we've avoided looking at it. Dr. Miller popped it into her computer and showed it to us. It wasn't as scary as I thought it would be (but I had no idea what I was looking at) and my husband, who is a nurse and has seen scary PET scans, said it was much better than he had expected.


    It's amazing how even good news can be draining! (It's also amazing what "good news" is in my new reality--Stage 3C is good news, chemotherapy is good news...!)

    I've been worried about our Linda and Meghan too... I hope all went well with her paracentesis yesterday. I'm keeping her and Meghan in my thoughts and prayers.


    Hugs to all!

    Leesa

    (PS: I also got a prescription for "cranial prosthesis for psychological support" so I guess my insurance company will pay for my new hair! I have to restrain my husband from choosing something totally inappropriate, like a mullet!)

    Your treatment plan is
    Your treatment plan is exactly the same as mine, including the "no IP" decision (my doctor's, not mine). I just finished my final infusion of the carbo/taxol cocktail a couple of weeks ago and unlike most people, my treatment got easier as time went on, with my first one being the worst, by far.

    Tomorrow I go in for a CT scan, and if I'm NED I will resume Taxol only (reduced dosage), monthly for another year, as a precaution against first year recurrence. I guess another year of chemo/no hair is a better option than a cancer recurrence, but it's certainly not what I was hoping for when I first started. "Cancer-free", I am learning, just means you don't have Cancer (that they can see, anyway); it doesn't mean you don't have to go on dealing with Cancer "stuff". Bah and blech!

    About the wig.....your hair will start falling out almost exactly 2 weeks after your first treatment. I never lost all mine, but it is sooooooooo sparse, I might as well have. Everyone told me (and they were right) that it makes a huge mess when your hair starts coming out, so I opted to get mine cut very short (think Jamie Lee Curtis) pre-chemo. I figured it was either that or I'd end up doing the GI Jane thing with the dog clippers.

    I have a human hair wig and wear it almost every day. My insurance paid most of the cost. Since I learned that I will be getting Taxol (famous for its baldness inducing properties) for a whole year, I recently bought a second, less expensive synthetic wig.

    I first ordered one from the American Cancer Society (online), but sent it back. Then I went to a wig store and found one I loved. It was more than I wanted to spend on a "backup" wig ($320), but I took note of the brand and style names and did some comparison shopping on the Internet. I found the same wig for half the price.

    Both human and synthetic wigs have advantages and disadvantages. I suggest you talk to a shop/stylist that sells both; that way you get a more unbiased opinion.

    And buy some hats. Although I never liked hats before, I have a whole wardrobe of them now. They are absolutely necessary for when the doorbell rings and you don't want to startle the UPS guy. My favorite is a lime green baseball cap that has bling all over it.

    Carlene
  • lindaprocopio
    lindaprocopio Member Posts: 1,980

    Your treatment plan is
    Your treatment plan is exactly the same as mine, including the "no IP" decision (my doctor's, not mine). I just finished my final infusion of the carbo/taxol cocktail a couple of weeks ago and unlike most people, my treatment got easier as time went on, with my first one being the worst, by far.

    Tomorrow I go in for a CT scan, and if I'm NED I will resume Taxol only (reduced dosage), monthly for another year, as a precaution against first year recurrence. I guess another year of chemo/no hair is a better option than a cancer recurrence, but it's certainly not what I was hoping for when I first started. "Cancer-free", I am learning, just means you don't have Cancer (that they can see, anyway); it doesn't mean you don't have to go on dealing with Cancer "stuff". Bah and blech!

    About the wig.....your hair will start falling out almost exactly 2 weeks after your first treatment. I never lost all mine, but it is sooooooooo sparse, I might as well have. Everyone told me (and they were right) that it makes a huge mess when your hair starts coming out, so I opted to get mine cut very short (think Jamie Lee Curtis) pre-chemo. I figured it was either that or I'd end up doing the GI Jane thing with the dog clippers.

    I have a human hair wig and wear it almost every day. My insurance paid most of the cost. Since I learned that I will be getting Taxol (famous for its baldness inducing properties) for a whole year, I recently bought a second, less expensive synthetic wig.

