Lumpectomy and now starting radiation treatments

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snowbaby1209
snowbaby1209 Member Posts: 5
edited March 2014 in Breast Cancer #1
New to the discussion board: I had a lumpectomy (stage I, grade I, negative nodes) in December. Had the Oncotype DX test done and am low risk for recurrance. So I am not doing chemo and now started rad treatments and am using Aquaphor ointment twice a day to prevent, hopefully, skin problems. Also am trying Vanicream but found it leaves a residue (flakes). I had a few stabbing pains in my right breast similar to post op pain on the 4th day of treatment and then they went away. I am wearing a compression sleeve to prevent lymphodema and have been taught manual lymph drainage to help with swelling around the surgical site. The lymphydema therapist is great and has been helpful with an axillary cord problem I had post op.
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  • Kat11
    Kat11 Member Posts: 1,931 Member
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    Welcome snowbaby
    Just wanted to say Hi and welcome you to the site. I am just finishing rads and every now and again I also get the stabbing pain. They said it was normal. For some reason I was told not to use Aquaphor, because it is to thick and it remains on the skin and it could block treatment and cause me to burn. Well I did not use it and I burned anyways. make sure what ever you use you check with the doctor first. Again welcome
  • sbmly53
    sbmly53 Member Posts: 1,522
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    Snowbaby,
    Welcome! Our BC

    Snowbaby,

    Welcome! Our BC experience is just about the same. My lumpectomy was 12/7, Onco let me skip chemo, and I have 10 more (out of 33) rads to go. I also had tendon cord. Ouch!

    Get your rest - naps, early to bed.

    Sue
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
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    Warm welcome, snowbaby1209
    Glad you found us - an amazing group of kind and open hearted folks - though sorry for the reason. Know that when you're here, you're amongst survivors - all of us. Only those who actually travel the journey can truly understand all that it entails.

    I, too, was taught the MLD (Manual Lymphatic Drainage) self-massage technique you describe. Except my practice of it is preventative. (So far, along with many precautions, it's worked well for me.) Began 6+ years ago, when it was considered somewhat experimental.

    Please do visit often, whenever you'd like or need to.

    Kind regards, Susan
  • dash4
    dash4 Member Posts: 303 Member
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    confused..
    Well, I must first say -I am easily confused these days. Anyhow, how many nodes did you have removed? Why do you need a compression sleeve and what is manual lymph drainage? axillary cord problem? I am guessing that since you had negative nodes they did not have to remove many?
    I am very new and everytime I think I understand something -there is a new discussion on the topic. My lumpectomy was 2/16 and five negative nodes-so I am curious with your story. Thanks for the info.
    Mary Kay
  • jbug
    jbug Member Posts: 285
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    Welcome Snowbaby
    Welcome to the site! You'll find a great bunch of women here. I had lumpectomy in Nov (stage 1, grade 1, neg nodes, ER/PR+ HER2 negative) and finished my course rads at the end of Jan and have started tamoxifen (no problems except occassional hot flashes).

    I only had 2 or 3 nodes taken, so I haven't really had to worry about lymphedema. For Mary Kay: Can't say that I've heard that you had to have a specific number (like more than 10) removed to get lymphedema, but figured the chances for me were pretty small. The rad onc nurse recommened no blood pressures or shots in that arm, just to be careful. So that's what i'm doing. I don't have a sleeve and haven't had any treatments.

    Good luck w/rads! Use your cream often (3-4 x/day) and be generous! Come back anytime you have questions or need to vent, the great thing about this site, it's open 24/7!

    God Bless...
    Julie
  • aztec45
    aztec45 Member Posts: 757
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    Welcome
    Welcome Snowbaby. Glad to meet you via these boards.

    P
  • DianeBC
    DianeBC Member Posts: 3,881 Member
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    sbmly53 said:

    Snowbaby,
    Welcome! Our BC

    Snowbaby,

    Welcome! Our BC experience is just about the same. My lumpectomy was 12/7, Onco let me skip chemo, and I have 10 more (out of 33) rads to go. I also had tendon cord. Ouch!

    Get your rest - naps, early to bed.

    Sue

    Welcome snowbaby! I used
    Welcome snowbaby! I used Biafine and Aquaphor as prescribed my rads oncologist. Be sure and get lots of rest too. Rads will wear you down. Good luck!
  • Tux
    Tux Member Posts: 544
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    aztec45 said:

    Welcome
    Welcome Snowbaby. Glad to meet you via these boards.

    P

    Welcome, Snowbaby, hope
    Welcome, Snowbaby, hope everything continues to go well. Rads will be over before you know it! Hugs & prayers sent your way...
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
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    Welcome, Snowbaby, I'm glad
    Welcome, Snowbaby, I'm glad you found us. You'll be finished with your treatments before you know it. Rest and take care of yourself and ask questions as you have them. We'll be along to share our experience. Take care and good luck.
  • Sunrae
    Sunrae Member Posts: 808
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    MyTurnNow said:

    Welcome, Snowbaby, I'm glad
    Welcome, Snowbaby, I'm glad you found us. You'll be finished with your treatments before you know it. Rest and take care of yourself and ask questions as you have them. We'll be along to share our experience. Take care and good luck.

    Looks like you're well on
    Looks like you're well on the road to the finish line. Haven't had rads yet but sounds like you're taking good care of yourself and are well informed. I've heard that this step can be exhausting and you may need a lot of rest. Keep posting and let us know how you're doing.
  • Alexis F
    Alexis F Member Posts: 3,598
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    aztec45 said:

    Welcome
    Welcome Snowbaby. Glad to meet you via these boards.

    P

    Hi and Welcome! Wishing you
    Hi and Welcome! Wishing you good luck!

    Lex♥
  • snowbaby1209
    snowbaby1209 Member Posts: 5
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    dash4 said:

    confused..
    Well, I must first say -I am easily confused these days. Anyhow, how many nodes did you have removed? Why do you need a compression sleeve and what is manual lymph drainage? axillary cord problem? I am guessing that since you had negative nodes they did not have to remove many?
    I am very new and everytime I think I understand something -there is a new discussion on the topic. My lumpectomy was 2/16 and five negative nodes-so I am curious with your story. Thanks for the info.
    Mary Kay

    Hope to clear up some confusion
    Hi, I had 3 lymph nodes removed. I am wearing a compression sleeve to prevent lymphodema. I had swelling around my surgical site under the arm and the breast tissue. The reason why I was referred to the lymphodema therapist was due to arm pain. I noticed it a week after surgery especially if I had to reach for something. I also felt a hard cord in my armpit and it followed down my inner arm to my elbow. It is very common with breast cancer surgery. The therapist did manual lymph drainage to help with the congestion around my surgery site. She first stimulates the lymph system on the other side and then encourages the lymph fluid on the affected side to move towards the good lymph channels. She also showed me stretching exercises to help resolve the cord; how to massage my incisions so they will be smoother; and how to do manual lymph drainage. She was very helpful! I have started radiation and have had 8 treatments of 33 so far. The tired feeling just started yesterday so I went to bed at 8:00p.m. My family has been great and my husband has been doing more of the cooking.
    The reason why I called myself Snowbaby is that I have quite a collection of Snowbabies and I live in Minnesota where the winters last longer than the summers! Hope to hear back from you Mary Kay.
    --Pam
  • snowbaby1209
    snowbaby1209 Member Posts: 5
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    Kat11 said:

    Welcome snowbaby
    Just wanted to say Hi and welcome you to the site. I am just finishing rads and every now and again I also get the stabbing pain. They said it was normal. For some reason I was told not to use Aquaphor, because it is to thick and it remains on the skin and it could block treatment and cause me to burn. Well I did not use it and I burned anyways. make sure what ever you use you check with the doctor first. Again welcome

    Rad Treatments
    Hi Kat11,
    How long did it take for the skin burn to show up? Also, how long did it take to heal? I suppose everyone is different depending on how one reacts to the sun. I have increased sensitivity to wearing even a sports bra so switched to an all cotton tank instead. Even the seatbelt is uncomfortable and this has been only 8 rad treatments of 33. I am also trying Vanicream and will continue to use that instead for now.
    --Snowbaby1209
  • Diana77
    Diana77 Member Posts: 16
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    Hi I am also new here, have
    Hi I am also new here, have stage 1 neg nodes and low risk on my oncotype.Yeahh.. I had the surgery on jan 25 and am starting radiation in a couple of weeks. I also have a strange cord type feeling from beneath my armpit thru to my arm, so i will see a physical therapist tomarrow.
  • Cairmaid
    Cairmaid Member Posts: 64
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    dash4 said:

    confused..
    Well, I must first say -I am easily confused these days. Anyhow, how many nodes did you have removed? Why do you need a compression sleeve and what is manual lymph drainage? axillary cord problem? I am guessing that since you had negative nodes they did not have to remove many?
    I am very new and everytime I think I understand something -there is a new discussion on the topic. My lumpectomy was 2/16 and five negative nodes-so I am curious with your story. Thanks for the info.
    Mary Kay

    This is all very confusing :-)
    Before my lumpectomy, the surgeon told me if she removed more than the 1 sentinel node, she would keep me in the hospital overnight, have the nurses show me some "exercises" and put me on lymphodema precautions (no blood pressure, needles or shoulder bags on that arm). Well, I got to go home that same evening. A while later, I got a copy of my labs, which said there were 4 lymph nodes tested. ??!! I mentioned it to my medical oncologist, who said she would ask the surgeon for me. My husband piped up and said, "Well, the surgeon said there wouldn't be a problem because the nodes were so close together they acted as one." Gee, thanks, hubby...when were you going to tell ME? :-)