    I first ordered one from the American Cancer Society (online), but sent it back. Then I went to a wig store and found one I loved. It was more than I wanted to spend on a "backup" wig ($320), but I took note of the brand and style names and did some comparison shopping on the Internet. I found the same wig for half the price.

    Both human and synthetic wigs have advantages and disadvantages. I suggest you talk to a shop/stylist that sells both; that way you get a more unbiased opinion.

    And buy some hats. Although I never liked hats before, I have a whole wardrobe of them now. They are absolutely necessary for when the doorbell rings and you don't want to startle the UPS guy. My favorite is a lime green baseball cap that has bling all over it.

    Carlene

    Any chance you could get a Power Port?
    Please ask about a Power Port when you go in to have your post inserted. (Unless the decision is already firmly made). They can use a Power Port to give your CT-scan and PET-scan contrasts, whereas that is not true of most other ports. If you are skinny or boney, a Power Port can stand up a bit more than other ports, but I don't care if it looks bad; most of my clothes cover it. I love not having extra 'sticks' when I get scans. I didn't get a port at all for my 1st six rounds of carbo-taxol, and by the 4th round was really regretting it as the chemo was so hard on my veins that they had to call in the "IV Team" to get an IV in me. When I had my recurrence, I got the Power Port right away. Just an idea!
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834

    Any chance you could get a Power Port?
    Please ask about a Power Port when you go in to have your post inserted. (Unless the decision is already firmly made). They can use a Power Port to give your CT-scan and PET-scan contrasts, whereas that is not true of most other ports. If you are skinny or boney, a Power Port can stand up a bit more than other ports, but I don't care if it looks bad; most of my clothes cover it. I love not having extra 'sticks' when I get scans. I didn't get a port at all for my 1st six rounds of carbo-taxol, and by the 4th round was really regretting it as the chemo was so hard on my veins that they had to call in the "IV Team" to get an IV in me. When I had my recurrence, I got the Power Port right away. Just an idea!

    I have a Power Port and I
    I have a Power Port and I have to drink TWO bottles of contrast fluid for my upcoming CT scan. Can they give them via the port? Please say "yes" and I will call radiology ASAP. I hate that stuff!

    My Power Port was placed while I was still in the hospital because I could not eat without vomiting and they fed me via the port. Also, if you have to have blood transfusions during your chemo, due to low hemoglobin, they do that thru the port, as well. (This may be true of other types of ports....I don't know as the Power Port is my first.)

    There is an even newer port available, but I forgot the name of it.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980

    I have a Power Port and I
    I have a Power Port and I have to drink TWO bottles of contrast fluid for my upcoming CT scan. Can they give them via the port? Please say "yes" and I will call radiology ASAP. I hate that stuff!

    My Power Port was placed while I was still in the hospital because I could not eat without vomiting and they fed me via the port. Also, if you have to have blood transfusions during your chemo, due to low hemoglobin, they do that thru the port, as well. (This may be true of other types of ports....I don't know as the Power Port is my first.)

    There is an even newer port available, but I forgot the name of it.

    Sorry,no barium or 'Crystal Light' contrasts in the Power Port!
    It would be awesome if they could pour that barium contrast into the Power Port! HA! Alas, NO. & I still have to drink the 3 glasses of lemon-y stuff for a CT/PET.

    But they can shoot into a Power Port the stuff that you would otherwise get by IV for CT-scans (the stuff that gives you the sudden rush of heat in your groin). And they can shoot into a Power Point the radioactive stuff you would ordinarily need to get in a shot without it.
  • msfanciful
    msfanciful Member Posts: 559
    leesag said:

    Sorry for the long winded post
    Wow, I sure do write a lot!

    Sorry about that ladies!

    :)

    Leesa

    Good to see your're okay
    Good to see your're okay Leesa,

    Also dorian is doing fairly well. She spent the entire weekend with Meghan and did girly things together. So she's joyfully busy with her precious daughter right now. Hopefully she'll be back.

    Just glad you guys are both okay.

    Sharon
  • leesag
    leesag Member Posts: 621 Member
    leesag said:

    Chemo Update
    You guys are the best!

    I haven't posted because I was stressing about my oncologist appointment which was yesterday. I had worried myself into a state of exhaustion I think, so when I heard Dr. Miller say the word CURE and then saw her write CURE on my care plan, everything inside me rejoiced and collapsed at the same time!

    Yes, our goal is to eradicate this monster inside me, using six treatments of carbo/taxol, one every three weeks. While I am all to aware of the recurrence rate of this, I am focusing on the word CURE and praying that, like so many others, I have many years (dare I say decades) of dancing with NED at the end of my treatment schedule. We briefly discussed IP therapy, but decided against it.

    After I met with the oncologist, Dr. Miller, a wonderful woman who will provide not only the knowledge to develop a battle plan but also the care and comfort that I, personally, need; we traveled throughout the hospital to get the necessary tests done before the portacath goes in on Thursday. Everything was accomplished quickly, but it was a lot more walking than I've done since I got out of the hospital 2 weeks ago! First it was a visit to the vampires for a blood draw (I'm eager to see my CA125 results after surgery), then off to Radiology for a chest xray, then on to Cardiology for an EKG! You'd think they'd keep all of the pre-surgical testing locations fairly close, but NOOOOOOOOO!

    So, here is my schedule for the next two weeks:

    Tomorrow: removal of a broken wisdom tooth (happened over the weekend, lucky me)
    Thursday: insertion of portacath
    Wednesday 3/10: post op with Dr. Im (gyn/onc)followed by new chemo patient orientation
    Thursday 3/11: Chemo Treatment #1

    Oh..I left out Saturday: BIG bottle of Red Wine! lol

    On another note: my husband and I had been given a DVD of the first PET scan and we've avoided looking at it. Dr. Miller popped it into her computer and showed it to us. It wasn't as scary as I thought it would be (but I had no idea what I was looking at) and my husband, who is a nurse and has seen scary PET scans, said it was much better than he had expected.


    It's amazing how even good news can be draining! (It's also amazing what "good news" is in my new reality--Stage 3C is good news, chemotherapy is good news...!)

    I've been worried about our Linda and Meghan too... I hope all went well with her paracentesis yesterday. I'm keeping her and Meghan in my thoughts and prayers.


    Hugs to all!

    Leesa

    (PS: I also got a prescription for "cranial prosthesis for psychological support" so I guess my insurance company will pay for my new hair! I have to restrain my husband from choosing something totally inappropriate, like a mullet!)

    Insult to injury
    My incision is leaking serous sanguinous (sp?) fluid in a tiny section. So I have a 7:15 appt with my surgeon tomorrow before the wisdom tooth is pulled. The good news: I can spend the rest of the day in a vicodine induced sleep.

    :)

    Leesa

    I'm glad Linda and Meghan had a good weekend together! Hope to hear more good news soon!
  • leesag
    leesag Member Posts: 621 Member
    leesag said:

    Insult to injury
    My incision is leaking serous sanguinous (sp?) fluid in a tiny section. So I have a 7:15 appt with my surgeon tomorrow before the wisdom tooth is pulled. The good news: I can spend the rest of the day in a vicodine induced sleep.

    :)

    Leesa

    I'm glad Linda and Meghan had a good weekend together! Hope to hear more good news soon!

    Update to the injury
    The incision was sealed with silver nitrate; and the oral surgeon decided that not one but THREE wisdom teeth needed pulling. So I'm typing this and then taking some vicodine and then I'm going to sleep. Still no news from Linda? Hopefully she's busy getting settled in at home with Meghan.

    Hugs to all!

    Lees
  • dorion
    dorion Member Posts: 183
    leesag said:

    Update to the injury
    The incision was sealed with silver nitrate; and the oral surgeon decided that not one but THREE wisdom teeth needed pulling. So I'm typing this and then taking some vicodine and then I'm going to sleep. Still no news from Linda? Hopefully she's busy getting settled in at home with Meghan.