    Anyway, this is a roundabout way to say each patient and each surgeon is different. My surgeon confirmed that she was not putting me on precautions because the 4 nodes came out without disturbing any of the others. The way I understand it, when you're injured, white blood cells rush to the rescue and when they're finished their job, the lymph nodes help drain the extra fluids away from the area. Without enough lymph nodes, the fluid stays there and causes problems. So, you wear a compression sleeve to keep down the swelling and you do massage to help the fluids drain away.
  • jnl
    jnl Member Posts: 3,869 Member
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    Cairmaid said:

    This is all very confusing :-)
    Before my lumpectomy, the surgeon told me if she removed more than the 1 sentinel node, she would keep me in the hospital overnight, have the nurses show me some "exercises" and put me on lymphodema precautions (no blood pressure, needles or shoulder bags on that arm). Well, I got to go home that same evening. A while later, I got a copy of my labs, which said there were 4 lymph nodes tested. ??!! I mentioned it to my medical oncologist, who said she would ask the surgeon for me. My husband piped up and said, "Well, the surgeon said there wouldn't be a problem because the nodes were so close together they acted as one." Gee, thanks, hubby...when were you going to tell ME? :-)

    Anyway, this is a roundabout way to say each patient and each surgeon is different. My surgeon confirmed that she was not putting me on precautions because the 4 nodes came out without disturbing any of the others. The way I understand it, when you're injured, white blood cells rush to the rescue and when they're finished their job, the lymph nodes help drain the extra fluids away from the area. Without enough lymph nodes, the fluid stays there and causes problems. So, you wear a compression sleeve to keep down the swelling and you do massage to help the fluids drain away.

    Welcome snowbaby! Glad you
    Welcome snowbaby! Glad you found this site, as you can see, there are so many helpful supporters for you. Good luck!

    Hugs, Leeza
  • sunshine rae
    sunshine rae Member Posts: 2
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    Kat11 said:

    Welcome snowbaby
    Just wanted to say Hi and welcome you to the site. I am just finishing rads and every now and again I also get the stabbing pain. They said it was normal. For some reason I was told not to use Aquaphor, because it is to thick and it remains on the skin and it could block treatment and cause me to burn. Well I did not use it and I burned anyways. make sure what ever you use you check with the doctor first. Again welcome

    Aloe Vera Gel
    My drs. recommended 100% Aloe Vera Gel to rub on the breast after rad treatments. But be sure you do not have it on when you are being treated. I use it. It seems to help. Ive only had 7 treatments.
  • dash4
    dash4 Member Posts: 303 Member
    Options

    Hope to clear up some confusion
    Hi, I had 3 lymph nodes removed. I am wearing a compression sleeve to prevent lymphodema. I had swelling around my surgical site under the arm and the breast tissue. The reason why I was referred to the lymphodema therapist was due to arm pain. I noticed it a week after surgery especially if I had to reach for something. I also felt a hard cord in my armpit and it followed down my inner arm to my elbow. It is very common with breast cancer surgery. The therapist did manual lymph drainage to help with the congestion around my surgery site. She first stimulates the lymph system on the other side and then encourages the lymph fluid on the affected side to move towards the good lymph channels. She also showed me stretching exercises to help resolve the cord; how to massage my incisions so they will be smoother; and how to do manual lymph drainage. She was very helpful! I have started radiation and have had 8 treatments of 33 so far. The tired feeling just started yesterday so I went to bed at 8:00p.m. My family has been great and my husband has been doing more of the cooking.
    The reason why I called myself Snowbaby is that I have quite a collection of Snowbabies and I live in Minnesota where the winters last longer than the summers! Hope to hear back from you Mary Kay.
    --Pam

    your reply has helped
    Pam,
    Thanks for your reply--it does help to explain. I posted another question about my "feeling" to see what others are saying too. I am glad you made me aware of the possibilities. Hope you are having a good day.
    Mary Kay
  • jbug
    jbug Member Posts: 285
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    Diana77 said:

    Hi I am also new here, have
    Hi I am also new here, have stage 1 neg nodes and low risk on my oncotype.Yeahh.. I had the surgery on jan 25 and am starting radiation in a couple of weeks. I also have a strange cord type feeling from beneath my armpit thru to my arm, so i will see a physical therapist tomarrow.

    Welcome Diana
    Just wanted to add my welcome to the boards!
  • Megan M
    Megan M Member Posts: 3,000
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    Rad Treatments
    Hi Kat11,
    How long did it take for the skin burn to show up? Also, how long did it take to heal? I suppose everyone is different depending on how one reacts to the sun. I have increased sensitivity to wearing even a sports bra so switched to an all cotton tank instead. Even the seatbelt is uncomfortable and this has been only 8 rad treatments of 33. I am also trying Vanicream and will continue to use that instead for now.
    --Snowbaby1209

    I never burnt during rads.
    I never burnt during rads. I just got a really dark pink. So, there was no healing really. Just keep your cremes on and be gentle with your skin. Use the cremes that your rads oncologist says to. I used Biafine and Aquaphor. Good luck!