    Hugs to all!

    Lees

    awwwww so you do care
    You guys are so sweet. so you really do care eh? Sorry for the worry, but I did write to Sharon to update her and she did exactly what I wanted her to do for me but didn't ask, was to post to you guys because I knew I didn't have time lastnight. Thank you Sharon! As for me, well it's not as much as a whirlwind as for you Leeza, but I do know from personal experience that it is very overwhelming. I too was on the same cocktail, twice. You will most likely feel the effects of it say you had it on Wednesday buy Sunday (at least my experience) you will feel this pain in your lower joints, knees and ankles, but everyone is different. Good luck Leeza girl! you'll be fine, we are all here for you. Meghan surpised me lastnight with an unofficial visit and I had no clue, she just showed upn with her bags in hand...lol......so she spent the night with me, still here......well for those of you who have followed you will remember that I was suppose to be in the clinical trail thingy, which Monday he told me that I no longer will be included (yet again) in this clinical trail study because (love this one) I'm not showing enough symptoms of a bowel obstruction (yes!!!!!) so I was left thinking "now what?". However they were going to do the drain that day, which they did and only got out 900 cc which isn't much but it was enough to give me some relief, my legs, oh my legs. They did show signs of going down when I got up this morning, I could actually see my knees, but now after walking it's back.

    Ok back to the point, yesterday now although I'm not included in this study means nothing, it's just that, I am waiting right now for my chemo it's only going to be taxol this time. So I will let you know how it went. Got to go, this nurse is driving me right around the freaken bend, she won't stop freaken coming in my room. making me move my chair while I write to write on the
    board. Love you guys......
  • msfanciful
    msfanciful Member Posts: 559
    dorion said:

    awwwww so you do care
    You guys are so sweet. so you really do care eh? Sorry for the worry, but I did write to Sharon to update her and she did exactly what I wanted her to do for me but didn't ask, was to post to you guys because I knew I didn't have time lastnight. Thank you Sharon! As for me, well it's not as much as a whirlwind as for you Leeza, but I do know from personal experience that it is very overwhelming. I too was on the same cocktail, twice. You will most likely feel the effects of it say you had it on Wednesday buy Sunday (at least my experience) you will feel this pain in your lower joints, knees and ankles, but everyone is different. Good luck Leeza girl! you'll be fine, we are all here for you. Meghan surpised me lastnight with an unofficial visit and I had no clue, she just showed upn with her bags in hand...lol......so she spent the night with me, still here......well for those of you who have followed you will remember that I was suppose to be in the clinical trail thingy, which Monday he told me that I no longer will be included (yet again) in this clinical trail study because (love this one) I'm not showing enough symptoms of a bowel obstruction (yes!!!!!) so I was left thinking "now what?". However they were going to do the drain that day, which they did and only got out 900 cc which isn't much but it was enough to give me some relief, my legs, oh my legs. They did show signs of going down when I got up this morning, I could actually see my knees, but now after walking it's back.

    Ok back to the point, yesterday now although I'm not included in this study means nothing, it's just that, I am waiting right now for my chemo it's only going to be taxol this time. So I will let you know how it went. Got to go, this nurse is driving me right around the freaken bend, she won't stop freaken coming in my room. making me move my chair while I write to write on the
    board. Love you guys......

    Of Course We Care!
    Just glad to see you and Leesa again.

    At least a bowel obstruction doesn't seem to be the major issue. This seems like good news to me.

    Love,

    Sharon
  • dorion
    dorion Member Posts: 183

    Of Course We Care!
    Just glad to see you and Leesa again.

    At least a bowel obstruction doesn't seem to be the major issue. This seems like good news to me.

    Love,

    Sharon

    confirmation of taxol
    Well someone answered my questio befor I asked about hair loss and taxol, that is what i received tonight. This one hit me hard, I have never been so tired before. Now it's almost 6 a.m and I can't sleep. I just found out that there are fundaisers that enable "look good feel better" them to supply wigs for one's who can't afford a wig. This was never brought up to me when I drooling over a wig that I could't afford, couldn't afford even the ones I did't drool over. No one said a word to me. So one way to pass the day tomorrow is to look for ather wig ad see if I can get in on this list. Love to u guys. Eyes are getting heavy.
    Linda
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    dorion said:

    confirmation of taxol
    Well someone answered my questio befor I asked about hair loss and taxol, that is what i received tonight. This one hit me hard, I have never been so tired before. Now it's almost 6 a.m and I can't sleep. I just found out that there are fundaisers that enable "look good feel better" them to supply wigs for one's who can't afford a wig. This was never brought up to me when I drooling over a wig that I could't afford, couldn't afford even the ones I did't drool over. No one said a word to me. So one way to pass the day tomorrow is to look for ather wig ad see if I can get in on this list. Love to u guys. Eyes are getting heavy.
    Linda

    Weekly taxol did a good job for me. (((((Linda))))))
    Weekly taxol did a good job of shrinking my lymph nodes. 10 rounds and I'm super-bald and had some serious fatigue during that time, but it did a good job of knocking my cancer back & I pray for the same for you. The fractionated dose really helped me keep my blood counts up, and I didn't get the neuropathy or bone pain I had when carbo was mixed in the first go-round.

    Wig shopping is FUN! You have such a pretty face that you can get away with something more daring. I love the spiky look in your photo; you could get something with a razor-cut modern look. If you can get a microfilament wig, with an airy construction, you'll have something carefree and not as hot. My 'good' wig is like that. Then I bought 2 cheap ones (including the one in my photo) online, just to give myself a lift on a down day. And it works!!)
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    dorion said:

    confirmation of taxol
    Well someone answered my questio befor I asked about hair loss and taxol, that is what i received tonight. This one hit me hard, I have never been so tired before. Now it's almost 6 a.m and I can't sleep. I just found out that there are fundaisers that enable "look good feel better" them to supply wigs for one's who can't afford a wig. This was never brought up to me when I drooling over a wig that I could't afford, couldn't afford even the ones I did't drool over. No one said a word to me. So one way to pass the day tomorrow is to look for ather wig ad see if I can get in on this list. Love to u guys. Eyes are getting heavy.
    Linda

    Look Good, Feel Better is
    Look Good, Feel Better is the name of the program and it is coordinated by the American Cancer Society. Most hospitals have one every month. And they will indeed give you a wig - for free. Also hats, scarves, makeup, etc.
  • dorion
    dorion Member Posts: 183

    Look Good, Feel Better is
    Look Good, Feel Better is the name of the program and it is coordinated by the American Cancer Society. Most hospitals have one every month. And they will indeed give you a wig - for free. Also hats, scarves, makeup, etc.

    knocked out
    Hi Gang
    Well if this is any indication of how I'm gonna feel during these cycles I'm afraid I'm not going to get much done. I am so so tired, cold as heck. I'm having a real hard time catching my breath. I think I may or may not have mantioned that I go once a week. OH I forgot to tell you, they've discharged me, I"M HOME! LOL the most important news..lol...chemo brain is starting already. I got home yesterday around 6 p.m. Meghan is so happy. My legs went down, but when I get up to walk around again, they puff back up again, I sure hope this goes away. They think the chemo will take care of that. I need home care to come in everyday with an iv drip for some sort of antibiotic, for that viral thing I caught in the hospital. I had chinese food lastnight, oh my what a tasty treat that was and then a good ole poo afterwards...lol.....well all laughing aside I need to go and lay down again, just got up to use the bathroom and took the laptop with me....love u all as always. Yes I know about Look Good, it's a wonderful place, I mentioned before that they have a program set up for people like me that can't afford a wig and they will donate one to you, they never mentioned that to me before when I went in a couple of years ago, but I"ll inquire. well must run.

    Linda
  • Mwee
    Mwee Member Posts: 1,338
    dorion said:

    knocked out
    Hi Gang
    Well if this is any indication of how I'm gonna feel during these cycles I'm afraid I'm not going to get much done. I am so so tired, cold as heck. I'm having a real hard time catching my breath. I think I may or may not have mantioned that I go once a week. OH I forgot to tell you, they've discharged me, I"M HOME! LOL the most important news..lol...chemo brain is starting already. I got home yesterday around 6 p.m. Meghan is so happy. My legs went down, but when I get up to walk around again, they puff back up again, I sure hope this goes away. They think the chemo will take care of that. I need home care to come in everyday with an iv drip for some sort of antibiotic, for that viral thing I caught in the hospital. I had chinese food lastnight, oh my what a tasty treat that was and then a good ole poo afterwards...lol.....well all laughing aside I need to go and lay down again, just got up to use the bathroom and took the laptop with me....love u all as always. Yes I know about Look Good, it's a wonderful place, I mentioned before that they have a program set up for people like me that can't afford a wig and they will donate one to you, they never mentioned that to me before when I went in a couple of years ago, but I"ll inquire. well must run.

    Linda

    Home again, home again jiggity jig
    Dear Linda,
    Home, walking, actual food, pooing..... you made my morning! I'm having such a tough time after this 3rd carbo/taxol treatment and you just gave me the lift I needed!
    (((HUGS))) Maria
  • saundra
    saundra Member Posts: 1,370 Member
    dorion said:

    knocked out
    Hi Gang
    Well if this is any indication of how I'm gonna feel during these cycles I'm afraid I'm not going to get much done. I am so so tired, cold as heck. I'm having a real hard time catching my breath. I think I may or may not have mantioned that I go once a week. OH I forgot to tell you, they've discharged me, I"M HOME! LOL the most important news..lol...chemo brain is starting already. I got home yesterday around 6 p.m. Meghan is so happy. My legs went down, but when I get up to walk around again, they puff back up again, I sure hope this goes away. They think the chemo will take care of that. I need home care to come in everyday with an iv drip for some sort of antibiotic, for that viral thing I caught in the hospital. I had chinese food lastnight, oh my what a tasty treat that was and then a good ole poo afterwards...lol.....well all laughing aside I need to go and lay down again, just got up to use the bathroom and took the laptop with me....love u all as always. Yes I know about Look Good, it's a wonderful place, I mentioned before that they have a program set up for people like me that can't afford a wig and they will donate one to you, they never mentioned that to me before when I went in a couple of years ago, but I"ll inquire. well must run.

    Linda

    Glad you are home
    That is good news. Take care of yourself and keep us posted. Love you, Saundra
  • msfanciful
    msfanciful Member Posts: 559
    dorion said:

    knocked out
    Hi Gang
    Well if this is any indication of how I'm gonna feel during these cycles I'm afraid I'm not going to get much done. I am so so tired, cold as heck. I'm having a real hard time catching my breath. I think I may or may not have mantioned that I go once a week. OH I forgot to tell you, they've discharged me, I"M HOME! LOL the most important news..lol...chemo brain is starting already. I got home yesterday around 6 p.m. Meghan is so happy. My legs went down, but when I get up to walk around again, they puff back up again, I sure hope this goes away. They think the chemo will take care of that. I need home care to come in everyday with an iv drip for some sort of antibiotic, for that viral thing I caught in the hospital. I had chinese food lastnight, oh my what a tasty treat that was and then a good ole poo afterwards...lol.....well all laughing aside I need to go and lay down again, just got up to use the bathroom and took the laptop with me....love u all as always. Yes I know about Look Good, it's a wonderful place, I mentioned before that they have a program set up for people like me that can't afford a wig and they will donate one to you, they never mentioned that to me before when I went in a couple of years ago, but I"ll inquire. well must run.

    Linda

    Hoo-ray!!!
    WHO said poo

    Hoo-ray!!!

    WHO said poo pooing is a no no! LOL!

    I'm sorry was that in bad taste? I'm just estatic to hear you are home!!! Soak it all up and enjoy.

    I remember after 3 and 1/2 weeks in the surreal surrounding of a hospital room, once I got home, for once in my life I was more than happy to dust, clean, just feel my home again.

    Love,

    Sharon